International

Chilean mother travels 1,300 kilometers on foot to try to save her son with dystrophy

In the city of Ancud, one of the most important of the Chiloe archipelago, in the south of Chile, there is no hospital, so if one of its about 165,000 inhabitants gets sick, he must take the ferry and travel about 50 kilometers to reach the neighboring city of Puerto Montt, the nearest place.

Camila Gómez, a young mother, decided to take a trip but this time to walk to the Palacio de la Moneda, in Santiago de Chile, more than 1,300 kilometers from her home, to raise funds and make visible the drama of her son Tomás, who suffers from Duchenne muscular dystrophy, one of the so-called “rare diseases”, which almost no one worries and no one finances.

Its main objective is to help collect the nearly four million dollars that costs a vital treatment that does not exist in Chile – it must be imported from the United States – and that would help stop the progression of the child’s ailment, barely five years old.

“Tomás has Duchenne muscular dystrophy in a neuromuscular degenerative disease that gradually weakens the muscles, the respiratory system and the heart, which leads to premature death,” he explains in one of the highs of his journey.

“In Chile there is no type of treatment for this disease, but in the United States there are several treatment options, there are three and here they told me that it was not possible to cover a medicine that is abroad. And it motivated me to do this walk, this physical effort,” he adds.

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Gómez regrets that no one, neither the precarious public service nor the greedy private insurance, has offered him an exit in the country, although his son “does have options abroad.

“That’s why we decided to walk, to make the disease visible and take it very particularly to collect the 3.9 million dollars that the drug that is administered for the only time in a lifetime costs. So far (its administration) is approved until the age of four and five. Tomás is five and a half years old. So we are against time,” she urges in anguish.

Even so, hope has not been erased from his face and sometimes, especially when asked about solidarity, he outlines a smile of love and trust.

“We are all aware of the great health deficit, that Chile is a country very backward in health, unlike other more developed countries and we are all aware of that. So people have empathized, supported and contributed to the campaign,” he says.

Along with this mother, who left Ancud on April 28, her husband and father of Tomás, Alex Ross, a friend Álvaro Neira and Marco Reyes, president of the Duchenne Families corporation in Chile, who has two teenage children with the same disease and who proposed the Ross Gómez family to the odyssey.

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“I am the logistical support for Camila and Marco who have been walking from Chiloé. I assist them on the way, usually with a change of clothes, food, food, I manage the lodging,” explains Alex.

“(Camila) Walk through Tomás, because we are against time, but he also does it so that no mom has to do it,” he says.

Camila’s third objective is to be able to speak in person with the President of the Republic, Gabriel Boric, to urge him to promote a bill to Congress that allows improving the coverage of rare diseases in the country, and medical assistance in rural areas, abandoned by the state in a country where the privatization of health care prevails.

Neira joined the walk because he was moved by Tomás’ suffering but also because he is worried that “in Chile we do not have the means, a clinic where we can have these medicines, that we have to go to this.”

Tomás was diagnosed in March 2023 with Duchenne’s syndrome, the most common but also most severe form of this type of muscular dystrophy that is triggered by a defective gene that affects dystrophin, a protein that helps keep the body’s cells intact.

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It causes problems when walking and running, fatigue, learning difficulties and heart and respiratory deficiencies, and those who suffer from it usually have a life expectancy of between 20 or 30 years in difficult conditions.

With more than 700 kilometers of love in her terrified legs, this mother hopes to arrive in the Chilean capital at the end of this month of May from Chiloe, where there is a movement so that the spending on a bridge that they believe is unnecessary, is dedicated to the construction of a perentory hospital

International

Bill Gates to testify before Congress over Epstein connections

Bill Gates is set to testify on June 10 before a congressional committee in United States investigating links connected to the late sex offender Jeffrey Epstein, a source familiar with the matter told AFP on Tuesday.

The Microsoft co-founder is among several high-profile figures named in documents released by the Department of Justice, which detail alleged close associations, questionable financial dealings, and private photographs involving Epstein.

According to a spokesperson cited by Politico, Gates “welcomes” the opportunity to appear before the committee. The representative emphasized that Gates “never attended or participated in any illegal activities with Epstein” and is prepared to answer questions to support the investigation.

The Bill & Melinda Gates Foundation did not immediately respond to AFP’s request for comment.

In late February, Gates told members of his foundation’s board that his association with Epstein was a “huge mistake.” He has consistently denied any involvement in the financier’s criminal activities. Epstein died by suicide in prison in 2019 while awaiting trial on charges of sex trafficking minors.

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“I did nothing illegal. I saw nothing illegal,” Gates said, according to a recording obtained by The Wall Street Journal.

Gates acknowledged that his relationship with Epstein began in 2011, three years after Epstein pleaded guilty to soliciting prostitution from a minor.

A draft email written by Epstein and released by the Department of Justice referenced alleged extramarital relationships involving Gates. The message, which was apparently never sent, claimed that Epstein had helped “Bill” obtain medication related to encounters with Russian women.

Gates admitted to having had two extramarital affairs but denied any involvement with Epstein’s victims.

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International

Former Trump allies call for removal, cite 25th Amendment amid Iran threats

Former allies of U.S. President Donald Trump on Tuesday called for his removal from office, arguing he is unfit to continue in the role following recent threats to “wipe out an entire civilization,” made just hours before the deadline of his ultimatum to Iran.

One of the most prominent voices was former Republican congresswoman Marjorie Taylor Greene, who invoked the 25th Amendment of the U.S. Constitution as a mechanism to remove the president from power.

“25th Amendment! Not a single bomb has fallen on the U.S. We cannot annihilate an entire civilization. This is evil and insanity,” Greene wrote on social media platform X.

Greene, once a leading figure within Trump’s political movement during his first term, broke with the president last November over disagreements on foreign policy and his handling of controversial cases.

Another former supporter, controversial commentator Alex Jones, also raised the possibility of applying the constitutional provision during his show, in a conversation with attorney Robert Barnes.

Barnes explained that invoking the 25th Amendment requires the support of two-thirds of Congress, making it a more complex process than impeachment.

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Section 4 of the amendment, ratified in 1967, establishes that the vice president, together with a majority of the cabinet, can declare the president unable to perform the duties of the office, a decision that must then be confirmed by both chambers of Congress.

The statements come amid rising international tensions and increasing domestic political pressure on the president.

International

Trump pauses strikes on Iran, extends ultimatum by two weeks

The president of the United States, Donald Trump, announced a temporary suspension of attacks against Iran for a period of two weeks, extending the ultimatum he had imposed on Tehran just hours before its deadline.

According to the president, the measure is conditional on Iran allowing the “full, immediate, and secure” reopening of the Strait of Hormuz. Trump stated that the decision would involve a reciprocal ceasefire between both parties.

The announcement was made through a message on his social media platform, where he emphasized that the pause in military actions is intended to create space for de-escalation in the region.

He also noted that the decision followed a conversation with the prime minister of Pakistan, Shehbaz Sharif, who requested a two-week extension of the ultimatum.

The move comes amid heightened global tensions, marked by escalating threats and concerns over the potential impact of the conflict on key international energy trade routes.