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Chilean mother travels 1,300 kilometers on foot to try to save her son with dystrophy

In the city of Ancud, one of the most important of the Chiloe archipelago, in the south of Chile, there is no hospital, so if one of its about 165,000 inhabitants gets sick, he must take the ferry and travel about 50 kilometers to reach the neighboring city of Puerto Montt, the nearest place.

Camila Gómez, a young mother, decided to take a trip but this time to walk to the Palacio de la Moneda, in Santiago de Chile, more than 1,300 kilometers from her home, to raise funds and make visible the drama of her son Tomás, who suffers from Duchenne muscular dystrophy, one of the so-called “rare diseases”, which almost no one worries and no one finances.

Its main objective is to help collect the nearly four million dollars that costs a vital treatment that does not exist in Chile – it must be imported from the United States – and that would help stop the progression of the child’s ailment, barely five years old.

“Tomás has Duchenne muscular dystrophy in a neuromuscular degenerative disease that gradually weakens the muscles, the respiratory system and the heart, which leads to premature death,” he explains in one of the highs of his journey.

“In Chile there is no type of treatment for this disease, but in the United States there are several treatment options, there are three and here they told me that it was not possible to cover a medicine that is abroad. And it motivated me to do this walk, this physical effort,” he adds.

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Gómez regrets that no one, neither the precarious public service nor the greedy private insurance, has offered him an exit in the country, although his son “does have options abroad.

“That’s why we decided to walk, to make the disease visible and take it very particularly to collect the 3.9 million dollars that the drug that is administered for the only time in a lifetime costs. So far (its administration) is approved until the age of four and five. Tomás is five and a half years old. So we are against time,” she urges in anguish.

Even so, hope has not been erased from his face and sometimes, especially when asked about solidarity, he outlines a smile of love and trust.

“We are all aware of the great health deficit, that Chile is a country very backward in health, unlike other more developed countries and we are all aware of that. So people have empathized, supported and contributed to the campaign,” he says.

Along with this mother, who left Ancud on April 28, her husband and father of Tomás, Alex Ross, a friend Álvaro Neira and Marco Reyes, president of the Duchenne Families corporation in Chile, who has two teenage children with the same disease and who proposed the Ross Gómez family to the odyssey.

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“I am the logistical support for Camila and Marco who have been walking from Chiloé. I assist them on the way, usually with a change of clothes, food, food, I manage the lodging,” explains Alex.

“(Camila) Walk through Tomás, because we are against time, but he also does it so that no mom has to do it,” he says.

Camila’s third objective is to be able to speak in person with the President of the Republic, Gabriel Boric, to urge him to promote a bill to Congress that allows improving the coverage of rare diseases in the country, and medical assistance in rural areas, abandoned by the state in a country where the privatization of health care prevails.

Neira joined the walk because he was moved by Tomás’ suffering but also because he is worried that “in Chile we do not have the means, a clinic where we can have these medicines, that we have to go to this.”

Tomás was diagnosed in March 2023 with Duchenne’s syndrome, the most common but also most severe form of this type of muscular dystrophy that is triggered by a defective gene that affects dystrophin, a protein that helps keep the body’s cells intact.

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It causes problems when walking and running, fatigue, learning difficulties and heart and respiratory deficiencies, and those who suffer from it usually have a life expectancy of between 20 or 30 years in difficult conditions.

With more than 700 kilometers of love in her terrified legs, this mother hopes to arrive in the Chilean capital at the end of this month of May from Chiloe, where there is a movement so that the spending on a bridge that they believe is unnecessary, is dedicated to the construction of a perentory hospital

International

President Sheinbaum Hails Fátima Bosch’s Miss Universe Win as a Victory for Women’s Voices

Mexican President Claudia Sheinbaum praised Fátima Bosch on Friday for winning the Miss Universe 2025 title, recognizing her as a symbol of courage for Mexican women and highlighting her stance against an act of injustice during the international pageant.

Bosch, a native of Tabasco, claimed the crown at the competition held in Thailand. Her participation drew significant attention following an incident involving the director of Miss Universe Thailand, Nawat Itsaragrisil, who told her to remain silent for not sharing event-related content on her social media platforms. The remark prompted Bosch to walk out of the room in protest, an action supported by several other contestants.

President Sheinbaum denounced expressions like “you look prettier when you’re quiet,” asserting: “Women look more beautiful when we speak up and participate. And she raised her voice, saying, ‘This is unjust, I don’t agree.’”

Fátima Bosch, 25, became the fourth Mexican woman to win the Miss Universe crown, joining Lupita Jones (1991), Ximena Navarrete (2010), and Andrea Meza (2020).

Bosch triumphed over Thailand’s Veena Praveenar, who placed as first runner-up, and Venezuela’s Stephany Abasaly, who took third place. This year’s pageant featured contestants from 120 countries and territories, including nine mothers, one transgender woman, a genocide survivor, and the first-ever Palestinian contestant in the competition’s history.

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Peru Orders Arrest of Betssy Chávez Amid Diplomatic Rift With Mexico

Peru’s Judiciary issued an international arrest warrant and ordered five months of pretrial detention on Friday for former Prime Minister Betssy Chávez, who is facing charges of attempting a coup d’état and is currently taking refuge in the Mexican Embassy in Lima.

Peru severed diplomatic relations with Mexico, arguing that the asylum granted to Chávez constitutes interference in its internal affairs. The former prime minister is accused of participating in former President Pedro Castillo’s attempted coup in December 2022.

“The court orders five months of pretrial detention for the defendant Betssy Chávez Chino, as well as national and international search and arrest notices,” the Judiciary stated.

Judge Juan Carlos Checkley argued that there is a “clear” flight risk and a significant chance of jeopardizing the upcoming oral trial.

The Supreme Anti-Corruption Prosecutor’s Office said it secured pretrial detention for Chávez “on charges of rebellion and, alternatively, conspiracy, to the detriment of the State.”

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Chávez, who has been on trial since March 2025, faces a potential 25-year prison sentence. She has been staying for 18 days at the Mexican Embassy residence in Lima, awaiting a safe-conduct pass to leave the country.

The Peruvian government announced on November 7 that it intends to seek a review of regional diplomatic asylum regulations, following Mexico’s decision to grant protection to Chávez.

Relations between the two countries deteriorated after Castillo’s ousting, when Mexico granted asylum to the former president’s wife and two children. Since then, both governments have withdrawn their ambassadors.

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International

Paraguay launches dengue vaccination for children in high-risk areas

Dengue fever, transmitted by the Aedes aegypti mosquito, remains a persistent threat in tropical and subtropical countries such as Paraguay, where it claimed the lives of 132 people among nearly 100,000 infections during the 2023–2024 Southern Hemisphere summer, according to official data. However, that figure was lower than the record set in the 2012–2013 season, when 252 deaths were reported among roughly 130,000 infections.

“Today marks a very important step toward protecting our children and bringing peace of mind to families,” Paraguay’s Minister of Health, María Teresa Barán Wasilchuk, said in a speech on Wednesday.

The vaccine will be administered to children between 6 and 8 years old in municipalities with the highest incidence of dengue cases in the past five years. Authorities will use TAK-003 (Qdenga), developed by Takeda—one of Japan’s largest pharmaceutical companies—which was approved by the World Health Organization (WHO) in 2024.

“We celebrate this step, which positions Paraguay as a country with one of the most robust immunization programs,” said Héctor Castro, director of the Acosta Ñu Pediatric Hospital. “We will work tirelessly to ensure this government decision becomes a success in the fight against this scourge.”

Vaccinating children against dengue “is not only a historic and public health milestone, but also a humanitarian one,” Castro added during remarks delivered at the hospital in San Lorenzo, near the capital, Asunción.

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