International

Chilean mother travels 1,300 kilometers on foot to try to save her son with dystrophy

In the city of Ancud, one of the most important of the Chiloe archipelago, in the south of Chile, there is no hospital, so if one of its about 165,000 inhabitants gets sick, he must take the ferry and travel about 50 kilometers to reach the neighboring city of Puerto Montt, the nearest place.

Camila Gómez, a young mother, decided to take a trip but this time to walk to the Palacio de la Moneda, in Santiago de Chile, more than 1,300 kilometers from her home, to raise funds and make visible the drama of her son Tomás, who suffers from Duchenne muscular dystrophy, one of the so-called “rare diseases”, which almost no one worries and no one finances.

Its main objective is to help collect the nearly four million dollars that costs a vital treatment that does not exist in Chile – it must be imported from the United States – and that would help stop the progression of the child’s ailment, barely five years old.

“Tomás has Duchenne muscular dystrophy in a neuromuscular degenerative disease that gradually weakens the muscles, the respiratory system and the heart, which leads to premature death,” he explains in one of the highs of his journey.

“In Chile there is no type of treatment for this disease, but in the United States there are several treatment options, there are three and here they told me that it was not possible to cover a medicine that is abroad. And it motivated me to do this walk, this physical effort,” he adds.

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Gómez regrets that no one, neither the precarious public service nor the greedy private insurance, has offered him an exit in the country, although his son “does have options abroad.

“That’s why we decided to walk, to make the disease visible and take it very particularly to collect the 3.9 million dollars that the drug that is administered for the only time in a lifetime costs. So far (its administration) is approved until the age of four and five. Tomás is five and a half years old. So we are against time,” she urges in anguish.

Even so, hope has not been erased from his face and sometimes, especially when asked about solidarity, he outlines a smile of love and trust.

“We are all aware of the great health deficit, that Chile is a country very backward in health, unlike other more developed countries and we are all aware of that. So people have empathized, supported and contributed to the campaign,” he says.

Along with this mother, who left Ancud on April 28, her husband and father of Tomás, Alex Ross, a friend Álvaro Neira and Marco Reyes, president of the Duchenne Families corporation in Chile, who has two teenage children with the same disease and who proposed the Ross Gómez family to the odyssey.

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“I am the logistical support for Camila and Marco who have been walking from Chiloé. I assist them on the way, usually with a change of clothes, food, food, I manage the lodging,” explains Alex.

“(Camila) Walk through Tomás, because we are against time, but he also does it so that no mom has to do it,” he says.

Camila’s third objective is to be able to speak in person with the President of the Republic, Gabriel Boric, to urge him to promote a bill to Congress that allows improving the coverage of rare diseases in the country, and medical assistance in rural areas, abandoned by the state in a country where the privatization of health care prevails.

Neira joined the walk because he was moved by Tomás’ suffering but also because he is worried that “in Chile we do not have the means, a clinic where we can have these medicines, that we have to go to this.”

Tomás was diagnosed in March 2023 with Duchenne’s syndrome, the most common but also most severe form of this type of muscular dystrophy that is triggered by a defective gene that affects dystrophin, a protein that helps keep the body’s cells intact.

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It causes problems when walking and running, fatigue, learning difficulties and heart and respiratory deficiencies, and those who suffer from it usually have a life expectancy of between 20 or 30 years in difficult conditions.

With more than 700 kilometers of love in her terrified legs, this mother hopes to arrive in the Chilean capital at the end of this month of May from Chiloe, where there is a movement so that the spending on a bridge that they believe is unnecessary, is dedicated to the construction of a perentory hospital

International

IEA warns Middle East conflict could spark worst energy crisis in decades

The ongoing conflict in the Middle East could trigger the worst energy crisis in decades, warned Fatih Birol, head of the International Energy Agency (IEA), who described the situation as “very serious.”

Speaking at the National Press Club in Canberra, Birol compared the current scenario to the oil crises of the 1970s, noting that during those events the world lost around five million barrels of oil per day in each crisis.

“Today, we have lost 11 million barrels per day—more than the two major oil shocks combined,” he said.

The Turkish economist referred to the conflict that began on February 28, following attacks by the United States and Israel against Iran, which have significantly disrupted global energy markets and driven oil prices higher.

Birol warned that the global economy is facing a “very, very serious threat” and expressed hope that the crisis will be resolved soon.

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“No country will be immune to the effects of this crisis if it continues in this direction. Global efforts are urgently needed,” he emphasized.

International

Colombian Air Force Hercules plane crashes during takeoff with troops onboard

A Lockheed C-130 Hercules operated by the Colombian Air Force was involved in a “tragic accident” while taking off from Puerto Leguízamo, in the Putumayo department of southern Colombia, as it was transporting troops, Defense Minister Pedro Sánchez reported on Monday.

The minister stated on social media that the exact number of victims and the causes of the crash have not yet been determined. He also extended his condolences to the families affected and urged the public to avoid speculation until official information is confirmed.

“This is a deeply painful event for the country. Our prayers are with the victims and their families,” Sánchez said, adding that emergency protocols have been activated and an investigation is underway.

Meanwhile, President Gustavo Petro expressed hope that there would be no fatalities in what he described as a “horrific accident that should not have happened.”

Petro also highlighted ongoing efforts to modernize the country’s air fleet and reiterated the need to acquire new helicopters and transport aircraft to strengthen military mobility, particularly in remote regions.

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According to local media reports, approximately 110 soldiers were on board the aircraft. So far, at least 20 injured military personnel have been rescued.

International

Paris prosecutors alert U.S. over alleged deepfake strategy linked to Elon Musk

The Paris Prosecutor’s Office said on Saturday that it had alerted authorities in the United States over suspicions that tech entrepreneur Elon Musk may have encouraged the spread of sexualized deepfake content on the social platform X to artificially boost the company’s valuation.

According to prosecutors, the controversy surrounding explicit AI-generated videos—reportedly linked to Grok, the platform’s artificial intelligence system—may have been deliberately triggered to increase the market value of X and X AI.

The office added that the alleged strategy could be tied to the planned June 2026 public listing of a new entity formed through the merger of SpaceX and X AI.

French authorities said they contacted the U.S. Department of Justice as well as legal representatives at the U.S. Securities and Exchange Commission (SEC) earlier this week to share their concerns.

Responding on X in French to a report about the case, Musk referred to French prosecutors using an offensive term.

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When contacted, X’s legal representative in France did not immediately comment.

Grok, the platform’s AI system, has its own account on X, allowing users to interact with it or request content generation. For a period, users were able to tag the bot in posts to generate or edit images, a feature that may have facilitated the spread of such material.