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Chilean mother travels 1,300 kilometers on foot to try to save her son with dystrophy

In the city of Ancud, one of the most important of the Chiloe archipelago, in the south of Chile, there is no hospital, so if one of its about 165,000 inhabitants gets sick, he must take the ferry and travel about 50 kilometers to reach the neighboring city of Puerto Montt, the nearest place.

Camila Gómez, a young mother, decided to take a trip but this time to walk to the Palacio de la Moneda, in Santiago de Chile, more than 1,300 kilometers from her home, to raise funds and make visible the drama of her son Tomás, who suffers from Duchenne muscular dystrophy, one of the so-called “rare diseases”, which almost no one worries and no one finances.

Its main objective is to help collect the nearly four million dollars that costs a vital treatment that does not exist in Chile – it must be imported from the United States – and that would help stop the progression of the child’s ailment, barely five years old.

“Tomás has Duchenne muscular dystrophy in a neuromuscular degenerative disease that gradually weakens the muscles, the respiratory system and the heart, which leads to premature death,” he explains in one of the highs of his journey.

“In Chile there is no type of treatment for this disease, but in the United States there are several treatment options, there are three and here they told me that it was not possible to cover a medicine that is abroad. And it motivated me to do this walk, this physical effort,” he adds.

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Gómez regrets that no one, neither the precarious public service nor the greedy private insurance, has offered him an exit in the country, although his son “does have options abroad.

“That’s why we decided to walk, to make the disease visible and take it very particularly to collect the 3.9 million dollars that the drug that is administered for the only time in a lifetime costs. So far (its administration) is approved until the age of four and five. Tomás is five and a half years old. So we are against time,” she urges in anguish.

Even so, hope has not been erased from his face and sometimes, especially when asked about solidarity, he outlines a smile of love and trust.

“We are all aware of the great health deficit, that Chile is a country very backward in health, unlike other more developed countries and we are all aware of that. So people have empathized, supported and contributed to the campaign,” he says.

Along with this mother, who left Ancud on April 28, her husband and father of Tomás, Alex Ross, a friend Álvaro Neira and Marco Reyes, president of the Duchenne Families corporation in Chile, who has two teenage children with the same disease and who proposed the Ross Gómez family to the odyssey.

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“I am the logistical support for Camila and Marco who have been walking from Chiloé. I assist them on the way, usually with a change of clothes, food, food, I manage the lodging,” explains Alex.

“(Camila) Walk through Tomás, because we are against time, but he also does it so that no mom has to do it,” he says.

Camila’s third objective is to be able to speak in person with the President of the Republic, Gabriel Boric, to urge him to promote a bill to Congress that allows improving the coverage of rare diseases in the country, and medical assistance in rural areas, abandoned by the state in a country where the privatization of health care prevails.

Neira joined the walk because he was moved by Tomás’ suffering but also because he is worried that “in Chile we do not have the means, a clinic where we can have these medicines, that we have to go to this.”

Tomás was diagnosed in March 2023 with Duchenne’s syndrome, the most common but also most severe form of this type of muscular dystrophy that is triggered by a defective gene that affects dystrophin, a protein that helps keep the body’s cells intact.

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It causes problems when walking and running, fatigue, learning difficulties and heart and respiratory deficiencies, and those who suffer from it usually have a life expectancy of between 20 or 30 years in difficult conditions.

With more than 700 kilometers of love in her terrified legs, this mother hopes to arrive in the Chilean capital at the end of this month of May from Chiloe, where there is a movement so that the spending on a bridge that they believe is unnecessary, is dedicated to the construction of a perentory hospital

International

Billionaire duel: Elon Musk campaigns for Trump and Mark Cuban for Harris

Elon Musk and Mark Cuban, two of the richest men in the world, have decided to throw themselves fully into the electoral campaign to support Republican Donald Trump and Democrat Kamala Harris, respectively, in the final stretch until the November 5 elections.

This Thursday, Cuban, known for his role in the series ‘Shark Tank’ and owner of the NBA’s Dallas Mavericks, will join Harris in the towns of Milwaukee and La Crosse, both in the state of Wisconsin, where the vice president is scheduled to participate in several rallies, the Democratic team said in a statement.

This Saturday, Cuban will participate in a forum in Phoenix (Arizona) to explain Harris’ economic proposals and, later, he will travel to Grand Rapids (Michigan), where on Sunday he will campaign with the second gentleman, Douglas Emhoff.

For his part, Musk, owner of Tesla, SpaceX and the social network X, will also begin this Thursday a multi-day tour of Pennsylvania with the ‘America PAC’, the political action committee with which he is investing tens of millions of dollars in support of Trump.

Musk, considered the richest man in the world, has donated 75 million dollars (about 69 million euros) to ‘America PAC’ since last July.

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Cuban’s tour of key states comes after, in recent weeks, he has appeared in podcasts and media with praise for Harris.

Cuban, a strong critic of Trump, has strongly rejected the former president’s economic policies, in particular his tariff measures, arguing that these raise costs for American families.

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International

Parliament approves the dismissal of Kenya’s vice president on a historic day

The Senate of Kenya (Upper Chamber of Parliament) approved this Thursday the dismissal of the vice president of the country, Rigathi Gachagua, an unprecedented act in the history of the African country.

After two days of impeachment, the senators voted in favor of the impeachment (as the impeachment process is known in English) against the vice president, who could not defend himself in person before the parliamentarians because he was admitted to a hospital in Nairobi for intense chest pains.

How was the motion for the dismissal of the vice president of Kenya?

The motion had to be supported by at least two-thirds (45) of the 67 members of the Senate who supported at least one of the eleven charges that weighed on Gachagua.

Thus, 45 senators or more voted in favor of five of the eleven charges, which included corruption, promotion of ethnic discrimination, insubordination, intimidation and humiliation towards public officials.

“As a result, his Excellency Rigathi Gachagua ceases to hold office,” said the president of the Upper House, Amason Kingi.

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But the vice president also received the express support of some senators.

“This divorce that the president is looking for, he will get it. But it will be painful, harmful, catastrophic, it will have victims,” said legislator John Methu in reference to Kenyan President William Ruto, whose relationship with Gachagua had been rarefied for months.

On the 8th, the National Assembly (Lower House) already expressed itself in favor of the process of dismissal of Gachagua, 59 years old.

The dismissal ends his political career – he has been vice president since 2022 and, from 2017 to 2022, he was a deputy of the Assembly – since he will not be able to occupy any other public office in the future and, in addition, he will lose all the benefits derived from having held the vice presidency of Kenya.

Sudden hospitalization of Gachagua

The vote culminated in a dramatic day marked by the sudden hospitalization of the dismissed vice president, who is “stable,” according to doctors, adding that he will remain under observation between 48 and 72 hours.

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“It came with chest pains and when you get to the hospital with that, our first concern is if it has something to do with the heart and our job is to make sure that you don’t have the possibility of suffering a heart attack,” Karen Hospital’s chief cardiologist Dancan Gikonyo told reporters.

The setback caused the temporary suspension of the session in the Upper House, which resumed the impeachment shortly after 17:00 local time (14:00 GMT).

The session, the second debate in the Senate after the one held this Wednesday, was resumed after a request from Gachagua’s lawyer, Paul Muite.

Muite asked for a postponement of the impeachment until next Tuesday, so that the vice president could stand in person and defend himself before the Senate, but the president of the Upper House, Amason Kingi, pointed to this Saturday as an alternative date.

However, the senators refused in a vote to postpone the process until Saturday and decided to continue this Thursday, before which Muite and his legal team withdrew in protest.

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The procedure with green light

The procedure already received the green light on October 8 with a large majority in the National Assembly (Lower House), where 281 of the 349 deputies voted to move forward, after a marathon session in which the vice president intervened.

“In the absence of an active investigation by any Kenyan investigative agency, I believe that there can be no serious reason to believe that I have committed any crime,” Gachagua said at the time, denying all the accusations against him.

The debate in the Senate could begin this Wednesday after two courts rejected urgent appeals imposed by the vice president to stop the process.

According to local media, Vice President Gachagua has filed up to 26 lawsuits challenging the legality and the process of his dismissal.

One of the main arguments against impeachment is the lack of significant public participation.

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International

European leaders call for an end to the war in Gaza after the death of Hamas leader Yahya Sinwar

The President of France, Emmanuel Macron, said on Thursday that the death in an Israeli operation of the leader of Hamas in Gaza, Yahya Sinwar, is a “turning point” of the war, which should lead to the release of all hostages and the end of the conflict.

“This day is a turning point in addition to a military success for Israel. This opportunity must be taken so that all hostages are released and to finally stop this war,” he said at a press conference after the summit of EU heads of state and government.

Macron thus defended “ending military activities” and called for “accepting a ceasefire in Gaza” and “opening a political perspective for Israelis and Palestinians.”

Israel’s guarantees for the security of Palestine

The French president also stressed that “after the end of the war in Gaza, Israel will have to be given guarantees for its security” and also defended the need to “reform the Palestinian Authority” and “move towards the two-state solution.”

“An immediate ceasefire is necessary, urgently multiplying humanitarian operations, which are still at their lowest point, and moving forward to stop the violence perpetrated by settlers against Palestinians in the West Bank,” he added.

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Born in a refugee camp in Jan Yunis, a city in southern Gaza, Sinwar was elected leader of Hamas in Gaza in 2017 after arbilling a reputation as a bitter enemy of Israel and on August 6 – after the murder in Tehran of the then head of the political bureau, Ismail Haniyeh – he was chosen to occupy the highest position in the organization chart of the Islamist group.

He represented the hardest and most belligerent line of the group and is considered by Israel the mastermind of the attacks of October 7 against Israeli territory in which some 1,200 people died and another 250 were taken hostage, which made him the most wanted man by Israel.

Borrell: Sinwar was “an obstacle” to the ceasefire

For his part, the high representative of the European Union (EU) for Foreign Policy, Josep Borrell, said on Thursday that the leader of Hamas, Yahya Sinwar, who was killed on Wednesday in an Israeli operation, was “an obstacle” on the way to the “urgently needed ceasefire and the release of all hostages.”

“He was a terrorist on the European Union list responsible for the horrible attack of October 7 (2023). Violence must be stopped, hostages must be released and the suffering of Palestinians must be stopped,” Borrell said in a message in X.

In the same vein, the Italian Prime Minister, Giorgia Meloni, said that after the death of the leader of Hamas “a new phase has to begin.”

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“It is time for all hostages to be released, for the ceasefire to be proclaimed immediately and for the reconstruction of Gaza to begin,” the president said,” the Italian leader continued.

Regarding Sinwar’s death, German Chancellor Olaf Scholz said that the attack of October 7 last year “was horrible and inhuman” and that “someone who is militarily responsible for Hamas’ activity, of horrible crimes, has lost his life.”

Von der Leyen says that this coup weakens Hamas

In the opinion of the President of the European Commission, Ursula Von der Leyen, the death of the top leader of Hamas “significantly weakens” the organization.

“Sinwar was the leader of a terrorist organization, the terrorist organization of Hamas and was basically the brain behind (the attack) of October 7 with the deaths, massacres, rapes and kidnappings. His death certainly weakens Hamas significantly,” Von der Leyen said at the press conference after the European summit held today in Brussels.

The acting Belgian Prime Minister, Alexander De Croo, said that “it is very difficult to understand what Israel’s goal is” in the war. “We see that they are able to eliminate targets in an almost surgical way, but not every time, because there are already 42,000 dead in Gaza” and he said he was “perplexed.”

After more than a year of war in Gaza, Israel killed Sinwar yesterday in a military operation in the Rafah area, in the southern Strip, the country’s authorities confirmed today.

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Apart from the death of the Hamas leader, European leaders approved some conclusions in which they were “deeply alarmed by the dramatic military escalation in the Middle East” and called for an “immediate ceasefire,” both in Gaza and in Lebanon.

European leaders call for an end to the war

They also condemned Israel’s attacks on the United Nations Interim Force in Lebanon (UNFIN) in Lebanon and noted that “all actors have an obligation to take the necessary measures to ensure the safety of United Nations personnel.”

At the same time, the EU insisted that Israel “has the right to defend itself,” but that “international law must be respected.”
They also condemned “in the most energetic terms” Iran’s attacks on Israel on October 1 and its actions to “destabilize the East through the Middle East, through terrorist and armed groups, including the Houthi, Hezbulah and Hamas rebels.”

European leaders insisted on their call for the release of living Israeli hostages, as well as the entry of humanitarian aid into Gaza and Lebanon.

Although not included in the conclusions, Spain and Ireland insisted on the need for the EU to verify whether Israel is fulfilling its humanitarian obligations under the partnership agreement.

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