International
Chilean mother travels 1,300 kilometers on foot to try to save her son with dystrophy
In the city of Ancud, one of the most important of the Chiloe archipelago, in the south of Chile, there is no hospital, so if one of its about 165,000 inhabitants gets sick, he must take the ferry and travel about 50 kilometers to reach the neighboring city of Puerto Montt, the nearest place.
Camila Gómez, a young mother, decided to take a trip but this time to walk to the Palacio de la Moneda, in Santiago de Chile, more than 1,300 kilometers from her home, to raise funds and make visible the drama of her son Tomás, who suffers from Duchenne muscular dystrophy, one of the so-called “rare diseases”, which almost no one worries and no one finances.
Its main objective is to help collect the nearly four million dollars that costs a vital treatment that does not exist in Chile – it must be imported from the United States – and that would help stop the progression of the child’s ailment, barely five years old.
“Tomás has Duchenne muscular dystrophy in a neuromuscular degenerative disease that gradually weakens the muscles, the respiratory system and the heart, which leads to premature death,” he explains in one of the highs of his journey.
“In Chile there is no type of treatment for this disease, but in the United States there are several treatment options, there are three and here they told me that it was not possible to cover a medicine that is abroad. And it motivated me to do this walk, this physical effort,” he adds.
Gómez regrets that no one, neither the precarious public service nor the greedy private insurance, has offered him an exit in the country, although his son “does have options abroad.
“That’s why we decided to walk, to make the disease visible and take it very particularly to collect the 3.9 million dollars that the drug that is administered for the only time in a lifetime costs. So far (its administration) is approved until the age of four and five. Tomás is five and a half years old. So we are against time,” she urges in anguish.
Even so, hope has not been erased from his face and sometimes, especially when asked about solidarity, he outlines a smile of love and trust.
“We are all aware of the great health deficit, that Chile is a country very backward in health, unlike other more developed countries and we are all aware of that. So people have empathized, supported and contributed to the campaign,” he says.
Along with this mother, who left Ancud on April 28, her husband and father of Tomás, Alex Ross, a friend Álvaro Neira and Marco Reyes, president of the Duchenne Families corporation in Chile, who has two teenage children with the same disease and who proposed the Ross Gómez family to the odyssey.
“I am the logistical support for Camila and Marco who have been walking from Chiloé. I assist them on the way, usually with a change of clothes, food, food, I manage the lodging,” explains Alex.
“(Camila) Walk through Tomás, because we are against time, but he also does it so that no mom has to do it,” he says.
Camila’s third objective is to be able to speak in person with the President of the Republic, Gabriel Boric, to urge him to promote a bill to Congress that allows improving the coverage of rare diseases in the country, and medical assistance in rural areas, abandoned by the state in a country where the privatization of health care prevails.
Neira joined the walk because he was moved by Tomás’ suffering but also because he is worried that “in Chile we do not have the means, a clinic where we can have these medicines, that we have to go to this.”
Tomás was diagnosed in March 2023 with Duchenne’s syndrome, the most common but also most severe form of this type of muscular dystrophy that is triggered by a defective gene that affects dystrophin, a protein that helps keep the body’s cells intact.
It causes problems when walking and running, fatigue, learning difficulties and heart and respiratory deficiencies, and those who suffer from it usually have a life expectancy of between 20 or 30 years in difficult conditions.
With more than 700 kilometers of love in her terrified legs, this mother hopes to arrive in the Chilean capital at the end of this month of May from Chiloe, where there is a movement so that the spending on a bridge that they believe is unnecessary, is dedicated to the construction of a perentory hospital
International
Senate Bipartisan Vote Moves Measure to Block Further U.S. Military Action in Venezuela
The U.S. Senate took a significant step on Thursday toward limiting President Donald Trump’s military authority in Venezuela, advancing a bipartisan war powers resolution that would block further military actions without explicit congressional approval, lawmakers said.
In a 52-47 procedural vote, the measure moved forward after five Republican senators joined all Democrats in supporting the effort. The resolution aims to require presidential authorization from Congress before the United States can engage in any new hostilities against Venezuela, a rare rebuke of Trump from both sides of the aisle following the controversial military operation that resulted in the capture of Venezuelan leader Nicolás Maduro.
If ultimately passed, the legislation would obligate the administration to withdraw U.S. forces from any imminent hostilities in or against Venezuela unless Congress explicitly authorizes such actions. However, the measure’s future remains uncertain as it heads next to the House of Representatives, where a Republican majority is less likely to approve it, and any final version would likely face a presidential veto. Overriding a veto would require a two-thirds majority in both chambers, a high threshold in the current political landscape.
President Trump has sharply criticized Republican senators who broke ranks to support the resolution, saying they should not be re-elected and arguing that the measure undermines his authority to act in national defense. Nevertheless, the vote signals growing bipartisan concern in Congress about unchecked executive military action in the absence of legislative authorization.
International
Petro and Trump Agree on Joint Action Against ELN Guerrillas After Tense Diplomacy
Colombian President Gustavo Petro and his U.S. counterpart Donald Trump agreed on “joint actions” to combat the National Liberation Army (ELN) guerrilla group operating along the Colombia–Venezuela border, Colombia’s Interior Minister Armando Benedetti said on Thursday.
The announcement came after a period of heightened diplomatic tension triggered by recent U.S. airstrikes in Venezuela, the capture of Venezuelan President Nicolás Maduro, and threats of possible U.S. military action in Colombia. The phone call Wednesday evening was the first direct conversation between Petro and Trump since both leaders took office, and it helped ease the strained relationship.
During the call, both presidents committed to carry out joint efforts against the ELN, a guerrilla group that has repeatedly attacked Colombian security forces and is accused of kidnapping soldiers. In December, the ELN declared a “armed strike,” confining civilians in areas under its control in response to perceived threats of U.S. intervention.
According to Benedetti, Petro welcomed Trump’s invitation to meet in Washington and asked for U.S. support to “strike hard” against ELN positions along the porous border with Venezuela, where guerrillas often flee after clashes with Colombian forces.
The border region is a longstanding flashpoint, where armed groups, drug traffickers and illegal mining networks compete for control. Previous attempts by Petro’s government to negotiate peace with the ELN have stalled after a major offensive in Catatumbo that left hundreds dead and displaced thousands.
International
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Brazilian President Luiz Inácio Lula da Silva vetoed on Thursday a bill that would have significantly reduced the prison sentence of his far-right predecessor, Jair Bolsonaro, who is currently serving time for attempting a coup d’état.
Despite the veto, the conservative-majority Congress retains the power to override the decision through a vote.
In September, following a landmark trial, Brazil’s Supreme Court sentenced Bolsonaro to 27 years in prison after finding him guilty of conspiring to remain in power in an “authoritarian” manner following his defeat to Lula in the 2022 presidential election.
The 70-year-old former president has been incarcerated in a Brasília prison since late November. Earlier this month, the Supreme Court rejected a request for house arrest on health grounds.
Under the current legal framework, Bolsonaro would be required to serve approximately eight years before becoming eligible for sentence leniency. However, a bill passed by Congress in December could have reduced that period to just over two years, prompting Lula’s veto.
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