International
Chilean mother travels 1,300 kilometers on foot to try to save her son with dystrophy
In the city of Ancud, one of the most important of the Chiloe archipelago, in the south of Chile, there is no hospital, so if one of its about 165,000 inhabitants gets sick, he must take the ferry and travel about 50 kilometers to reach the neighboring city of Puerto Montt, the nearest place.
Camila Gómez, a young mother, decided to take a trip but this time to walk to the Palacio de la Moneda, in Santiago de Chile, more than 1,300 kilometers from her home, to raise funds and make visible the drama of her son Tomás, who suffers from Duchenne muscular dystrophy, one of the so-called “rare diseases”, which almost no one worries and no one finances.
Its main objective is to help collect the nearly four million dollars that costs a vital treatment that does not exist in Chile – it must be imported from the United States – and that would help stop the progression of the child’s ailment, barely five years old.
“Tomás has Duchenne muscular dystrophy in a neuromuscular degenerative disease that gradually weakens the muscles, the respiratory system and the heart, which leads to premature death,” he explains in one of the highs of his journey.
“In Chile there is no type of treatment for this disease, but in the United States there are several treatment options, there are three and here they told me that it was not possible to cover a medicine that is abroad. And it motivated me to do this walk, this physical effort,” he adds.
Gómez regrets that no one, neither the precarious public service nor the greedy private insurance, has offered him an exit in the country, although his son “does have options abroad.
“That’s why we decided to walk, to make the disease visible and take it very particularly to collect the 3.9 million dollars that the drug that is administered for the only time in a lifetime costs. So far (its administration) is approved until the age of four and five. Tomás is five and a half years old. So we are against time,” she urges in anguish.
Even so, hope has not been erased from his face and sometimes, especially when asked about solidarity, he outlines a smile of love and trust.
“We are all aware of the great health deficit, that Chile is a country very backward in health, unlike other more developed countries and we are all aware of that. So people have empathized, supported and contributed to the campaign,” he says.
Along with this mother, who left Ancud on April 28, her husband and father of Tomás, Alex Ross, a friend Álvaro Neira and Marco Reyes, president of the Duchenne Families corporation in Chile, who has two teenage children with the same disease and who proposed the Ross Gómez family to the odyssey.
“I am the logistical support for Camila and Marco who have been walking from Chiloé. I assist them on the way, usually with a change of clothes, food, food, I manage the lodging,” explains Alex.
“(Camila) Walk through Tomás, because we are against time, but he also does it so that no mom has to do it,” he says.
Camila’s third objective is to be able to speak in person with the President of the Republic, Gabriel Boric, to urge him to promote a bill to Congress that allows improving the coverage of rare diseases in the country, and medical assistance in rural areas, abandoned by the state in a country where the privatization of health care prevails.
Neira joined the walk because he was moved by Tomás’ suffering but also because he is worried that “in Chile we do not have the means, a clinic where we can have these medicines, that we have to go to this.”
Tomás was diagnosed in March 2023 with Duchenne’s syndrome, the most common but also most severe form of this type of muscular dystrophy that is triggered by a defective gene that affects dystrophin, a protein that helps keep the body’s cells intact.
It causes problems when walking and running, fatigue, learning difficulties and heart and respiratory deficiencies, and those who suffer from it usually have a life expectancy of between 20 or 30 years in difficult conditions.
With more than 700 kilometers of love in her terrified legs, this mother hopes to arrive in the Chilean capital at the end of this month of May from Chiloe, where there is a movement so that the spending on a bridge that they believe is unnecessary, is dedicated to the construction of a perentory hospital
International
Mexico, Brazil and Colombia left out of Trump’s “Shield of the Americas” summit
Left-wing governments in Latin America, including Mexico, Brazil and Colombia, were excluded from the “Shield of the Americas” summit convened by U.S. President Donald Trump.
The meeting, held in Miami, Florida, brought together 12 presidents from across the continent to discuss strategies to combat drug cartels and organized crime.
In Mexico’s case, President Claudia Sheinbaum had recently rejected the use of military force as a solution to the drug trafficking problem. She has argued that her administration’s security strategy is producing results and emphasized that force alone is not the answer.
During the summit, Trump said that most narcotics entering the United States come through Mexico and referred to his previous conversations with Sheinbaum on the issue.
“I like the president very much, she’s a very good person,” Trump said. “But I told her: ‘Let me eradicate the cartels.’ And she said, ‘No, no, no, please, president.’ We have to eradicate them. We have to finish them.”
The remarks highlighted ongoing differences between Washington and Mexico over how to confront drug trafficking networks operating across the region.
International
Trump announces 17-nation alliance in the Americas to “destroy” drug cartels
U.S. President Donald Trump announced on Saturday the creation of a 17-nation alliance across the Americas aimed at dismantling drug cartels, during a regional summit held at his golf club in Doral.
Speaking to a group of allied leaders at the Shield of the Americas Summit, Trump said the initiative would rely on military force to eliminate powerful criminal networks operating throughout the hemisphere.
“The heart of our agreement is the commitment to use lethal military force to destroy these sinister cartels and terrorist networks. Once and for all, we will put an end to them,” Trump told the assembled heads of state.
The Republican leader argued that large portions of territory in the Western Hemisphere have fallen under the control of transnational gangs and pledged U.S. support to governments seeking to confront them. He even suggested the potential use of highly precise missiles against cartel leaders.
Before making the announcement, Trump greeted the roughly twelve leaders attending the summit, including close allies such as Javier Milei, Daniel Noboa and Nayib Bukele, whom he described as a “great president.”
The meeting forms part of Trump’s broader regional strategy inspired by his reinterpretation of the Monroe Doctrine, which seeks to reinforce Washington’s influence in the Americas, strengthen security cooperation and counter the growing presence of powers such as China.
Trump pointed to recent U.S. actions in the region as examples of his administration’s approach, including the operation that led to the capture of former Venezuelan president Nicolás Maduro earlier this year.
The summit also takes place amid escalating international tensions following the conflict launched last week by the United States and Israel against Iran.
International
Trump replaces Homeland Security Secretary Kristi Noem with Senator Markwayne Mullin
U.S. President Donald Trump announced Thursday the departure of Kristi Noem as Secretary of Homeland Security, one of the key architects of the administration’s policy of deporting undocumented immigrants.
Noem, who has been assigned a new role as a “special envoy” to Latin America, will be replaced starting March 31 by Republican Senator Markwayne Mullin, the president said in a message posted on his social media platform Truth Social.
According to media reports, Trump made the decision after Noem’s recent hearings in Congress, during which she faced tough questions regarding the awarding of a major public contract.
Mexico, Brazil and Colombia left out of Trump’s “Shield of the Americas” summit
Trump announces 17-nation alliance in the Americas to “destroy” drug cartels
Trump replaces Homeland Security Secretary Kristi Noem with Senator Markwayne Mullin
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