International
Chilean mother travels 1,300 kilometers on foot to try to save her son with dystrophy
In the city of Ancud, one of the most important of the Chiloe archipelago, in the south of Chile, there is no hospital, so if one of its about 165,000 inhabitants gets sick, he must take the ferry and travel about 50 kilometers to reach the neighboring city of Puerto Montt, the nearest place.
Camila Gómez, a young mother, decided to take a trip but this time to walk to the Palacio de la Moneda, in Santiago de Chile, more than 1,300 kilometers from her home, to raise funds and make visible the drama of her son Tomás, who suffers from Duchenne muscular dystrophy, one of the so-called “rare diseases”, which almost no one worries and no one finances.
Its main objective is to help collect the nearly four million dollars that costs a vital treatment that does not exist in Chile – it must be imported from the United States – and that would help stop the progression of the child’s ailment, barely five years old.
“Tomás has Duchenne muscular dystrophy in a neuromuscular degenerative disease that gradually weakens the muscles, the respiratory system and the heart, which leads to premature death,” he explains in one of the highs of his journey.
“In Chile there is no type of treatment for this disease, but in the United States there are several treatment options, there are three and here they told me that it was not possible to cover a medicine that is abroad. And it motivated me to do this walk, this physical effort,” he adds.
Gómez regrets that no one, neither the precarious public service nor the greedy private insurance, has offered him an exit in the country, although his son “does have options abroad.
“That’s why we decided to walk, to make the disease visible and take it very particularly to collect the 3.9 million dollars that the drug that is administered for the only time in a lifetime costs. So far (its administration) is approved until the age of four and five. Tomás is five and a half years old. So we are against time,” she urges in anguish.
Even so, hope has not been erased from his face and sometimes, especially when asked about solidarity, he outlines a smile of love and trust.
“We are all aware of the great health deficit, that Chile is a country very backward in health, unlike other more developed countries and we are all aware of that. So people have empathized, supported and contributed to the campaign,” he says.
Along with this mother, who left Ancud on April 28, her husband and father of Tomás, Alex Ross, a friend Álvaro Neira and Marco Reyes, president of the Duchenne Families corporation in Chile, who has two teenage children with the same disease and who proposed the Ross Gómez family to the odyssey.
“I am the logistical support for Camila and Marco who have been walking from Chiloé. I assist them on the way, usually with a change of clothes, food, food, I manage the lodging,” explains Alex.
“(Camila) Walk through Tomás, because we are against time, but he also does it so that no mom has to do it,” he says.
Camila’s third objective is to be able to speak in person with the President of the Republic, Gabriel Boric, to urge him to promote a bill to Congress that allows improving the coverage of rare diseases in the country, and medical assistance in rural areas, abandoned by the state in a country where the privatization of health care prevails.
Neira joined the walk because he was moved by Tomás’ suffering but also because he is worried that “in Chile we do not have the means, a clinic where we can have these medicines, that we have to go to this.”
Tomás was diagnosed in March 2023 with Duchenne’s syndrome, the most common but also most severe form of this type of muscular dystrophy that is triggered by a defective gene that affects dystrophin, a protein that helps keep the body’s cells intact.
It causes problems when walking and running, fatigue, learning difficulties and heart and respiratory deficiencies, and those who suffer from it usually have a life expectancy of between 20 or 30 years in difficult conditions.
With more than 700 kilometers of love in her terrified legs, this mother hopes to arrive in the Chilean capital at the end of this month of May from Chiloe, where there is a movement so that the spending on a bridge that they believe is unnecessary, is dedicated to the construction of a perentory hospital
International
Fire at substation triggers major blackout in San Francisco
The U.S. city of San Francisco was plunged into darkness Saturday night after a power outage left about 130,000 customers without electricity, although the utility company said service was restored to most users within hours.
Pacific Gas & Electric Company (PG&E) said in a statement posted on X that nearly 90,000 homes had their power restored by 9:00 p.m. local time (05:00 GMT on Sunday), while the remaining 40,000 customers were expected to have service restored overnight.
Large areas of the city, a major technology hub with a population of around 800,000, were affected by the blackout, which disrupted public transportation and left traffic lights out of service during the busy weekend before Christmas, a crucial period for retail businesses.
“I know it’s been a difficult day,” San Francisco Mayor Daniel Lurie said in a video posted on social media from the city’s emergency operations center. “There has been progress, but for those still without power, we want to make sure they are safe and checking in on their neighbors,” he added.
Lurie said police officers and firefighters advised residents to stay home as much as possible. He also noted that officers and traffic inspectors were deployed to manage intersections where traffic lights were not functioning.
The mayor confirmed that the outage was caused by a fire at an electrical substation. Parts of the city were also covered in fog, further complicating conditions during the incident.
As a result of the blackout, many businesses were forced to close despite it being the weekend before Christmas. The sudden drop in shopper traffic ahead of the holiday is “devastating” for retailers, the manager of home goods store Black & Gold told the San Francisco Chronicle.
International
Cristina Kirchner recovering after appendicitis surgery in Buenos Aires
Former Argentine President Cristina Kirchner underwent surgery on Saturday after being diagnosed with appendicitis and is recovering “without complications,” according to a medical report released by the Otamendi Sanatorium.
Kirchner was admitted to the Buenos Aires medical center on Saturday after experiencing abdominal pain. Doctors performed a laparoscopic procedure that confirmed a diagnosis of “appendicitis with localized peritonitis,” the statement said, adding that her post-operative recovery has been progressing without complications.
The former president was transferred to the clinic with judicial authorization from her apartment in Buenos Aires, where she is serving a six-year sentence under house arrest for corruption.
International
Argentina detects first local cases of Influenza A (H3N2) Subclade K
Argentina’s National Administration of Laboratories and Health Institutes (ANLIS) “Dr. Carlos G. Malbrán” has confirmed the detection of three cases of influenza A (H3N2) corresponding to subclade K in the country. These are the first locally recorded cases of this variant, which has become predominant in several countries in the Northern Hemisphere in recent months and is associated with higher transmissibility.
The cases were identified through the National Network of Laboratories and Sentinel Units and confirmed by the National Reference Laboratory of INEI-ANLIS using genomic sequencing techniques. According to health authorities, the cases involve two adolescents from the province of Santa Cruz, detected as part of the Ambulatory Monitoring Strategy for Acute Respiratory Infections, and a child who had been hospitalized in the Autonomous City of Buenos Aires.
In all three cases, patients experienced mild illness and recovered without complications. Officials did not specify whether any of the affected individuals had a recent travel history.
The jurisdictions involved have already launched the corresponding epidemiological investigations and are responsible for ensuring timely medical care for the detected cases. According to the latest integrated surveillance report, the circulation of influenza and other respiratory viruses in Argentina remains within expected levels for this time of year.
Fire at substation triggers major blackout in San Francisco
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