International
Chilean mother travels 1,300 kilometers on foot to try to save her son with dystrophy
In the city of Ancud, one of the most important of the Chiloe archipelago, in the south of Chile, there is no hospital, so if one of its about 165,000 inhabitants gets sick, he must take the ferry and travel about 50 kilometers to reach the neighboring city of Puerto Montt, the nearest place.
Camila Gómez, a young mother, decided to take a trip but this time to walk to the Palacio de la Moneda, in Santiago de Chile, more than 1,300 kilometers from her home, to raise funds and make visible the drama of her son Tomás, who suffers from Duchenne muscular dystrophy, one of the so-called “rare diseases”, which almost no one worries and no one finances.
Its main objective is to help collect the nearly four million dollars that costs a vital treatment that does not exist in Chile – it must be imported from the United States – and that would help stop the progression of the child’s ailment, barely five years old.
“Tomás has Duchenne muscular dystrophy in a neuromuscular degenerative disease that gradually weakens the muscles, the respiratory system and the heart, which leads to premature death,” he explains in one of the highs of his journey.
“In Chile there is no type of treatment for this disease, but in the United States there are several treatment options, there are three and here they told me that it was not possible to cover a medicine that is abroad. And it motivated me to do this walk, this physical effort,” he adds.
Gómez regrets that no one, neither the precarious public service nor the greedy private insurance, has offered him an exit in the country, although his son “does have options abroad.
“That’s why we decided to walk, to make the disease visible and take it very particularly to collect the 3.9 million dollars that the drug that is administered for the only time in a lifetime costs. So far (its administration) is approved until the age of four and five. Tomás is five and a half years old. So we are against time,” she urges in anguish.
Even so, hope has not been erased from his face and sometimes, especially when asked about solidarity, he outlines a smile of love and trust.
“We are all aware of the great health deficit, that Chile is a country very backward in health, unlike other more developed countries and we are all aware of that. So people have empathized, supported and contributed to the campaign,” he says.
Along with this mother, who left Ancud on April 28, her husband and father of Tomás, Alex Ross, a friend Álvaro Neira and Marco Reyes, president of the Duchenne Families corporation in Chile, who has two teenage children with the same disease and who proposed the Ross Gómez family to the odyssey.
“I am the logistical support for Camila and Marco who have been walking from Chiloé. I assist them on the way, usually with a change of clothes, food, food, I manage the lodging,” explains Alex.
“(Camila) Walk through Tomás, because we are against time, but he also does it so that no mom has to do it,” he says.
Camila’s third objective is to be able to speak in person with the President of the Republic, Gabriel Boric, to urge him to promote a bill to Congress that allows improving the coverage of rare diseases in the country, and medical assistance in rural areas, abandoned by the state in a country where the privatization of health care prevails.
Neira joined the walk because he was moved by Tomás’ suffering but also because he is worried that “in Chile we do not have the means, a clinic where we can have these medicines, that we have to go to this.”
Tomás was diagnosed in March 2023 with Duchenne’s syndrome, the most common but also most severe form of this type of muscular dystrophy that is triggered by a defective gene that affects dystrophin, a protein that helps keep the body’s cells intact.
It causes problems when walking and running, fatigue, learning difficulties and heart and respiratory deficiencies, and those who suffer from it usually have a life expectancy of between 20 or 30 years in difficult conditions.
With more than 700 kilometers of love in her terrified legs, this mother hopes to arrive in the Chilean capital at the end of this month of May from Chiloe, where there is a movement so that the spending on a bridge that they believe is unnecessary, is dedicated to the construction of a perentory hospital
International
King Charles III Says U.S.-UK Alliance Is “Irreplaceable and Unbreakable”
King Charles III of the United Kingdom reaffirmed the strength of the British-American relationship on Tuesday during a speech before the United States Congress, describing the alliance between the two nations as “irreplaceable and unbreakable.”
The address, delivered at the Capitol, marked the first speech by a British monarch before Congress since Queen Elizabeth II in 1991 and comes at a time of political tensions between Donald Trump’s administration and the Labour government of Prime Minister Keir Starmer.
“As President Trump himself observed during his state visit to Britain last autumn, the bond of kinship and identity between the United States and the United Kingdom is invaluable and eternal. It is irreplaceable and unbreakable,” the king said.
While reflecting on the upcoming 250th anniversary of U.S. independence, which will be commemorated this year, Charles III stated that the partnership between the two countries “was born out of disagreement, but is no less strong because of it.”
The monarch emphasized the democratic values shared by both nations and noted that major global changes have occurred whenever the two allies found common ground.
“When we have found that way to agree, great changes have taken place not only for the benefit of our peoples, but for all peoples,” he said.
King Charles also quoted British Prime Minister Keir Starmer, who recently described the relationship as “an indispensable alliance.”
Concluding his speech, the monarch described the shared history of the United States and the United Kingdom as “a story of reconciliation, renewal, and an extraordinary partnership.”
He added that Washington and London have forged “one of the most consequential alliances in human history.”
“I pray with all my heart that our alliance continues to defend our shared values, together with our partners in Europe, the Commonwealth, and around the world, and that we ignore calls urging us to become increasingly isolationist,” Charles III stated.
The king ended by urging both nations to “recommit to one another in selfless service to our peoples and to all peoples of the world.”
International
Trump Administration Considers Denying Green Cards Over Political Views
The administration of President Donald Trump is evaluating new immigration guidelines that could deny permanent residency to immigrants based on their political views, according to a report published by The New York Times.
The proposed measures, outlined in internal Department of Homeland Security documents, would instruct immigration officials to take applicants’ public expressions and ideological positions into account when reviewing green card applications.
According to the report, cases involving “possible anti-American and/or antisemitic conduct or ideologies” would need to be referred to higher authorities for additional review.
Even if applicants have not violated any laws, authorities could still reject residency requests if they determine that individuals have “endorsed, promoted, or supported anti-American views.”
Among the factors listed in the guidelines are participation in pro-Palestinian activities, actions considered antisemitic, and the burning of the U.S. flag.
The documents reportedly describe such actions as “heavily negative” factors in immigration evaluations, potentially blocking applicants from obtaining permanent residency and, eventually, U.S. citizenship.
The directives also place particular attention on demonstrations held on university campuses following the 2023 Hamas attacks against Israel.
However, flag burning has previously been recognized by the U.S. Supreme Court as a form of protected free speech under the Constitution.
The proposal has sparked criticism from immigrant advocacy organizations, including the New York Immigration Coalition.
Its president, Murad Awawdeh, warned that the policies could pose a threat to fundamental rights and freedoms.
International
Mexico Arrests CJNG Leader “El Jardinero” in Nayarit
Mexican authorities arrested Audias Flores, known as “El Jardinero,” on Monday during a naval operation in the western state of Nayarit, delivering another major blow to the Cártel Jalisco Nueva Generación (CJNG).
Flores was considered one of the top regional leaders within the cartel and had reportedly overseen criminal operations along Mexico’s Pacific coast. Security analysts viewed him as a potential successor to slain drug kingpin Nemesio Oseguera.
The arrest was carried out by Mexico’s Navy Special Forces in a planned operation, according to Security Minister Omar García Harfuch.
The United States Department of the Treasury had previously identified Flores as a “significant foreign narcotics trafficker,” while U.S. authorities offered a reward of up to $5 million for information leading to his capture and extradition.
A U.S. grand jury indicted Flores in 2021 on charges including conspiracy to distribute cocaine and heroin.
His capture comes months after the reported death of “El Mencho,” an operation that Mexican authorities considered a priority due to the cartel leader’s alleged involvement in a 2020 assassination attempt against García Harfuch.
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