International
Chilean mother travels 1,300 kilometers on foot to try to save her son with dystrophy
In the city of Ancud, one of the most important of the Chiloe archipelago, in the south of Chile, there is no hospital, so if one of its about 165,000 inhabitants gets sick, he must take the ferry and travel about 50 kilometers to reach the neighboring city of Puerto Montt, the nearest place.
Camila Gómez, a young mother, decided to take a trip but this time to walk to the Palacio de la Moneda, in Santiago de Chile, more than 1,300 kilometers from her home, to raise funds and make visible the drama of her son Tomás, who suffers from Duchenne muscular dystrophy, one of the so-called “rare diseases”, which almost no one worries and no one finances.
Its main objective is to help collect the nearly four million dollars that costs a vital treatment that does not exist in Chile – it must be imported from the United States – and that would help stop the progression of the child’s ailment, barely five years old.
“Tomás has Duchenne muscular dystrophy in a neuromuscular degenerative disease that gradually weakens the muscles, the respiratory system and the heart, which leads to premature death,” he explains in one of the highs of his journey.
“In Chile there is no type of treatment for this disease, but in the United States there are several treatment options, there are three and here they told me that it was not possible to cover a medicine that is abroad. And it motivated me to do this walk, this physical effort,” he adds.
Gómez regrets that no one, neither the precarious public service nor the greedy private insurance, has offered him an exit in the country, although his son “does have options abroad.
“That’s why we decided to walk, to make the disease visible and take it very particularly to collect the 3.9 million dollars that the drug that is administered for the only time in a lifetime costs. So far (its administration) is approved until the age of four and five. Tomás is five and a half years old. So we are against time,” she urges in anguish.
Even so, hope has not been erased from his face and sometimes, especially when asked about solidarity, he outlines a smile of love and trust.
“We are all aware of the great health deficit, that Chile is a country very backward in health, unlike other more developed countries and we are all aware of that. So people have empathized, supported and contributed to the campaign,” he says.
Along with this mother, who left Ancud on April 28, her husband and father of Tomás, Alex Ross, a friend Álvaro Neira and Marco Reyes, president of the Duchenne Families corporation in Chile, who has two teenage children with the same disease and who proposed the Ross Gómez family to the odyssey.
“I am the logistical support for Camila and Marco who have been walking from Chiloé. I assist them on the way, usually with a change of clothes, food, food, I manage the lodging,” explains Alex.
“(Camila) Walk through Tomás, because we are against time, but he also does it so that no mom has to do it,” he says.
Camila’s third objective is to be able to speak in person with the President of the Republic, Gabriel Boric, to urge him to promote a bill to Congress that allows improving the coverage of rare diseases in the country, and medical assistance in rural areas, abandoned by the state in a country where the privatization of health care prevails.
Neira joined the walk because he was moved by Tomás’ suffering but also because he is worried that “in Chile we do not have the means, a clinic where we can have these medicines, that we have to go to this.”
Tomás was diagnosed in March 2023 with Duchenne’s syndrome, the most common but also most severe form of this type of muscular dystrophy that is triggered by a defective gene that affects dystrophin, a protein that helps keep the body’s cells intact.
It causes problems when walking and running, fatigue, learning difficulties and heart and respiratory deficiencies, and those who suffer from it usually have a life expectancy of between 20 or 30 years in difficult conditions.
With more than 700 kilometers of love in her terrified legs, this mother hopes to arrive in the Chilean capital at the end of this month of May from Chiloe, where there is a movement so that the spending on a bridge that they believe is unnecessary, is dedicated to the construction of a perentory hospital
International
Mexico leads global cases of enforced disappearances, UN report finds
Mexico accounts for the highest number of urgent actions related to enforced disappearances worldwide, according to the latest report by the UN Committee on Enforced Disappearances.
The report, released by I(dh)eas, indicates that Mexico has accumulated 819 cases between 2012 and February 2026, representing 38% of the global total.
In the past five months alone, 40 new urgent requests have been recorded — more than one-third of all such actions worldwide during that period.
The report warns that this trend reflects a structural problem, as the urgent action mechanism — originally intended as an exceptional measure — has become routine in Mexico.
Although the Mexican state formally complies with response deadlines, the Committee identified significant shortcomings in the implementation of these measures. These include the lack of comprehensive search plans, delays in key investigative procedures such as video surveillance and phone data analysis, and insufficient inquiries into possible links involving state agents.
The report also highlights inadequate protection for relatives and individuals involved in search efforts, including cases of reprisals.
Among the most serious incidents documented is the disappearance of a father who had denounced alleged involvement of authorities in his son’s case in the state of Guanajuato.
The accumulation of cases could lead to the application of Article 34 of the Convention, which would allow for the launch of an international investigation into systematic enforced disappearances.
Geographically, the state of Chiapas accounts for 30% of the new urgent actions, many of them linked to collective disappearances of migrants.
International
Le pape Léon XIV appelle à relancer le dialogue pour une paix au Moyen-Orient
Le pape Léon XIV s’est entretenu par téléphone ce vendredi avec le président d’Israël, Isaac Herzog, soulignant la « nécessité de rouvrir » les canaux de dialogue afin de parvenir à une « paix juste » au Moyen-Orient.
Selon un communiqué du Vatican, les deux dirigeants ont insisté sur l’importance de relancer tous les mécanismes diplomatiques pour mettre fin au conflit en cours et œuvrer en faveur d’une paix durable dans la région.
Le communiqué précise également que les discussions ont porté sur la protection des populations civiles et sur le respect du droit international et humanitaire.
Cet échange intervient dans le contexte de la Semaine sainte, cinq jours après un incident à Jérusalem, où la police israélienne avait empêché le cardinal Pierbattista Pizzaballa de célébrer la messe du Dimanche des Rameaux au Saint-Sépulcre.
Le lendemain, le secrétaire d’État du Vatican, Pietro Parolin, avait convoqué l’ambassadeur israélien auprès du Saint-Siège, Yaron Sideman, pour exprimer le mécontentement du Vatican face à cet incident qualifié de « regrettable ».
Cette situation avait suscité une vive réaction internationale, poussant le Premier ministre israélien Benjamin Netanyahu à intervenir pour assurer que le cardinal pourrait accéder au lieu saint.
De son côté, Herzog a confirmé l’échange sur son compte X, indiquant que les discussions ont également porté sur des sujets régionaux, notamment la guerre en Iran et la situation au Liban.
Le pape, d’origine américaine, participe actuellement à sa première Semaine sainte depuis son élection et doit présider ce soir le chemin de croix au Vatican.
International
Devotees in Philippines mark Holy Week with extreme rituals despite rising costs
Despite rising fuel prices driven by the conflict in the Middle East, thousands of devotees in Philippines took part this year in one of the country’s most intense Holy Week traditions.
In the city of San Fernando, located in Pampanga province, dozens of bare-chested penitents with covered faces walked barefoot along dusty streets, whipping their backs with bamboo lashes as part of a ritual that can draw up to 12,000 local and foreign visitors.
Journalists from Agence France-Presse reported seeing participants piercing their skin with glass shards attached to small wooden paddles to ensure bleeding during the ceremony — an act believed to atone for sins and seek divine intervention.
“I do this to pray for the healing of my seven-month-old baby, who is suffering from pneumonia,” said a devotee identified as John David at the start of the procession.
The 49-year-old participant explained that the practice runs in his family. “My grandfather started this, then my father, and now it’s my turn. I have witnessed healing miracles over the years through this act of faith,” he said.
Many attendees traveled for hours to witness the climax of the ritual, in which some penitents allow nails, measuring about seven centimeters, to be driven into their hands before being raised on crosses in a reenactment of crucifixion.
Mexico leads global cases of enforced disappearances, UN report finds
Le pape Léon XIV appelle à relancer le dialogue pour une paix au Moyen-Orient
Devotees in Philippines mark Holy Week with extreme rituals despite rising costs
Tec de Monterrey honors one of its students for his contribution to nanotechnology in medicine
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Extension of the state of emergency approved in southern Chile
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