International
The mother who decided to walk 1,300 kilometers in Chile to get an expensive medicine and save her son from a serious illness
Walking the more than 1,300 kilometers that separate the commune of Ancud in Chiloé from the Palacio de la Moneda in Santiago in Chile may seem like a chimera to many.
Not so for the Chilean Camila Gómez, a mother who completes this challenge with the goal of raising 3.5 billion pesos (US$3.7 million) to buy a vital medicine for her five-year-old son and make visible the cause of patients with rare diseases in Chile.
Time is pressing. His son, Tomás Ross, suffers from Duchenne muscular dystrophy, a severe ailment that worsens quickly. If you do not receive the drug as soon as possible, it will be difficult to stop the disease.
“It is a very expensive medicine and a disease that in Chile has no opportunities, but there are opportunities abroad,” Gómez tells BBC Mundo.
Thousands of Chileans turned to Gómez’s case, whose determination went viral in the country.
The mother left Ancud on April 28 with Marcos Reyes, president of the Duchenne Families corporation in Chile, who also has two teenage children with the disease.
It was precisely Reyes who suggested the idea of the walk to Gómez.
“We walk for all the children and families who suffer from the disease. Time is running out,” Gómez said in an interview with the 24-hour national news.
The goal, in addition to raising funds and making their causes visible, is to get Chilean President Gabriel Boric to “bring a bill to Congress” that allows to improve the coverage of rare diseases in the country, as Reyes explains to BBC Mundo.
“He was born healthy, without any problem or complication, until at the age of four we realized that he had difficulty climbing stairs and performing some types of physical activity,” Gómez said on social networks.
“Until that moment there was no cure, but for a few months we have had a hope; in the United States the first drug was approved whose objective is to stop the progression of the disease,” Gómez continued.
This drug is marketed as elevidys and is administered intravenously in patients who, like Ross, are between four and five years old.
There are several types of muscular dystrophy, although Duchenne is the most common form and also one of the most severe.
The disease is unleashed due to a defective gene that results in the absence of dystrophin, a protein that helps keep the body’s cells intact.
Patients can develop problems when walking and running, fatigue, learning difficulties and cardiac and respiratory deficiencies due to the weakening of vital muscles in these functions.
The British national health services indicate that it normally affects young children and that people with this ailment usually live until they are 20 or 30 years old.
Gómez talks to BBC Mundo this Sunday, May 12, in “a little pause, while eating a little.”
It has already been more than two weeks of a journey that has about half left.
At the time of speaking, he is at the Púa toll booth, in the Araucanía Region, still more than 600 kilometers from the capital.
“This journey is crazy, but we think it’s turning out more than imagined,” says Gómez.
The first week was hard, but the mother says that with the passing of the days everything is getting easier.
“It’s impressive how the body adapts to the rhythm and it’s not so terrible anymore,” he says.
He is also helped by the emotional impulse he received by surprise last Friday, May 10 on the occasion of Mother’s Day.
Her son Tomás found her in the city of Temuco, accompanied by her father Alex Ross, to give her a hug, a bouquet of flowers and a recharge of encouragement.
“The boy knows that his mother gathers talks to find him a remedy, but he was only there for a while and turned to Chiloé. Because of the disease he has, he shouldn’t be cold,” Alex Ross tells BBC Mundo.
By May 10, the family had managed to raise more than half of the funds.
Gómez documents his tour on his social media accounts, where he receives thousands of messages of support, hundreds of thousands of views in his videos, the attention of the press and the company of other walkers who join in some sections of his tour.
“This has grown so much that I must help with the whole logistical issue: I look for accommodation, food, I assist them on the route with dry clothes, I look for podiatrists, kinesiologists and medicines,” says Alex Ross.
Camila Gómez and Marcos Reyes expect to arrive in La Moneda at the end of May, depending on the weather conditions.
A long way to make its causes visible that goes beyond the more than 1,300 kilometers that they will have traveled at the end of their journey.
International
Fire in India’s Jhansi Hospital kills 10 newborns
At least 10 newborns have died following a fire in the neonatal unit of a hospital in Jhansi, India, which was attributed to a faulty oxygen machine, authorities reported on Saturday, adding that 39 babies were rescued.
“Unfortunately, 10 infants have died,” said Brajesh Pathak, Deputy Chief Minister of Uttar Pradesh, regarding the fire that occurred on Friday night.
The fire started at 10:30 PM (17:00 GMT) at the Maharani Lakshmibai Medical University in the northern state of Uttar Pradesh.
The rescued babies, all only a few days old, were moved to another area of the hospital for treatment.
Dr. Narendra Senga, the director of a medical faculty attached to the hospital, also confirmed the death toll of 10 infants.
International
Seven british citizens arrested in Spain for hashish trafficking 1.2 tons seized
Seven British citizens were arrested in Spain for hashish trafficking in an operation that led to the seizure of 1.2 tons of the drug, which is made from cannabis resin, the Spanish Ministry of the Interior reported on Saturday.
“National Police agents, in collaboration with the National Crime Agency (NCA) of the UK, have dismantled an organization allegedly dedicated to transporting drugs in trucks in Marbella and Elche,” the ministry stated in a press release.
“Agents seized 1,200 kilos of hashish and arrested seven British citizens,” the report specified.
The drugs were found in Marbella and Fuengirola, in southern Spain, as well as in Elche, in the southeastern region.
Part of the hashish was hidden in “large plastic barrels filled with fine mortar sand.”
In addition, the police seized over €63,000 in cash, five passenger vehicles, and a heavy-duty truck.
All of the detainees have been placed in pretrial detention.
Spain serves as the gateway for most of the hashish sold in Europe, due to its proximity to North Africa, the main production area.
In 2022, Spain seized 324.7 tons of hashish, according to the latest available official annual data.
International
Sinaloa cartel network dismantled in Spain following kidnapping and ransom incident
Fourteen members of the Mexican Sinaloa drug cartel were arrested in Spain following an investigation that began with the kidnapping and murder of an associate, the Spanish National Police announced on Sunday.
“The dismantled criminal network, based in Catalonia, is allegedly involved in the kidnapping and death of a man whose body was found in a wooded area of the region,” explained the National Police in a statement. The victim had traveled from Italy to meet with some of the leaders of the gang.
The criminal organization was “mainly composed of Mexican individuals” and was “linked to the Mexican Sinaloa cartel.”
The victim, a 46-year-old man, was allegedly working for the organization and had traveled to Barcelona from Italy to meet with leaders of the criminal network. The kidnapping took place between late May and June, and the victim’s family in Kosovo alerted the police after receiving a ransom demand of €240,000 (approximately $253,000). The family paid part of the ransom, $32,000 in cryptocurrency.
The victim’s body, whose nationality was not disclosed, was found in August in a forest, showing signs of violence and in an advanced state of decomposition.
The arrested individuals are allegedly connected to drug trafficking, money laundering, kidnapping, and murder. They received packages from Mexico containing methamphetamine soaked into pieces of clothing, which were sent to Catalonia. Once in Spain, they extracted the drug in a laboratory they operated.
The Sinaloa cartel is named after the northwestern Mexican state where it was founded and remains one of the most important criminal organizations in the world, despite the incarceration of two of its historic leaders, Joaquín “El Chapo” Guzmán and Ismael “Mayo” Zambada, in the United States.
Fire in India’s Jhansi Hospital kills 10 newborns
Seven british citizens arrested in Spain for hashish trafficking 1.2 tons seized
Sinaloa cartel network dismantled in Spain following kidnapping and ransom incident
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