International
Chilean mother travels 1,300 kilometers on foot to try to save her son with dystrophy
In the city of Ancud, one of the most important of the Chiloe archipelago, in the south of Chile, there is no hospital, so if one of its about 165,000 inhabitants gets sick, he must take the ferry and travel about 50 kilometers to reach the neighboring city of Puerto Montt, the nearest place.
Camila Gómez, a young mother, decided to take a trip but this time to walk to the Palacio de la Moneda, in Santiago de Chile, more than 1,300 kilometers from her home, to raise funds and make visible the drama of her son Tomás, who suffers from Duchenne muscular dystrophy, one of the so-called “rare diseases”, which almost no one worries and no one finances.
Its main objective is to help collect the nearly four million dollars that costs a vital treatment that does not exist in Chile – it must be imported from the United States – and that would help stop the progression of the child’s ailment, barely five years old.
“Tomás has Duchenne muscular dystrophy in a neuromuscular degenerative disease that gradually weakens the muscles, the respiratory system and the heart, which leads to premature death,” he explains in one of the highs of his journey.
“In Chile there is no type of treatment for this disease, but in the United States there are several treatment options, there are three and here they told me that it was not possible to cover a medicine that is abroad. And it motivated me to do this walk, this physical effort,” he adds.
Gómez regrets that no one, neither the precarious public service nor the greedy private insurance, has offered him an exit in the country, although his son “does have options abroad.
“That’s why we decided to walk, to make the disease visible and take it very particularly to collect the 3.9 million dollars that the drug that is administered for the only time in a lifetime costs. So far (its administration) is approved until the age of four and five. Tomás is five and a half years old. So we are against time,” she urges in anguish.
Even so, hope has not been erased from his face and sometimes, especially when asked about solidarity, he outlines a smile of love and trust.
“We are all aware of the great health deficit, that Chile is a country very backward in health, unlike other more developed countries and we are all aware of that. So people have empathized, supported and contributed to the campaign,” he says.
Along with this mother, who left Ancud on April 28, her husband and father of Tomás, Alex Ross, a friend Álvaro Neira and Marco Reyes, president of the Duchenne Families corporation in Chile, who has two teenage children with the same disease and who proposed the Ross Gómez family to the odyssey.
“I am the logistical support for Camila and Marco who have been walking from Chiloé. I assist them on the way, usually with a change of clothes, food, food, I manage the lodging,” explains Alex.
“(Camila) Walk through Tomás, because we are against time, but he also does it so that no mom has to do it,” he says.
Camila’s third objective is to be able to speak in person with the President of the Republic, Gabriel Boric, to urge him to promote a bill to Congress that allows improving the coverage of rare diseases in the country, and medical assistance in rural areas, abandoned by the state in a country where the privatization of health care prevails.
Neira joined the walk because he was moved by Tomás’ suffering but also because he is worried that “in Chile we do not have the means, a clinic where we can have these medicines, that we have to go to this.”
Tomás was diagnosed in March 2023 with Duchenne’s syndrome, the most common but also most severe form of this type of muscular dystrophy that is triggered by a defective gene that affects dystrophin, a protein that helps keep the body’s cells intact.
It causes problems when walking and running, fatigue, learning difficulties and heart and respiratory deficiencies, and those who suffer from it usually have a life expectancy of between 20 or 30 years in difficult conditions.
With more than 700 kilometers of love in her terrified legs, this mother hopes to arrive in the Chilean capital at the end of this month of May from Chiloe, where there is a movement so that the spending on a bridge that they believe is unnecessary, is dedicated to the construction of a perentory hospital
International
Chile enters runoff campaign with Kast leading and Jara seeking a last-minute comeback
Chile’s presidential runoff campaign for the December 14 election kicked off this Sunday, with far-right candidate José Antonio Kast entering the race as the clear favorite in the polls, while left-wing contender Jeannette Jara faces an uphill scenario, hoping for a comeback that some experts describe as “a miracle.”
The final polls released in Chile—published before the mandatory blackout on survey dissemination—give Kast, an ultraconservative former lawmaker running for president for the third time, a lead of between 12 and 16 points. His opponent, the communist former minister in Gabriel Boric’s current administration, is weighed down not only by the government’s low approval ratings but also by a fragmented electorate.
Although Jeannette Jara received the most votes in the first round with 26.9%, her lack of alliances beyond the left makes it difficult for her to expand her support. Kast, who secured 23.9%, has already brought key figures on board: ultralibertarian Johannes Kaiser (13.9%) and traditional right-wing leader Evelyn Matthei (12.4%), both now backing his candidacy.
Analysts note that although Kast’s support base consolidates more than 50% of the electorate, it does not guarantee an automatic transfer of votes. Populist economist Franco Parisi, who placed third with 19.7%, emerges as the major wildcard. His party, the People’s Party (PDG), is set to decide this Sunday through an internal consultation whether to endorse one of the two finalists.
International
Trump says asylum decision freeze will remain in place “for a long time”
U.S. President Donald Trump warned on Sunday that the suspension of decisions on asylum applications—implemented as part of his order to “halt” immigration from third-world countries following Wednesday’s shooting in Washington—will remain in effect “for a long time.”
The president declined to specify how long the freeze, imposed last Friday by the U.S. Citizenship and Immigration Services (USCIS), would last. The suspension affects individuals waiting for an asylum ruling from that agency, though it does not apply to cases handled by U.S. immigration courts.
The delay is part of a series of measures enacted by the Trump Administration after a shooting on Wednesday in which an Afghan national allegedly opened fire on the National Guard in Washington, D.C., killing one officer and leaving another in critical condition.
Trump has ordered a permanent halt to immigration from 19 countries classified as “third-world.” He also indicated on Sunday that “possibly” more nations could be added to the list.
“These are countries with high crime rates. They are countries that do not function well… that are not known for success, and frankly, we don’t need people from those places coming into our country and telling us what to do,” Trump said, adding: “We don’t want those people.”
USCIS had already announced on Thursday a “rigorous review” of green cards held by migrants from 19 “countries of concern,” including Afghanistan, Cuba, Venezuela, and Haiti.
International
Sri Lanka and Indonesia deploy military as deadly asian floods kill over 1,000
Sri Lanka and Indonesia deployed military personnel on Monday to assist victims of the devastating floods that have killed more than a thousand people across Asia in recent days.
A series of weather events last week triggered prolonged torrential rains across Sri Lanka, parts of Indonesia’s Sumatra island, southern Thailand, and northern Malaysia. Indonesian President Prabowo Subianto said Monday in North Sumatra that “the priority now is to deliver the necessary aid as quickly as possible.”
“There are several isolated villages that, with God’s help, we will be able to reach,” he added. Subianto also stated that the government had deployed helicopters and aircraft to support relief operations.
Floods and landslides have claimed 502 lives in Indonesia, with a similar number still missing.
This marks the highest death toll from a natural disaster in Indonesia since 2018, when an earthquake and subsequent tsunami killed more than 2,000 people.
The government has sent three military ships carrying aid and two hospital vessels to the hardest-hit regions, where many roads remain impassable.
In the village of Sungai Nyalo, located about 100 kilometers from Padang, the capital of West Sumatra, floodwaters had receded by Sunday, leaving homes, vehicles, and crops coated in thick mud.
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