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Chilean mother travels 1,300 kilometers on foot to try to save her son with dystrophy

In the city of Ancud, one of the most important of the Chiloe archipelago, in the south of Chile, there is no hospital, so if one of its about 165,000 inhabitants gets sick, he must take the ferry and travel about 50 kilometers to reach the neighboring city of Puerto Montt, the nearest place.

Camila Gómez, a young mother, decided to take a trip but this time to walk to the Palacio de la Moneda, in Santiago de Chile, more than 1,300 kilometers from her home, to raise funds and make visible the drama of her son Tomás, who suffers from Duchenne muscular dystrophy, one of the so-called “rare diseases”, which almost no one worries and no one finances.

Its main objective is to help collect the nearly four million dollars that costs a vital treatment that does not exist in Chile – it must be imported from the United States – and that would help stop the progression of the child’s ailment, barely five years old.

“Tomás has Duchenne muscular dystrophy in a neuromuscular degenerative disease that gradually weakens the muscles, the respiratory system and the heart, which leads to premature death,” he explains in one of the highs of his journey.

“In Chile there is no type of treatment for this disease, but in the United States there are several treatment options, there are three and here they told me that it was not possible to cover a medicine that is abroad. And it motivated me to do this walk, this physical effort,” he adds.

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Gómez regrets that no one, neither the precarious public service nor the greedy private insurance, has offered him an exit in the country, although his son “does have options abroad.

“That’s why we decided to walk, to make the disease visible and take it very particularly to collect the 3.9 million dollars that the drug that is administered for the only time in a lifetime costs. So far (its administration) is approved until the age of four and five. Tomás is five and a half years old. So we are against time,” she urges in anguish.

Even so, hope has not been erased from his face and sometimes, especially when asked about solidarity, he outlines a smile of love and trust.

“We are all aware of the great health deficit, that Chile is a country very backward in health, unlike other more developed countries and we are all aware of that. So people have empathized, supported and contributed to the campaign,” he says.

Along with this mother, who left Ancud on April 28, her husband and father of Tomás, Alex Ross, a friend Álvaro Neira and Marco Reyes, president of the Duchenne Families corporation in Chile, who has two teenage children with the same disease and who proposed the Ross Gómez family to the odyssey.

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“I am the logistical support for Camila and Marco who have been walking from Chiloé. I assist them on the way, usually with a change of clothes, food, food, I manage the lodging,” explains Alex.

“(Camila) Walk through Tomás, because we are against time, but he also does it so that no mom has to do it,” he says.

Camila’s third objective is to be able to speak in person with the President of the Republic, Gabriel Boric, to urge him to promote a bill to Congress that allows improving the coverage of rare diseases in the country, and medical assistance in rural areas, abandoned by the state in a country where the privatization of health care prevails.

Neira joined the walk because he was moved by Tomás’ suffering but also because he is worried that “in Chile we do not have the means, a clinic where we can have these medicines, that we have to go to this.”

Tomás was diagnosed in March 2023 with Duchenne’s syndrome, the most common but also most severe form of this type of muscular dystrophy that is triggered by a defective gene that affects dystrophin, a protein that helps keep the body’s cells intact.

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It causes problems when walking and running, fatigue, learning difficulties and heart and respiratory deficiencies, and those who suffer from it usually have a life expectancy of between 20 or 30 years in difficult conditions.

With more than 700 kilometers of love in her terrified legs, this mother hopes to arrive in the Chilean capital at the end of this month of May from Chiloe, where there is a movement so that the spending on a bridge that they believe is unnecessary, is dedicated to the construction of a perentory hospital

International

Spain’s irregular migrant population rises to 840,000, study finds

The number of migrants living in Spain without legal residency status continues to rise and has reached 840,000 people, with 91% originating from the Americas, particularly Colombia, Peru and Honduras, according to a report by the Spanish think tank Funcas (Foundation of the Savings Banks).

An estimated 17.2% of the non-EU foreign population living in Spain is in an irregular administrative situation. The estimate is based on the gap between the number of foreign residents effectively living in Spain, according to the National Statistics Institute (INE), and those who hold a residence permit, benefit from international protection, or are in the process of obtaining it.

The data, as of January 1, 2025, point to a notable and sustained increase in irregular migration since 2017, when the estimated figure stood at around 107,000 people, representing 4.2% of the non-EU population residing in Spain.

By origin, migrants from the American continent stand out, totaling around 760,000 people, or 91% of all irregular migrants. Colombians account for nearly 290,000, followed by Peruvians with almost 110,000, and Hondurans with about 90,000. Migrants from Africa (50,000), Asia (15,000) and Europe (14,000) trail far behind.

The figures predate Spain’s latest immigration regulation reform, which came into force in May 2025 and introduces measures to ease access to legal status through residency ties. According to Funcas, the reform would, in principle, tend to reduce the number of migrants in an irregular situation.

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International

Historic snowstorm paralyzes Toronto after 60 centimeters of snow

Toronto, Canada’s largest city and the fourth most populous in North America, was largely paralyzed on Monday after a historic snowstorm dumped up to 60 centimeters of snow and sent temperatures plunging to -15 degrees Celsius, authorities said.

Late Sunday, as the scale of the snowfall became clear, city officials declared a climate emergency, triggering extraordinary measures including parking bans on several major streets to facilitate snow removal operations.

Toronto’s public transit authority reported that while some buses remain immobilized, subway and streetcar services are operating with relative normality, though localized disruptions may occur.

A similar situation is affecting the city’s commuter rail network, which remains operational but is experiencing significant delays on its main routes due to the severe weather conditions.

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International

Venezuela frees at least 80 political prisoners, NGO says

At least 80 political prisoners were released on Sunday across Venezuela, human rights group Foro Penal reported, as the broader process of detainee releases continues at a slow pace under the interim government.

Foro Penal’s director, Alfredo Romero, wrote on social media platform X that verified releases took place nationwide and that the figure could rise as more confirmations are completed.

Attorney Gonzalo Himiob, also from Foro Penal, said the excarcelations occurred during the early hours of the day and emphasized that the number is not yet final pending further verification.

The releases are part of a series of steps announced by Venezuela’s interim leader, Delcy Rodríguez, who took power after the capture of former President Nicolás Maduro in a U.S. military operation on Jan. 3, 2026. Rodríguez has pledged a significant number of liberations but has been criticized by opposition groups and rights organizations for the slow and nontransparent nature of the process.

So far, the Venezuelan government reports that 626 detainees have been freed since December, though independent counts by human rights groups suggest the number of actual political prisoner releases is lower and that many remain behind bars.

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Families of those still detained have maintained vigils outside prisons, hopeful for further releases even as broader concerns about political imprisonment and due process persist.

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