International
Chilean mother travels 1,300 kilometers on foot to try to save her son with dystrophy
In the city of Ancud, one of the most important of the Chiloe archipelago, in the south of Chile, there is no hospital, so if one of its about 165,000 inhabitants gets sick, he must take the ferry and travel about 50 kilometers to reach the neighboring city of Puerto Montt, the nearest place.
Camila Gómez, a young mother, decided to take a trip but this time to walk to the Palacio de la Moneda, in Santiago de Chile, more than 1,300 kilometers from her home, to raise funds and make visible the drama of her son Tomás, who suffers from Duchenne muscular dystrophy, one of the so-called “rare diseases”, which almost no one worries and no one finances.
Its main objective is to help collect the nearly four million dollars that costs a vital treatment that does not exist in Chile – it must be imported from the United States – and that would help stop the progression of the child’s ailment, barely five years old.
“Tomás has Duchenne muscular dystrophy in a neuromuscular degenerative disease that gradually weakens the muscles, the respiratory system and the heart, which leads to premature death,” he explains in one of the highs of his journey.
“In Chile there is no type of treatment for this disease, but in the United States there are several treatment options, there are three and here they told me that it was not possible to cover a medicine that is abroad. And it motivated me to do this walk, this physical effort,” he adds.
Gómez regrets that no one, neither the precarious public service nor the greedy private insurance, has offered him an exit in the country, although his son “does have options abroad.
“That’s why we decided to walk, to make the disease visible and take it very particularly to collect the 3.9 million dollars that the drug that is administered for the only time in a lifetime costs. So far (its administration) is approved until the age of four and five. Tomás is five and a half years old. So we are against time,” she urges in anguish.
Even so, hope has not been erased from his face and sometimes, especially when asked about solidarity, he outlines a smile of love and trust.
“We are all aware of the great health deficit, that Chile is a country very backward in health, unlike other more developed countries and we are all aware of that. So people have empathized, supported and contributed to the campaign,” he says.
Along with this mother, who left Ancud on April 28, her husband and father of Tomás, Alex Ross, a friend Álvaro Neira and Marco Reyes, president of the Duchenne Families corporation in Chile, who has two teenage children with the same disease and who proposed the Ross Gómez family to the odyssey.
“I am the logistical support for Camila and Marco who have been walking from Chiloé. I assist them on the way, usually with a change of clothes, food, food, I manage the lodging,” explains Alex.
“(Camila) Walk through Tomás, because we are against time, but he also does it so that no mom has to do it,” he says.
Camila’s third objective is to be able to speak in person with the President of the Republic, Gabriel Boric, to urge him to promote a bill to Congress that allows improving the coverage of rare diseases in the country, and medical assistance in rural areas, abandoned by the state in a country where the privatization of health care prevails.
Neira joined the walk because he was moved by Tomás’ suffering but also because he is worried that “in Chile we do not have the means, a clinic where we can have these medicines, that we have to go to this.”
Tomás was diagnosed in March 2023 with Duchenne’s syndrome, the most common but also most severe form of this type of muscular dystrophy that is triggered by a defective gene that affects dystrophin, a protein that helps keep the body’s cells intact.
It causes problems when walking and running, fatigue, learning difficulties and heart and respiratory deficiencies, and those who suffer from it usually have a life expectancy of between 20 or 30 years in difficult conditions.
With more than 700 kilometers of love in her terrified legs, this mother hopes to arrive in the Chilean capital at the end of this month of May from Chiloe, where there is a movement so that the spending on a bridge that they believe is unnecessary, is dedicated to the construction of a perentory hospital
International
Archbishop Wenski criticizes Trump’s deportation policies, calls for stronger push for reform
The Archbishop of Miami, Thomas Wenski, has called for increased pressure on the U.S. Congress to advance comprehensive immigration reform and criticized President Donald Trump’s mass deportation policies, arguing that they “do nothing to help.”
“We need to apply more pressure on Congress so lawmakers can make the necessary changes. It is also important for the Administration to listen to our voice. We do not want to be anyone’s enemy—we are Americans,” Wenski said in an interview with EFE.
The religious leader, who heads one of the dioceses with the largest Latino and Haitian populations in the United States, issued a call to defend the rights of migrants. He also emphasized that the U.S. Conference of Catholic Bishops (USCCB) has maintained a strong and public stance in favor of migrants for decades.
International
Trump relaunches diplomatic push to finalize U.S.-Backed peace plan for Ukraine War
U.S. President Donald Trump announced on Tuesday that his diplomatic team will resume meetings with delegations from Russia and Ukraine in an effort to pressure both sides to accept the peace plan proposed by Washington to end the war in Ukraine.
As part of this new round of talks, U.S. Special Envoy Steve Witkoff will travel to Moscow to meet with Russian President Vladimir Putin. Meanwhile, Army Secretary Dan Driscoll will hold discussions with Ukrainian representatives to narrow differences on the remaining points of the agreement.
Trump also confirmed his intention to meet personally with Ukrainian President Volodymyr Zelensky and with Putin, though he emphasized that such meetings will only take place “when the agreement is fully finalized or in its final stage.”
The president claimed that his administration has made “tremendous progress” toward resolving the conflict and reiterated that the war “never would have started” if he had been in the White House at the onset of the crisis.
The U.S.-backed peace plan consists of 28 points and has been revised following feedback from both sides. According to Trump, only “a few points of disagreement” remain under active discussion.
One of the most controversial aspects of the proposal is the suggestion that Ukraine cede parts of the Donbas region to Russia and limit the size of its armed forces. Kyiv is working closely with Washington to soften these clauses in search of an arrangement that does not compromise its sovereignty or security.
With this diplomatic push, Trump aims to solidify his role as the main mediator in the conflict and steer the war toward a political resolution after years of devastation, humanitarian crisis, and rising global geopolitical tensions.
International
Man pleads not guilty in Liverpool parade incident that injured more than 130
Paul Doyle, who has been held in provisional detention since the incident, is accused of intentionally injuring 12 people, attempting to injure another 17, and committing acts of violence and dangerous driving.
According to prosecutors, eight of the victims were minors at the time, including a six-month-old baby.
Wearing a black suit, the 54-year-old defendant broke into tears as the jury entered Liverpool Crown Court, in northwest England. Doyle, a father of three and former member of the Royal Navy, had pleaded not guilty in September to the 31 charges against him.
On Tuesday, he reaffirmed his not-guilty plea when asked to respond again to four of the charges, which had been slightly amended. The jury was sworn in the same day, and the trial—expected to last three to four weeks—will begin on Wednesday.
The incident occurred on May 26, when thousands of Liverpool FC supporters were gathered for a parade celebrating the club’s Premier League victory. According to the investigation, Doyle’s car entered a street that had just been reopened to allow an ambulance through.
His vehicle was then surrounded by a crowd of Liverpool supporters, some of whom acted aggressively. Doyle first reversed, then accelerated forward, swerving and striking people on both sides of the street. According to an initial report from Merseyside Police, 134 people were injured.
Firefighters reported that one man was thrown onto the hood of the vehicle and four people, including a child, were trapped underneath the car.
Doyle was arrested at the scene. Police quickly ruled out any terrorist motive, stating instead that it was an isolated incident.
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