International
Chilean mother travels 1,300 kilometers on foot to try to save her son with dystrophy
In the city of Ancud, one of the most important of the Chiloe archipelago, in the south of Chile, there is no hospital, so if one of its about 165,000 inhabitants gets sick, he must take the ferry and travel about 50 kilometers to reach the neighboring city of Puerto Montt, the nearest place.
Camila Gómez, a young mother, decided to take a trip but this time to walk to the Palacio de la Moneda, in Santiago de Chile, more than 1,300 kilometers from her home, to raise funds and make visible the drama of her son Tomás, who suffers from Duchenne muscular dystrophy, one of the so-called “rare diseases”, which almost no one worries and no one finances.
Its main objective is to help collect the nearly four million dollars that costs a vital treatment that does not exist in Chile – it must be imported from the United States – and that would help stop the progression of the child’s ailment, barely five years old.
“Tomás has Duchenne muscular dystrophy in a neuromuscular degenerative disease that gradually weakens the muscles, the respiratory system and the heart, which leads to premature death,” he explains in one of the highs of his journey.
“In Chile there is no type of treatment for this disease, but in the United States there are several treatment options, there are three and here they told me that it was not possible to cover a medicine that is abroad. And it motivated me to do this walk, this physical effort,” he adds.
Gómez regrets that no one, neither the precarious public service nor the greedy private insurance, has offered him an exit in the country, although his son “does have options abroad.
“That’s why we decided to walk, to make the disease visible and take it very particularly to collect the 3.9 million dollars that the drug that is administered for the only time in a lifetime costs. So far (its administration) is approved until the age of four and five. Tomás is five and a half years old. So we are against time,” she urges in anguish.
Even so, hope has not been erased from his face and sometimes, especially when asked about solidarity, he outlines a smile of love and trust.
“We are all aware of the great health deficit, that Chile is a country very backward in health, unlike other more developed countries and we are all aware of that. So people have empathized, supported and contributed to the campaign,” he says.
Along with this mother, who left Ancud on April 28, her husband and father of Tomás, Alex Ross, a friend Álvaro Neira and Marco Reyes, president of the Duchenne Families corporation in Chile, who has two teenage children with the same disease and who proposed the Ross Gómez family to the odyssey.
“I am the logistical support for Camila and Marco who have been walking from Chiloé. I assist them on the way, usually with a change of clothes, food, food, I manage the lodging,” explains Alex.
“(Camila) Walk through Tomás, because we are against time, but he also does it so that no mom has to do it,” he says.
Camila’s third objective is to be able to speak in person with the President of the Republic, Gabriel Boric, to urge him to promote a bill to Congress that allows improving the coverage of rare diseases in the country, and medical assistance in rural areas, abandoned by the state in a country where the privatization of health care prevails.
Neira joined the walk because he was moved by Tomás’ suffering but also because he is worried that “in Chile we do not have the means, a clinic where we can have these medicines, that we have to go to this.”
Tomás was diagnosed in March 2023 with Duchenne’s syndrome, the most common but also most severe form of this type of muscular dystrophy that is triggered by a defective gene that affects dystrophin, a protein that helps keep the body’s cells intact.
It causes problems when walking and running, fatigue, learning difficulties and heart and respiratory deficiencies, and those who suffer from it usually have a life expectancy of between 20 or 30 years in difficult conditions.
With more than 700 kilometers of love in her terrified legs, this mother hopes to arrive in the Chilean capital at the end of this month of May from Chiloe, where there is a movement so that the spending on a bridge that they believe is unnecessary, is dedicated to the construction of a perentory hospital
International
Washington declares State of Emergency as atmospheric river brings severe flooding
Washington Governor Bob Ferguson declared a state of emergency on Wednesday in response to severe flooding affecting several counties, where more than 75,000 people remain under evacuation alerts following heavy rainfall that has caused significant water accumulation.
An atmospheric river has battered the state since Monday, dropping several centimeters of rain and threatening serious flooding in communities near major rivers. More precipitation is expected in the coming days, and the National Weather Service (NWS) has forecast between 15 and 20 centimeters of rain from Wednesday morning through Thursday afternoon in communities along the far western region, worsening the emergency.
Rainfall totals in higher elevations near the Canadian border could exceed 20 centimeters, further increasing the risk.
“Lives will be at stake in the coming days,” Ferguson warned during a press conference.
The governor underscored the severity of the situation and said he will request an expedited federal disaster declaration from President Donald Trump’s administration to access additional resources for the emergency response.
“I want to urge all Washington residents to pay close attention to alerts from their counties and emergency management departments. If you receive an evacuation order, please follow it,” he added.
Most rivers from the Canadian border down to southwestern Washington are in flood stage. Several are expected to reach record levels, including the Skagit River, which could exceed its 1990 flood peak when water levels rose 1.2 meters.
Around 75,000 people are at risk of flooding in Skagit County, where authorities continue to maintain an evacuation watch.
The Washington National Guard and the U.S. Army Corps of Engineers have been activated to assist with evacuations and response efforts in rural areas affected by flooding.
International
U.S. to require five-year social media history from tourists under Visa Waiver Program
Tourists from 42 countries covered by the U.S. Visa Waiver Program would be required to provide their social media history from the past five years in order to enter the United States, according to a new proposal released Wednesday by the administration of President Donald Trump.
The initiative, led by U.S. Customs and Border Protection (CBP), aims to more thoroughly review the activity of travelers entering the country through the Electronic System for Travel Authorization (ESTA). When asked about the plan’s potential impact on tourism, Trump insisted that the United States is “doing very well.”
“We just want people to come here and be safe… We want to make sure we’re not letting the wrong people into our country,” the president said during a press conference at the White House.
The proposal, published in the Federal Register, seeks to expand the information collected from visitors entering the U.S. for up to three months under the visa waiver program.
ESTA applies to travelers from 42 countries, including the United Kingdom, Ireland, New Zealand, Australia, France, Japan, Israel and Qatar.
In addition to requiring a five-year social media history, the plan would increase the amount of personal data requested, such as phone numbers and email addresses used over the past ten years. It also calls for family details, including names, dates of birth and places of birth of the traveler’s relatives.
The proposal further includes a new mobile tool that would allow any foreign visitor to record their departure from the United States.
International
Six ecuadorian soldiers jailed pending trial for alleged extrajudicial execution
Six Ecuadorian soldiers were placed in pre-trial detention on Wednesday by a civilian court over an alleged extrajudicial execution, the Attorney General’s Office reported.
As part of his war on drug trafficking, President Daniel Noboa declared an internal armed conflict in 2024 and deployed the Armed Forces to the streets. Human rights organizations have since denounced military abuses and a rise in disappearances attributed to state agents.
A judge in the coastal province of Santa Elena ordered pre-trial detention for six soldiers for alleged extrajudicial execution, the prosecution stated on X. It added that the troops, now under investigation for the suspected crime, were in charge of an operation in the resort town of Salinas, during which one of the detainees died.
In a separate case involving alleged abuse of authority, a group of 17 soldiers is currently on trial for the forced disappearance of four minors whose bodies were found burned near an Ecuadorian Air Force (FAE) base.
In December 2024, Saúl Arboleda, Steven Medina, and brothers Josué and Ismael Arroyo — aged 11 to 15 — were detained by a military patrol in southern Guayaquil.
According to Amnesty International, Ecuador’s Prosecutor’s Office has received reports of at least 43 possible cases of forced disappearance since 2023, the year Noboa took office pledging a tough stance against organized crime.
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