International
Chilean mother travels 1,300 kilometers on foot to try to save her son with dystrophy
In the city of Ancud, one of the most important of the Chiloe archipelago, in the south of Chile, there is no hospital, so if one of its about 165,000 inhabitants gets sick, he must take the ferry and travel about 50 kilometers to reach the neighboring city of Puerto Montt, the nearest place.
Camila Gómez, a young mother, decided to take a trip but this time to walk to the Palacio de la Moneda, in Santiago de Chile, more than 1,300 kilometers from her home, to raise funds and make visible the drama of her son Tomás, who suffers from Duchenne muscular dystrophy, one of the so-called “rare diseases”, which almost no one worries and no one finances.
Its main objective is to help collect the nearly four million dollars that costs a vital treatment that does not exist in Chile – it must be imported from the United States – and that would help stop the progression of the child’s ailment, barely five years old.
“Tomás has Duchenne muscular dystrophy in a neuromuscular degenerative disease that gradually weakens the muscles, the respiratory system and the heart, which leads to premature death,” he explains in one of the highs of his journey.
“In Chile there is no type of treatment for this disease, but in the United States there are several treatment options, there are three and here they told me that it was not possible to cover a medicine that is abroad. And it motivated me to do this walk, this physical effort,” he adds.
Gómez regrets that no one, neither the precarious public service nor the greedy private insurance, has offered him an exit in the country, although his son “does have options abroad.
“That’s why we decided to walk, to make the disease visible and take it very particularly to collect the 3.9 million dollars that the drug that is administered for the only time in a lifetime costs. So far (its administration) is approved until the age of four and five. Tomás is five and a half years old. So we are against time,” she urges in anguish.
Even so, hope has not been erased from his face and sometimes, especially when asked about solidarity, he outlines a smile of love and trust.
“We are all aware of the great health deficit, that Chile is a country very backward in health, unlike other more developed countries and we are all aware of that. So people have empathized, supported and contributed to the campaign,” he says.
Along with this mother, who left Ancud on April 28, her husband and father of Tomás, Alex Ross, a friend Álvaro Neira and Marco Reyes, president of the Duchenne Families corporation in Chile, who has two teenage children with the same disease and who proposed the Ross Gómez family to the odyssey.
“I am the logistical support for Camila and Marco who have been walking from Chiloé. I assist them on the way, usually with a change of clothes, food, food, I manage the lodging,” explains Alex.
“(Camila) Walk through Tomás, because we are against time, but he also does it so that no mom has to do it,” he says.
Camila’s third objective is to be able to speak in person with the President of the Republic, Gabriel Boric, to urge him to promote a bill to Congress that allows improving the coverage of rare diseases in the country, and medical assistance in rural areas, abandoned by the state in a country where the privatization of health care prevails.
Neira joined the walk because he was moved by Tomás’ suffering but also because he is worried that “in Chile we do not have the means, a clinic where we can have these medicines, that we have to go to this.”
Tomás was diagnosed in March 2023 with Duchenne’s syndrome, the most common but also most severe form of this type of muscular dystrophy that is triggered by a defective gene that affects dystrophin, a protein that helps keep the body’s cells intact.
It causes problems when walking and running, fatigue, learning difficulties and heart and respiratory deficiencies, and those who suffer from it usually have a life expectancy of between 20 or 30 years in difficult conditions.
With more than 700 kilometers of love in her terrified legs, this mother hopes to arrive in the Chilean capital at the end of this month of May from Chiloe, where there is a movement so that the spending on a bridge that they believe is unnecessary, is dedicated to the construction of a perentory hospital
International
Regional mexican music mourns the death of Banda Gota de Oro singer Giovanni Vera
Regional Mexican music is mourning the death of Giovanni Vera, lead vocalist of the band Banda Gota de Oro, who was among the victims of an armed attack that occurred on Sunday, December 28, in the Mexican state of Guanajuato.
The incident took place inside a residence located in the Los Presidentes neighborhood, in the municipality of Irapuato.
According to preliminary reports, several people were gathered at the house when armed men burst in and opened fire on those present. The attack left five people dead, including the singer.
Hours after the shooting, Banda Gota de Oro confirmed Vera’s death through its official Instagram account. In one of the posts, the group expressed its grief with an emotional message: “Today, the sky is dressed for a celebration because you are singing up there. Your voice and your joy will live on forever within us.”
Messages of support and condolences from fans and fellow musicians quickly flooded social media, paying tribute to the artist and expressing solidarity with his family and bandmates.
International
One Dead, Three Injured in Shooting at Cree Nation in Saskatchewan
One person was killed and three others were injured in a shooting reported early Tuesday in the Big Island Lake Cree Nation, in the Canadian province of Saskatchewan, according to local media.
Police said they were alerted to the incident in a remote area located approximately 392 kilometers northwest of the city of Saskatoon. Authorities issued a dangerous persons alert for two suspects, who were described as armed.
Saskatchewan police urged residents to seek shelter immediately, lock their doors, and avoid the area while the situation remains under investigation. Officers are working to determine whether the shooting was a targeted attack or a random act of violence.
As a precautionary measure, seven health-care facilities in the surrounding area were placed under lockdown, Saskatchewan Premier Scott Moe said in a post on X.
International
Mexico’s President Visits Victims After Train Derailment Kills 13 in Oaxaca
Mexican President Claudia Sheinbaum visited on Monday the victims injured in a train accident that left 13 people dead in the southern state of Oaxaca and announced financial assistance for those affected by the derailment of the Interoceanic Train, which was inaugurated in 2023.
The train, carrying 241 passengers and nine crew members, derailed on Sunday while traveling along the Interoceanic Corridor, a major infrastructure project that connects the Pacific coast with the Gulf of Mexico across the Isthmus of Tehuantepec. The corridor was one of the flagship initiatives of former President Andrés Manuel López Obrador’s administration (2018–2024).
Sheinbaum visited three hospitals in the neighboring towns of Tehuantepec and Salina Cruz, where around 20 injured passengers remain hospitalized. She also went to a funeral home to accompany the families of those who lost their lives in the accident.
According to Mexico’s Navy Secretary, Raymundo Morales, the accident occurred when one of the locomotives derailed, causing all four railcars to leave the tracks.
Regional mexican music mourns the death of Banda Gota de Oro singer Giovanni Vera
One Dead, Three Injured in Shooting at Cree Nation in Saskatchewan
Mexico’s President Visits Victims After Train Derailment Kills 13 in Oaxaca
Tec de Monterrey honors one of its students for his contribution to nanotechnology in medicine
Defense Minister commends salvadoran soldier for Central American Cross Country victory
Extension of the state of emergency approved in southern Chile
-
Central America4 days agoHonduras: Zelaya Calls for Mobilization Amid Dispute Over Tegucigalpa Mayoral Race
-
International2 days agoMan accused of killing nine in Paramaribo dies by suicide in police custody
-
International2 days agoSix killed, including baby, in armed attack near tourist beach in Ecuador
-
International4 days agoWinter storm disrupts holiday travel, forcing 1,500 flight cancellations in the U.S.
-
International1 day agoOne Dead, Three Injured in Shooting at Cree Nation in Saskatchewan
-
International1 day agoMexico’s President Visits Victims After Train Derailment Kills 13 in Oaxaca
-
International12 hours ago
Regional mexican music mourns the death of Banda Gota de Oro singer Giovanni Vera