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Chilean mother travels 1,300 kilometers on foot to try to save her son with dystrophy

In the city of Ancud, one of the most important of the Chiloe archipelago, in the south of Chile, there is no hospital, so if one of its about 165,000 inhabitants gets sick, he must take the ferry and travel about 50 kilometers to reach the neighboring city of Puerto Montt, the nearest place.

Camila Gómez, a young mother, decided to take a trip but this time to walk to the Palacio de la Moneda, in Santiago de Chile, more than 1,300 kilometers from her home, to raise funds and make visible the drama of her son Tomás, who suffers from Duchenne muscular dystrophy, one of the so-called “rare diseases”, which almost no one worries and no one finances.

Its main objective is to help collect the nearly four million dollars that costs a vital treatment that does not exist in Chile – it must be imported from the United States – and that would help stop the progression of the child’s ailment, barely five years old.

“Tomás has Duchenne muscular dystrophy in a neuromuscular degenerative disease that gradually weakens the muscles, the respiratory system and the heart, which leads to premature death,” he explains in one of the highs of his journey.

“In Chile there is no type of treatment for this disease, but in the United States there are several treatment options, there are three and here they told me that it was not possible to cover a medicine that is abroad. And it motivated me to do this walk, this physical effort,” he adds.

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Gómez regrets that no one, neither the precarious public service nor the greedy private insurance, has offered him an exit in the country, although his son “does have options abroad.

“That’s why we decided to walk, to make the disease visible and take it very particularly to collect the 3.9 million dollars that the drug that is administered for the only time in a lifetime costs. So far (its administration) is approved until the age of four and five. Tomás is five and a half years old. So we are against time,” she urges in anguish.

Even so, hope has not been erased from his face and sometimes, especially when asked about solidarity, he outlines a smile of love and trust.

“We are all aware of the great health deficit, that Chile is a country very backward in health, unlike other more developed countries and we are all aware of that. So people have empathized, supported and contributed to the campaign,” he says.

Along with this mother, who left Ancud on April 28, her husband and father of Tomás, Alex Ross, a friend Álvaro Neira and Marco Reyes, president of the Duchenne Families corporation in Chile, who has two teenage children with the same disease and who proposed the Ross Gómez family to the odyssey.

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“I am the logistical support for Camila and Marco who have been walking from Chiloé. I assist them on the way, usually with a change of clothes, food, food, I manage the lodging,” explains Alex.

“(Camila) Walk through Tomás, because we are against time, but he also does it so that no mom has to do it,” he says.

Camila’s third objective is to be able to speak in person with the President of the Republic, Gabriel Boric, to urge him to promote a bill to Congress that allows improving the coverage of rare diseases in the country, and medical assistance in rural areas, abandoned by the state in a country where the privatization of health care prevails.

Neira joined the walk because he was moved by Tomás’ suffering but also because he is worried that “in Chile we do not have the means, a clinic where we can have these medicines, that we have to go to this.”

Tomás was diagnosed in March 2023 with Duchenne’s syndrome, the most common but also most severe form of this type of muscular dystrophy that is triggered by a defective gene that affects dystrophin, a protein that helps keep the body’s cells intact.

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It causes problems when walking and running, fatigue, learning difficulties and heart and respiratory deficiencies, and those who suffer from it usually have a life expectancy of between 20 or 30 years in difficult conditions.

With more than 700 kilometers of love in her terrified legs, this mother hopes to arrive in the Chilean capital at the end of this month of May from Chiloe, where there is a movement so that the spending on a bridge that they believe is unnecessary, is dedicated to the construction of a perentory hospital

International

Bill Gates Admits “Serious Mistake” Over Epstein Ties

Bill Gates acknowledged he made a “serious mistake” by associating with convicted sex offender Jeffrey Epstein, telling employees at his philanthropic organization that he regretted the relationship and its impact on the foundation’s work. He also admitted to having had affairs with two Russian women but denied any involvement in Epstein’s criminal activities.

The Microsoft co-founder is among several high-profile figures mentioned in documents from the so-called Epstein files released by the U.S. Department of Justice. The records reference personal associations, financial dealings and private communications involving Epstein’s network.

During a staff-wide meeting at the Bill & Melinda Gates Foundation on Tuesday, a recording of which was reviewed by The Wall Street Journal, Gates said he regretted spending time with Epstein and arranging meetings between foundation executives and the financier.

“It was a big mistake to spend time with Epstein,” Gates told employees, adding that the association had harmed the foundation’s reputation.

In a draft email released by the Justice Department, Epstein claimed that Gates had engaged in extramarital relationships. The message alleged that their interactions ranged from assisting Gates in obtaining drugs to cope with personal matters to facilitating meetings with married women.

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Gates, 70, acknowledged during the internal meeting that he had two affairs but firmly denied any connection to Epstein’s crimes.

The revelations come amid renewed scrutiny over Epstein’s network of prominent contacts following the public release of investigative files.

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International

Stephen Hawking Photo Appears in Newly Released Epstein Documents

A previously unseen image of renowned theoretical physicist Stephen Hawking has surfaced among documents recently released by the U.S. Department of Justice as part of its investigation into financier Jeffrey Epstein.

The photograph shows the British scientist, who died in 2018 at age 76, smiling while seated between two women wearing swimsuits in what appears to be a beach setting. In the image, Hawking appears to be holding a drink while reclining on a sun lounger.

The exact context of the photo — including the date and location — has not been officially confirmed. However, it is known that Hawking attended a scientific conference funded by Epstein in March 2006 in the U.S. Virgin Islands, where several academics participated in events and activities organized by the financier prior to his criminal charges.

No Allegations Against Hawking

Hawking’s appearance in the files does not imply involvement in illegal or inappropriate conduct, and there are no formal charges linking him to any criminal activity in connection with the Epstein case.

The physicist is mentioned in numerous documents, primarily in relation to his participation in academic events associated with Epstein’s efforts to build connections with prominent figures in the scientific community.

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The release of the files has prompted renewed public interest in the scope of Epstein’s network, though inclusion in the documents alone does not indicate wrongdoing.

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International

Larry Summers Steps Down from Harvard Role Amid Epstein Controversy

Former U.S. Treasury Secretary Larry Summers has resigned from his academic post at Harvard University due to his ties to convicted sex offender Jeffrey Epstein, the university said Wednesday.

Summers, who led the U.S. Treasury Department under former President Bill Clinton and later served as president of Harvard in the early 2000s, appeared in Justice Department files related to Epstein as having maintained extensive exchanges with the late financier.

According to a university statement, “Harvard Kennedy School Dean Jeremy Weinstein has accepted the resignation of Professor Lawrence H. Summers from his role as co-director of the Mossavar-Rahmani Center for Business and Government,” noting that the decision was connected to the Epstein case.

Meanwhile, Clinton is scheduled to testify Friday before a congressional committee regarding the Epstein matter. Former Secretary of State Hillary Clinton is expected to appear before the panel on Thursday.

The development marks another high-profile repercussion stemming from renewed scrutiny surrounding Epstein’s network of associations.

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