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Chilean mother travels 1,300 kilometers on foot to try to save her son with dystrophy

In the city of Ancud, one of the most important of the Chiloe archipelago, in the south of Chile, there is no hospital, so if one of its about 165,000 inhabitants gets sick, he must take the ferry and travel about 50 kilometers to reach the neighboring city of Puerto Montt, the nearest place.

Camila Gómez, a young mother, decided to take a trip but this time to walk to the Palacio de la Moneda, in Santiago de Chile, more than 1,300 kilometers from her home, to raise funds and make visible the drama of her son Tomás, who suffers from Duchenne muscular dystrophy, one of the so-called “rare diseases”, which almost no one worries and no one finances.

Its main objective is to help collect the nearly four million dollars that costs a vital treatment that does not exist in Chile – it must be imported from the United States – and that would help stop the progression of the child’s ailment, barely five years old.

“Tomás has Duchenne muscular dystrophy in a neuromuscular degenerative disease that gradually weakens the muscles, the respiratory system and the heart, which leads to premature death,” he explains in one of the highs of his journey.

“In Chile there is no type of treatment for this disease, but in the United States there are several treatment options, there are three and here they told me that it was not possible to cover a medicine that is abroad. And it motivated me to do this walk, this physical effort,” he adds.

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Gómez regrets that no one, neither the precarious public service nor the greedy private insurance, has offered him an exit in the country, although his son “does have options abroad.

“That’s why we decided to walk, to make the disease visible and take it very particularly to collect the 3.9 million dollars that the drug that is administered for the only time in a lifetime costs. So far (its administration) is approved until the age of four and five. Tomás is five and a half years old. So we are against time,” she urges in anguish.

Even so, hope has not been erased from his face and sometimes, especially when asked about solidarity, he outlines a smile of love and trust.

“We are all aware of the great health deficit, that Chile is a country very backward in health, unlike other more developed countries and we are all aware of that. So people have empathized, supported and contributed to the campaign,” he says.

Along with this mother, who left Ancud on April 28, her husband and father of Tomás, Alex Ross, a friend Álvaro Neira and Marco Reyes, president of the Duchenne Families corporation in Chile, who has two teenage children with the same disease and who proposed the Ross Gómez family to the odyssey.

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“I am the logistical support for Camila and Marco who have been walking from Chiloé. I assist them on the way, usually with a change of clothes, food, food, I manage the lodging,” explains Alex.

“(Camila) Walk through Tomás, because we are against time, but he also does it so that no mom has to do it,” he says.

Camila’s third objective is to be able to speak in person with the President of the Republic, Gabriel Boric, to urge him to promote a bill to Congress that allows improving the coverage of rare diseases in the country, and medical assistance in rural areas, abandoned by the state in a country where the privatization of health care prevails.

Neira joined the walk because he was moved by Tomás’ suffering but also because he is worried that “in Chile we do not have the means, a clinic where we can have these medicines, that we have to go to this.”

Tomás was diagnosed in March 2023 with Duchenne’s syndrome, the most common but also most severe form of this type of muscular dystrophy that is triggered by a defective gene that affects dystrophin, a protein that helps keep the body’s cells intact.

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It causes problems when walking and running, fatigue, learning difficulties and heart and respiratory deficiencies, and those who suffer from it usually have a life expectancy of between 20 or 30 years in difficult conditions.

With more than 700 kilometers of love in her terrified legs, this mother hopes to arrive in the Chilean capital at the end of this month of May from Chiloe, where there is a movement so that the spending on a bridge that they believe is unnecessary, is dedicated to the construction of a perentory hospital

International

Rubio rules out 2028 presidential bid if Vance runs

U.S. Secretary of State Marco Rubio said he would not seek the presidency in 2028 if current Vice President JD Vancedecides to run as the Republican nominee to succeed President Donald Trump.

“If JD Vance runs for president, he will be our candidate, and I will be one of the first people to support him,” Rubio said in an interview with Vanity Fair, in which he appeared alongside other senior members of the presidential cabinet.

Rubio, 54, and Vance, 41, are widely viewed as two of the leading Republican figures who could headline the party’s ticket in the 2028 election. Under the U.S. Constitution, Trump is barred from seeking another term after completing two presidential mandates.

In a lighthearted moment during the interview, Vance jokingly offered photographers $1,000 if they managed to make him look better than Rubio in the photos. Both leaders have received public backing from Trump, who last October floated the idea of a joint ticket featuring Rubio and Vance, without clarifying who would lead it.

“I think that if they ever teamed up, they would be unstoppable. I don’t think anyone would run against us,” Trump said at the time.

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White House Chief of Staff Susie Wiles, who also took part in the interview, confirmed that Trump does not intend to violate the 22nd Amendment, which prohibits a third presidential term, though she acknowledged that the president is “having fun” with speculation about a possible return to office.

Rubio, the son of Cuban immigrants, served as a Republican senator from 2010 to 2025. He sought the party’s presidential nomination in 2016 but was defeated by Trump after a bruising primary contest. His name was floated as a potential vice presidential pick in 2024, but Vance ultimately secured the spot. After taking office, Trump appointed Rubio as secretary of state, making him the first Latino to hold the position.

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International

Authorities search for armed and dangerous suspect in fatal Brown University attack

According to the statement, investigators are “seeking the public’s help to identify and speak with an individual” who was seen “near” the suspect at the time of the attack.

The Providence Police Department in Rhode Island released three photos of the person of interest, whose face has been blurred. In the images, the individual is wearing navy blue clothing, what appears to be a green hood, and carrying a light-colored backpack.

Earlier, authorities had released several photos and videos of a suspect described as “approximately 5 feet 8 inches tall, with a stocky build,” dressed in dark clothing, with their face covered by a surgical mask and wearing a beanie. The suspect’s identity remains unknown.

Authorities are offering a $50,000 reward for any information leading to the identification, arrest, and conviction of the person responsible for the killings, who is considered armed and dangerous.

The gunman opened fire on Saturday at Brown University’s engineering and physics building, where exams were being held, killing students Ella Cook and Mukhammad Aziz Umurzokov. The names of the nine people injured have not been released.

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Police investigate deaths of Rob Reiner and wife as apparent homicide

The Los Angeles Police Department (LAPD) is investigating the deaths of Hollywood actor and filmmaker Rob Reinerand his wife as an “apparent homicide,” amid a wave of tributes to the director of classics such as When Harry Met Sally.

According to U.S. media reports on Sunday, Rob Reiner and Michele Singer Reiner were found dead at their Los Angeles mansion with what appeared to be stab wounds.

Several political figures shared messages of condolence following the reported deaths of the director of A Few Good Menand his wife.

While the LAPD did not officially confirm the identities of the victims, it stated that homicide detectives were dispatched to the Reiner residence.

“At this time, no additional details are available and the investigation into an apparent homicide is ongoing,” the Los Angeles Police Department said in a statement posted on social media.

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LAPD Deputy Chief Alan Hamilton told reporters that no arrests have been made and that no individuals are currently being questioned as suspects.

“I’m not going to confirm whether anyone is being questioned at this moment or not. We are going to try to speak with as many family members as we can,” Hamilton said.

CNN reported that a family spokesperson confirmed the deaths of Reiner and his wife.

California Governor Gavin Newsom, former U.S. President Barack Obama, and former Vice President Kamala Harrisissued statements expressing their condolences.

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