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Chilean mother travels 1,300 kilometers on foot to try to save her son with dystrophy

In the city of Ancud, one of the most important of the Chiloe archipelago, in the south of Chile, there is no hospital, so if one of its about 165,000 inhabitants gets sick, he must take the ferry and travel about 50 kilometers to reach the neighboring city of Puerto Montt, the nearest place.

Camila Gómez, a young mother, decided to take a trip but this time to walk to the Palacio de la Moneda, in Santiago de Chile, more than 1,300 kilometers from her home, to raise funds and make visible the drama of her son Tomás, who suffers from Duchenne muscular dystrophy, one of the so-called “rare diseases”, which almost no one worries and no one finances.

Its main objective is to help collect the nearly four million dollars that costs a vital treatment that does not exist in Chile – it must be imported from the United States – and that would help stop the progression of the child’s ailment, barely five years old.

“Tomás has Duchenne muscular dystrophy in a neuromuscular degenerative disease that gradually weakens the muscles, the respiratory system and the heart, which leads to premature death,” he explains in one of the highs of his journey.

“In Chile there is no type of treatment for this disease, but in the United States there are several treatment options, there are three and here they told me that it was not possible to cover a medicine that is abroad. And it motivated me to do this walk, this physical effort,” he adds.

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Gómez regrets that no one, neither the precarious public service nor the greedy private insurance, has offered him an exit in the country, although his son “does have options abroad.

“That’s why we decided to walk, to make the disease visible and take it very particularly to collect the 3.9 million dollars that the drug that is administered for the only time in a lifetime costs. So far (its administration) is approved until the age of four and five. Tomás is five and a half years old. So we are against time,” she urges in anguish.

Even so, hope has not been erased from his face and sometimes, especially when asked about solidarity, he outlines a smile of love and trust.

“We are all aware of the great health deficit, that Chile is a country very backward in health, unlike other more developed countries and we are all aware of that. So people have empathized, supported and contributed to the campaign,” he says.

Along with this mother, who left Ancud on April 28, her husband and father of Tomás, Alex Ross, a friend Álvaro Neira and Marco Reyes, president of the Duchenne Families corporation in Chile, who has two teenage children with the same disease and who proposed the Ross Gómez family to the odyssey.

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“I am the logistical support for Camila and Marco who have been walking from Chiloé. I assist them on the way, usually with a change of clothes, food, food, I manage the lodging,” explains Alex.

“(Camila) Walk through Tomás, because we are against time, but he also does it so that no mom has to do it,” he says.

Camila’s third objective is to be able to speak in person with the President of the Republic, Gabriel Boric, to urge him to promote a bill to Congress that allows improving the coverage of rare diseases in the country, and medical assistance in rural areas, abandoned by the state in a country where the privatization of health care prevails.

Neira joined the walk because he was moved by Tomás’ suffering but also because he is worried that “in Chile we do not have the means, a clinic where we can have these medicines, that we have to go to this.”

Tomás was diagnosed in March 2023 with Duchenne’s syndrome, the most common but also most severe form of this type of muscular dystrophy that is triggered by a defective gene that affects dystrophin, a protein that helps keep the body’s cells intact.

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It causes problems when walking and running, fatigue, learning difficulties and heart and respiratory deficiencies, and those who suffer from it usually have a life expectancy of between 20 or 30 years in difficult conditions.

With more than 700 kilometers of love in her terrified legs, this mother hopes to arrive in the Chilean capital at the end of this month of May from Chiloe, where there is a movement so that the spending on a bridge that they believe is unnecessary, is dedicated to the construction of a perentory hospital

International

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President Donald Trump issued an executive order this Monday for the immediate construction of two new warships that will bear his name. These vessels will be the pioneers of what he described as the “Golden Fleet,” a future generation of “Trump-class” battleships that he claimed would be “100 times more powerful” than those currently in service.

The announcement took place at his private residence in Mar-a-Lago, Florida. The President indicated that following the initial two ships, the administration aims to commission up to 25 additional vessels. He is scheduled to meet with Florida-based contractors next week to expedite production, criticizing existing defense firms for failing to deliver results efficiently.

This naval expansion is a cornerstone of Trump’s goal to revitalized the American shipbuilding industry and address the strategic gap between the U.S. and competitors like China.

The move comes amid heightened geopolitical tension. Just last week, Trump ordered the seizure of all sanctioned tankers involved with Venezuela’s “ghost fleet” to cripple the country’s crude oil industry. Since December 10, the U.S. military—deployed in the Caribbean under the guise of counter-narcotics operations—has already detained two tankers linked to Venezuelan oil transport.

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International

U.S. Judge Blocks ICE from Re-detaining Salvadoran Erroneously Deported Under Trump Administration

A U.S. federal judge ruled this Monday, December 22, that Immigration and Customs Enforcement (ICE) is prohibited from re-detaining Salvadoran national Kilmar Ábrego García, who was erroneously deported to El Salvador earlier this year during the administration of President Donald Trump.

During a hearing in Maryland, U.S. District Judge Paula Xinis ruled that Ábrego García must remain free on bail through the Christmas holidays, concluding that his initial detention lacked a legal basis. The ruling follows a request from his legal team for a temporary restraining order to prevent ICE from carrying out a new arrest.

Earlier this month, on December 11, Judge Xinis ordered his release from a Pennsylvania migrant detention center after determining that the government had detained him without a formal deportation order. In 2019, an immigration judge had already ruled that Ábrego could not be returned to El Salvador because his life was in danger.

Despite that protection, Ábrego García was deported in March 2025 following a raid by the Trump administration. Officials argued at the time that he was a gang member, and he was sent directly to the Center for the Confinement of Terrorism (CECOT) in El Salvador. In June, he was returned to the United States to face a new trial for alleged human smuggling—a charge he denies.

On Monday, Judge Xinis also temporarily invalidated a new deportation order issued by an immigration judge following Ábrego’s recent release, granting him legal protection through the coming weeks. His trial is scheduled to begin in Tennessee in January 2026.

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Fire at substation triggers major blackout in San Francisco

The U.S. city of San Francisco was plunged into darkness Saturday night after a power outage left about 130,000 customers without electricity, although the utility company said service was restored to most users within hours.

Pacific Gas & Electric Company (PG&E) said in a statement posted on X that nearly 90,000 homes had their power restored by 9:00 p.m. local time (05:00 GMT on Sunday), while the remaining 40,000 customers were expected to have service restored overnight.

Large areas of the city, a major technology hub with a population of around 800,000, were affected by the blackout, which disrupted public transportation and left traffic lights out of service during the busy weekend before Christmas, a crucial period for retail businesses.

“I know it’s been a difficult day,” San Francisco Mayor Daniel Lurie said in a video posted on social media from the city’s emergency operations center. “There has been progress, but for those still without power, we want to make sure they are safe and checking in on their neighbors,” he added.

Lurie said police officers and firefighters advised residents to stay home as much as possible. He also noted that officers and traffic inspectors were deployed to manage intersections where traffic lights were not functioning.

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The mayor confirmed that the outage was caused by a fire at an electrical substation. Parts of the city were also covered in fog, further complicating conditions during the incident.

As a result of the blackout, many businesses were forced to close despite it being the weekend before Christmas. The sudden drop in shopper traffic ahead of the holiday is “devastating” for retailers, the manager of home goods store Black & Gold told the San Francisco Chronicle.

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