International
Chilean mother travels 1,300 kilometers on foot to try to save her son with dystrophy
In the city of Ancud, one of the most important of the Chiloe archipelago, in the south of Chile, there is no hospital, so if one of its about 165,000 inhabitants gets sick, he must take the ferry and travel about 50 kilometers to reach the neighboring city of Puerto Montt, the nearest place.
Camila Gómez, a young mother, decided to take a trip but this time to walk to the Palacio de la Moneda, in Santiago de Chile, more than 1,300 kilometers from her home, to raise funds and make visible the drama of her son Tomás, who suffers from Duchenne muscular dystrophy, one of the so-called “rare diseases”, which almost no one worries and no one finances.
Its main objective is to help collect the nearly four million dollars that costs a vital treatment that does not exist in Chile – it must be imported from the United States – and that would help stop the progression of the child’s ailment, barely five years old.
“Tomás has Duchenne muscular dystrophy in a neuromuscular degenerative disease that gradually weakens the muscles, the respiratory system and the heart, which leads to premature death,” he explains in one of the highs of his journey.
“In Chile there is no type of treatment for this disease, but in the United States there are several treatment options, there are three and here they told me that it was not possible to cover a medicine that is abroad. And it motivated me to do this walk, this physical effort,” he adds.
Gómez regrets that no one, neither the precarious public service nor the greedy private insurance, has offered him an exit in the country, although his son “does have options abroad.
“That’s why we decided to walk, to make the disease visible and take it very particularly to collect the 3.9 million dollars that the drug that is administered for the only time in a lifetime costs. So far (its administration) is approved until the age of four and five. Tomás is five and a half years old. So we are against time,” she urges in anguish.
Even so, hope has not been erased from his face and sometimes, especially when asked about solidarity, he outlines a smile of love and trust.
“We are all aware of the great health deficit, that Chile is a country very backward in health, unlike other more developed countries and we are all aware of that. So people have empathized, supported and contributed to the campaign,” he says.
Along with this mother, who left Ancud on April 28, her husband and father of Tomás, Alex Ross, a friend Álvaro Neira and Marco Reyes, president of the Duchenne Families corporation in Chile, who has two teenage children with the same disease and who proposed the Ross Gómez family to the odyssey.
“I am the logistical support for Camila and Marco who have been walking from Chiloé. I assist them on the way, usually with a change of clothes, food, food, I manage the lodging,” explains Alex.
“(Camila) Walk through Tomás, because we are against time, but he also does it so that no mom has to do it,” he says.
Camila’s third objective is to be able to speak in person with the President of the Republic, Gabriel Boric, to urge him to promote a bill to Congress that allows improving the coverage of rare diseases in the country, and medical assistance in rural areas, abandoned by the state in a country where the privatization of health care prevails.
Neira joined the walk because he was moved by Tomás’ suffering but also because he is worried that “in Chile we do not have the means, a clinic where we can have these medicines, that we have to go to this.”
Tomás was diagnosed in March 2023 with Duchenne’s syndrome, the most common but also most severe form of this type of muscular dystrophy that is triggered by a defective gene that affects dystrophin, a protein that helps keep the body’s cells intact.
It causes problems when walking and running, fatigue, learning difficulties and heart and respiratory deficiencies, and those who suffer from it usually have a life expectancy of between 20 or 30 years in difficult conditions.
With more than 700 kilometers of love in her terrified legs, this mother hopes to arrive in the Chilean capital at the end of this month of May from Chiloe, where there is a movement so that the spending on a bridge that they believe is unnecessary, is dedicated to the construction of a perentory hospital
International
Trump says GOP ‘learned a lot’ after democratic election wins
U.S. President Donald Trump said that he and the Republican Party “learned a lot” from the Democratic victories in Tuesday’s state and local elections. He also compared Democrats to “kamikaze pilots” over the ongoing budget standoff.
Speaking at an event with Republican senators on Wednesday, Trump described the results as an unexpected setback.
“These were very Democratic areas, but I don’t think it was good for Republicans. In fact, I don’t think it was good for anyone. But we had an interesting night and we learned a lot,” he said during remarks broadcast by the White House.
Trump agreed with pollsters that two key factors led to Republican losses in New York’s mayoral race and the gubernatorial contests in New Jersey and Virginia.
International
Bolivia’s Jeanine Áñez freed after Supreme Court annuls her conviction
Former Bolivian interim president Jeanine Áñez was released from a women’s prison in La Paz on Thursday, where she had spent more than four and a half years for an alleged coup, after her conviction was annulled, AFP journalists confirmed.
Dozens of supporters and family members gathered outside the facility to celebrate her release. Áñez left the prison waving a Bolivian flag around 15:00 GMT.
“It is comforting to see that justice will once again prevail in Bolivia. She was the only woman who took on the role with bravery and courage,” said Lizeth Maure, a 46-year-old nurse who had come to show her support.
Áñez, a 58-year-old lawyer and conservative politician, governed Bolivia for nearly a year until November 2020, when she handed power to leftist leader Luis Arce.
She was arrested in 2021 and sentenced the following year to 10 years in prison for “resolutions contrary to the Constitution,” accused of illegally assuming the presidency after Evo Morales resigned in 2019 amid social unrest.
Her sentence was overturned on Wednesday by the Supreme Court of Justice, Bolivia’s highest judicial authority.
The court ruled that Áñez should have been subjected to a “trial of responsibilities” before Congress— a constitutional process reserved for sitting presidents, vice presidents, ministers, and top judges — rather than prosecuted in an ordinary criminal court.
As she was welcomed by relatives and supporters upon release, Áñez declared:
“I feel the satisfaction of having fulfilled my duty to my country, of never having bowed down. And I will never regret having served Bolivia when it needed me.”
International
Peru declares Mexico’s president Persona Non Grata over political asylum dispute
Peru’s Congress declared Mexican President Claudia Sheinbaum persona non grata on Thursday, accusing her of “unacceptable interference in internal affairs” after granting political asylum to former Peruvian Prime Minister Betssy Chávez.
The motion, introduced by right-wing parties, passed with 63 votes in favor, 33 against, and two abstentions. Lawmakers argue that Sheinbaum has maintained a hostile stance toward Peru since taking office.
Peru severed diplomatic relations with Mexico on Monday following the asylum decision. Chávez, who is facing charges for her alleged involvement in former President Pedro Castillo’s failed coup attempt in December 2022, remains under protection at the Mexican embassy residence in Lima.
Following the diplomatic break, interim President José Jerí said on X that Mexico’s chargé d’affaires in Peru, Karla Ornela, has been notified by the foreign ministry that she must leave the country within a strict deadline.
The Mexican government condemned Lima’s decision as “excessive and disproportionate,” asserting that offering asylum to Chávez is a legitimate act grounded in international law and does not constitute interference in Peru’s domestic matters.
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