International
The mother who decided to walk 1,300 kilometers in Chile to get an expensive medicine and save her son from a serious illness
Walking the more than 1,300 kilometers that separate the commune of Ancud in Chiloé from the Palacio de la Moneda in Santiago in Chile may seem like a chimera to many.
Not so for the Chilean Camila Gómez, a mother who completes this challenge with the goal of raising 3.5 billion pesos (US$3.7 million) to buy a vital medicine for her five-year-old son and make visible the cause of patients with rare diseases in Chile.
Time is pressing. His son, Tomás Ross, suffers from Duchenne muscular dystrophy, a severe ailment that worsens quickly. If you do not receive the drug as soon as possible, it will be difficult to stop the disease.
“It is a very expensive medicine and a disease that in Chile has no opportunities, but there are opportunities abroad,” Gómez tells BBC Mundo.
Thousands of Chileans turned to Gómez’s case, whose determination went viral in the country.
The mother left Ancud on April 28 with Marcos Reyes, president of the Duchenne Families corporation in Chile, who also has two teenage children with the disease.
It was precisely Reyes who suggested the idea of the walk to Gómez.
“We walk for all the children and families who suffer from the disease. Time is running out,” Gómez said in an interview with the 24-hour national news.
The goal, in addition to raising funds and making their causes visible, is to get Chilean President Gabriel Boric to “bring a bill to Congress” that allows to improve the coverage of rare diseases in the country, as Reyes explains to BBC Mundo.
“He was born healthy, without any problem or complication, until at the age of four we realized that he had difficulty climbing stairs and performing some types of physical activity,” Gómez said on social networks.
“Until that moment there was no cure, but for a few months we have had a hope; in the United States the first drug was approved whose objective is to stop the progression of the disease,” Gómez continued.
This drug is marketed as elevidys and is administered intravenously in patients who, like Ross, are between four and five years old.
There are several types of muscular dystrophy, although Duchenne is the most common form and also one of the most severe.
The disease is unleashed due to a defective gene that results in the absence of dystrophin, a protein that helps keep the body’s cells intact.
Patients can develop problems when walking and running, fatigue, learning difficulties and cardiac and respiratory deficiencies due to the weakening of vital muscles in these functions.
The British national health services indicate that it normally affects young children and that people with this ailment usually live until they are 20 or 30 years old.
Gómez talks to BBC Mundo this Sunday, May 12, in “a little pause, while eating a little.”
It has already been more than two weeks of a journey that has about half left.
At the time of speaking, he is at the Púa toll booth, in the Araucanía Region, still more than 600 kilometers from the capital.
“This journey is crazy, but we think it’s turning out more than imagined,” says Gómez.
The first week was hard, but the mother says that with the passing of the days everything is getting easier.
“It’s impressive how the body adapts to the rhythm and it’s not so terrible anymore,” he says.
He is also helped by the emotional impulse he received by surprise last Friday, May 10 on the occasion of Mother’s Day.
Her son Tomás found her in the city of Temuco, accompanied by her father Alex Ross, to give her a hug, a bouquet of flowers and a recharge of encouragement.
“The boy knows that his mother gathers talks to find him a remedy, but he was only there for a while and turned to Chiloé. Because of the disease he has, he shouldn’t be cold,” Alex Ross tells BBC Mundo.
By May 10, the family had managed to raise more than half of the funds.
Gómez documents his tour on his social media accounts, where he receives thousands of messages of support, hundreds of thousands of views in his videos, the attention of the press and the company of other walkers who join in some sections of his tour.
“This has grown so much that I must help with the whole logistical issue: I look for accommodation, food, I assist them on the route with dry clothes, I look for podiatrists, kinesiologists and medicines,” says Alex Ross.
Camila Gómez and Marcos Reyes expect to arrive in La Moneda at the end of May, depending on the weather conditions.
A long way to make its causes visible that goes beyond the more than 1,300 kilometers that they will have traveled at the end of their journey.
International
Austrian man arrested in Croatia with deceased woman as passenger in his car
A 65-year-old Austrian citizen was arrested at a border checkpoint in Croatia after attempting to enter the country in his car with a deceased woman sitting as a passenger, police announced on Tuesday.
The man was detained in a routine check in late November in Gunja, a border area separating Bosnia from Croatia, the police told AFP. Suspicious because they saw “no consciousness or movement” from the passenger, Croatian officers called a doctor, who confirmed the death of the 83-year-old woman, also Austrian, according to her identification.
The woman’s relationship to the suspect is unknown. She had died in Bosnia, and the man intended to repatriate her body to Austria to “avoid the formalities related to transporting a corpse,” according to the police. Croatian media reported that the man was her legal guardian.
Once her death was confirmed, a funeral service took charge of the body.
International
Colombian nationals arrested for human trafficking and disappearance of migrant boat
Colombian authorities arrested two nationals accused of the illegal trafficking of migrants to the United States and of endangering lives due to the disappearance of a boat with 40 people aboard, U.S. Department of Justice officials reported on Tuesday.
Hernando Manuel de la Cruz Rivera Orjuela, 52, and Luis Enrique Linero Pinto, 40, both Colombian citizens, were arrested on December 13 in Colombia at the request of the United States for their alleged involvement in a “transnational human trafficking operation,” the department said in a statement.
According to the charges, the detainees were transporting migrants to San Andrés Island in the Caribbean, where they would then be taken by boat to Nicaragua. The goal was to reach the United States through Central America and Mexico.
The accused are said to have advised the migrants on how to reach San Andrés Island, where they personally received them, arranged accommodations, and “took them to the boats that transported them to Nicaragua so they could enter the United States illegally,” the statement reads.
“These defendants put several migrants on the boat that disappeared off the coast of Nicaragua in 2023,” said Deputy Attorney General Nicole M. Argentieri, head of the U.S. Department of Justice’s Criminal Division, as cited in the statement.
Both men are “directly and personally responsible for the illicit trafficking of migrants on that vessel,” according to the indictment dated October 23.
International
Homemade landmine explosion in Michoacán kills two soldiers, injures five
Two soldiers were killed and five others were injured by the explosion of homemade landmines planted by a criminal group in a mountainous area of the Mexican state of Michoacán (west), the Secretary of Defense reported on Tuesday.
The attack occurred on Monday morning in the municipality of Cotija, a border area between Michoacán and the state of Jalisco, when the military was conducting a reconnaissance mission after receiving information about an armed camp in the area, explained Secretary General Ricardo Trevilla.
“At that moment, an improvised explosive device detonated. Unfortunately, two soldiers lost their lives, and five others were injured,” the military leader detailed. The affected soldiers were airlifted to hospitals in the region by a military helicopter, while the rest of the team continued with the reconnaissance of the area.
Trevilla stated that before the explosion, the military unit had located the dismembered bodies of three people, and upon continuing the mission, they confirmed the camp was abandoned.
Asked about the individuals responsible for placing the explosives, the general suggested they could be criminals linked to the local group Cárteles Unidos, which operates in Michoacán and uses these tactics in their territorial dispute with the Jalisco New Generation Cartel, one of the most powerful criminal organizations in the country.
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