International
Chilean mother travels 1,300 kilometers on foot to try to save her son with dystrophy
In the city of Ancud, one of the most important of the Chiloe archipelago, in the south of Chile, there is no hospital, so if one of its about 165,000 inhabitants gets sick, he must take the ferry and travel about 50 kilometers to reach the neighboring city of Puerto Montt, the nearest place.
Camila Gómez, a young mother, decided to take a trip but this time to walk to the Palacio de la Moneda, in Santiago de Chile, more than 1,300 kilometers from her home, to raise funds and make visible the drama of her son Tomás, who suffers from Duchenne muscular dystrophy, one of the so-called “rare diseases”, which almost no one worries and no one finances.
Its main objective is to help collect the nearly four million dollars that costs a vital treatment that does not exist in Chile – it must be imported from the United States – and that would help stop the progression of the child’s ailment, barely five years old.
“Tomás has Duchenne muscular dystrophy in a neuromuscular degenerative disease that gradually weakens the muscles, the respiratory system and the heart, which leads to premature death,” he explains in one of the highs of his journey.
“In Chile there is no type of treatment for this disease, but in the United States there are several treatment options, there are three and here they told me that it was not possible to cover a medicine that is abroad. And it motivated me to do this walk, this physical effort,” he adds.
Gómez regrets that no one, neither the precarious public service nor the greedy private insurance, has offered him an exit in the country, although his son “does have options abroad.
“That’s why we decided to walk, to make the disease visible and take it very particularly to collect the 3.9 million dollars that the drug that is administered for the only time in a lifetime costs. So far (its administration) is approved until the age of four and five. Tomás is five and a half years old. So we are against time,” she urges in anguish.
Even so, hope has not been erased from his face and sometimes, especially when asked about solidarity, he outlines a smile of love and trust.
“We are all aware of the great health deficit, that Chile is a country very backward in health, unlike other more developed countries and we are all aware of that. So people have empathized, supported and contributed to the campaign,” he says.
Along with this mother, who left Ancud on April 28, her husband and father of Tomás, Alex Ross, a friend Álvaro Neira and Marco Reyes, president of the Duchenne Families corporation in Chile, who has two teenage children with the same disease and who proposed the Ross Gómez family to the odyssey.
“I am the logistical support for Camila and Marco who have been walking from Chiloé. I assist them on the way, usually with a change of clothes, food, food, I manage the lodging,” explains Alex.
“(Camila) Walk through Tomás, because we are against time, but he also does it so that no mom has to do it,” he says.
Camila’s third objective is to be able to speak in person with the President of the Republic, Gabriel Boric, to urge him to promote a bill to Congress that allows improving the coverage of rare diseases in the country, and medical assistance in rural areas, abandoned by the state in a country where the privatization of health care prevails.
Neira joined the walk because he was moved by Tomás’ suffering but also because he is worried that “in Chile we do not have the means, a clinic where we can have these medicines, that we have to go to this.”
Tomás was diagnosed in March 2023 with Duchenne’s syndrome, the most common but also most severe form of this type of muscular dystrophy that is triggered by a defective gene that affects dystrophin, a protein that helps keep the body’s cells intact.
It causes problems when walking and running, fatigue, learning difficulties and heart and respiratory deficiencies, and those who suffer from it usually have a life expectancy of between 20 or 30 years in difficult conditions.
With more than 700 kilometers of love in her terrified legs, this mother hopes to arrive in the Chilean capital at the end of this month of May from Chiloe, where there is a movement so that the spending on a bridge that they believe is unnecessary, is dedicated to the construction of a perentory hospital
International
Climate-driven rains trigger one of Indonesia’s deadliest flood emergencies in years
A torrential monsoon season, compounded by two unusual tropical cyclones, has triggered intense rainfall in several regions since last week, including southern Thailand, northern Malaysia, and large parts of Indonesia.
Climate change has recently intensified rainfall patterns, as a warmer atmosphere is able to hold more moisture. In Indonesia, desperation is growing among those affected by the disaster due to the slow pace of rescue operations and the distribution of humanitarian aid.
Relief agencies warned that the scale of the emergency is nearly unprecedented, even for a country accustomed to frequent natural disasters.
Across the island of Sumatra, the death toll was revised downward to 770 fatalities and at least 463 people still missing as of Wednesday night. Earlier, the national disaster management agency had reported 804 deaths.
Gathering accurate information on the ground remains difficult, as many regions are still cut off due to flood damage, widespread power outages, communication failures, or a combination of all three.
International
Russian authorities ban Roblox citing child safety and moral concerns
Russia has blocked access to the U.S.-owned game creation platform Roblox, accusing it of distributing extremist materials and what authorities described as “LGBT propaganda,” state media reported on Wednesday.
The country has repeatedly threatened to ban certain foreign digital platforms, a move that human rights organizations view as part of broader efforts by authorities to tighten control over internet use.
In a statement released through Russian news agencies, the federal communications watchdog Roskomnadzor accused Roblox of hosting “inappropriate content that can negatively affect the spiritual and moral development of children.”
“The game exposes minors to sexual harassment, tricks them into sharing intimate photos, and encourages them to commit acts of depravity and violence,” the regulator claimed.
Last week, the same agency also threatened to ban WhatsApp, the country’s second most widely used messaging app, accusing it of failing to prevent criminal activity.
Roblox, which is owned by the U.S.-based Roblox Corporation, did not immediately respond to a request for comment.
According to company data for 2024, the platform has around 100 million daily users worldwide, nearly 40% of whom are under the age of 13.
Other countries, including Qatar, Iraq and Turkey, have also restricted or banned Roblox, mainly over concerns about the safety of underage users. In the United States, the states of Texas and Louisiana have filed lawsuits against the platform on similar grounds.
International
El Chapo’s son Joaquín Guzmán López pleads guilty to U.S. drug trafficking charges
Joaquín Guzmán López, one of the sons of notorious Mexican drug lord Joaquín “El Chapo” Guzmán, pleaded guilty on Monday to drug trafficking charges in a U.S. court, months after his brother Ovidio reached a similar plea agreement, according to local media reports.
The defendant appeared before a federal court in Chicago early Monday afternoon and changed his previous plea in the case, the Chicago Tribune reported. U.S. authorities accuse him of forming, together with his three brothers, the cartel faction known as “Los Chapitos.”
The group is believed to have continued the operations of El Chapo, who has been serving a life sentence in the United States since 2019.
Guzmán López, 39, was arrested after landing in Texas in a small aircraft alongside cartel co-founder Ismael “El Mayo” Zambada.
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