International
Chilean mother travels 1,300 kilometers on foot to try to save her son with dystrophy
In the city of Ancud, one of the most important of the Chiloe archipelago, in the south of Chile, there is no hospital, so if one of its about 165,000 inhabitants gets sick, he must take the ferry and travel about 50 kilometers to reach the neighboring city of Puerto Montt, the nearest place.
Camila Gómez, a young mother, decided to take a trip but this time to walk to the Palacio de la Moneda, in Santiago de Chile, more than 1,300 kilometers from her home, to raise funds and make visible the drama of her son Tomás, who suffers from Duchenne muscular dystrophy, one of the so-called “rare diseases”, which almost no one worries and no one finances.
Its main objective is to help collect the nearly four million dollars that costs a vital treatment that does not exist in Chile – it must be imported from the United States – and that would help stop the progression of the child’s ailment, barely five years old.
“Tomás has Duchenne muscular dystrophy in a neuromuscular degenerative disease that gradually weakens the muscles, the respiratory system and the heart, which leads to premature death,” he explains in one of the highs of his journey.
“In Chile there is no type of treatment for this disease, but in the United States there are several treatment options, there are three and here they told me that it was not possible to cover a medicine that is abroad. And it motivated me to do this walk, this physical effort,” he adds.
Gómez regrets that no one, neither the precarious public service nor the greedy private insurance, has offered him an exit in the country, although his son “does have options abroad.
“That’s why we decided to walk, to make the disease visible and take it very particularly to collect the 3.9 million dollars that the drug that is administered for the only time in a lifetime costs. So far (its administration) is approved until the age of four and five. Tomás is five and a half years old. So we are against time,” she urges in anguish.
Even so, hope has not been erased from his face and sometimes, especially when asked about solidarity, he outlines a smile of love and trust.
“We are all aware of the great health deficit, that Chile is a country very backward in health, unlike other more developed countries and we are all aware of that. So people have empathized, supported and contributed to the campaign,” he says.
Along with this mother, who left Ancud on April 28, her husband and father of Tomás, Alex Ross, a friend Álvaro Neira and Marco Reyes, president of the Duchenne Families corporation in Chile, who has two teenage children with the same disease and who proposed the Ross Gómez family to the odyssey.
“I am the logistical support for Camila and Marco who have been walking from Chiloé. I assist them on the way, usually with a change of clothes, food, food, I manage the lodging,” explains Alex.
“(Camila) Walk through Tomás, because we are against time, but he also does it so that no mom has to do it,” he says.
Camila’s third objective is to be able to speak in person with the President of the Republic, Gabriel Boric, to urge him to promote a bill to Congress that allows improving the coverage of rare diseases in the country, and medical assistance in rural areas, abandoned by the state in a country where the privatization of health care prevails.
Neira joined the walk because he was moved by Tomás’ suffering but also because he is worried that “in Chile we do not have the means, a clinic where we can have these medicines, that we have to go to this.”
Tomás was diagnosed in March 2023 with Duchenne’s syndrome, the most common but also most severe form of this type of muscular dystrophy that is triggered by a defective gene that affects dystrophin, a protein that helps keep the body’s cells intact.
It causes problems when walking and running, fatigue, learning difficulties and heart and respiratory deficiencies, and those who suffer from it usually have a life expectancy of between 20 or 30 years in difficult conditions.
With more than 700 kilometers of love in her terrified legs, this mother hopes to arrive in the Chilean capital at the end of this month of May from Chiloe, where there is a movement so that the spending on a bridge that they believe is unnecessary, is dedicated to the construction of a perentory hospital
International
Authorities Say Teotihuacán Gunman Was Obsessed With Mass Shootings and Extremist Symbolism
Julio César Jasso Ramírez, identified by authorities as the gunman behind the armed attack at the archaeological site of Teotihuacán, had allegedly spent years building a personal narrative shaped by an obsession with historical mass shootings, extremist symbolism, and an increasing detachment from reality.
According to preliminary findings from the Fiscalía General de Justicia del Estado de México, the 27-year-old suspect, originally from the southern Mexican state of Oaxaca, acted alone and appeared to have carefully planned the attack.
Investigators also pointed to signs of a severe psychological or psychiatric disorder. One official involved in the case stated that the suspect seemed to live in “his own reality,” disconnected from the world around him.
“I would not speak of a motive; I would speak of psychopathy, a condition, an illness,” the official said while discussing the ongoing investigation.
Authorities reported that Jasso Ramírez was allegedly fixated on mass violence incidents that occurred outside Mexico, particularly in the United States.
Among the items found in his possession were writings, images, and materials reportedly linked to the Columbine High School massacre, the school shooting that took place on April 20, 1999.
The investigation remains ongoing as authorities continue analyzing evidence connected to the suspect’s background and mental state.
International
Iran refuses to reopen strait of Hormuz amid ongoing U.S. Naval blockade
Iran reaffirmed on Wednesday that it will not reopen the Strait of Hormuz while the United States maintains its naval blockade against Iranian ports and vessels, amid rising geopolitical tensions in the region.
Iranian Parliament Speaker Mohamad Baqer Qalibaf warned that reopening the crucial maritime route depends on Washington honoring the ceasefire agreement. According to Qalibaf, Iran considers the deal to be violated due to ongoing U.S. actions.
The Iranian official accused the United States of carrying out a “naval blockade and the hijacking of the global economy,” while also pointing to Israeli military operations in Lebanon as part of the broader conflict affecting the region.
Qalibaf stated that military and economic pressure would not force Iran to change its position. “The United States and Israel failed to achieve their goals through military aggression, and they will not succeed through intimidation. The only path forward is to recognize the rights of the Iranian nation,” he said.
His remarks come amid stalled negotiations between Iran and the United States following direct talks held on April 11 and 12 in Islamabad.
The discussions, led by U.S. Vice President JD Vance and Iranian representatives, have shown little progress in recent days, increasing uncertainty over whether dialogue between the two sides will resume.
U.S. President Donald Trump recently announced an extension of the ceasefire but decided to keep the naval blockade in place, a move Tehran considers incompatible with ongoing negotiations.
Meanwhile, Iran’s Islamic Revolutionary Guard Corps intensified operations in the area by seizing two vessels in the Strait of Hormuz, accusing them of operating without the required permits and escorting them into Iranian territory.
The Strait of Hormuz remains one of the world’s most critical oil trade routes, and any prolonged disruption could have significant consequences for global energy markets.
International
Maradona’s daughter accuses medical team of “horrible manipulation” in court
One of the daughters of Diego Maradona testified in court this Tuesday, breaking down in tears as she denounced what she described as “absolute and horrible manipulation” by her father’s medical team, during an emotional hearing in Argentina.
Gianinna Maradona stated that she and her siblings agreed to home hospitalization after doctors presented it as the best option following the neurosurgery Maradona underwent on November 3, 2020.
The football icon died on November 25 of that year, and the ongoing trial seeks to determine whether the conditions of his home care were appropriate.
According to Gianinna, what the family found at the residence where Maradona was recovering did not match what had been promised. She testified that there was no adequate medical equipment, constant monitoring, or even an ambulance available, despite assurances of continuous care.
“The manipulation was absolute and horrible,” she said during the hearing in San Isidro, near Buenos Aires.
She accused members of the medical team, including neurosurgeon Leopoldo Luque, psychiatrist Agustina Cosachov, and psychologist Carlos Díaz, of misleading the family.
“I trusted these people, and all they did was manipulate us and leave my son without a grandfather,” she added.
Later in her testimony, recalling that six years have passed since her father’s death, she became emotional and said she struggled deeply with grief in the aftermath.
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