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Chilean mother travels 1,300 kilometers on foot to try to save her son with dystrophy

In the city of Ancud, one of the most important of the Chiloe archipelago, in the south of Chile, there is no hospital, so if one of its about 165,000 inhabitants gets sick, he must take the ferry and travel about 50 kilometers to reach the neighboring city of Puerto Montt, the nearest place.

Camila Gómez, a young mother, decided to take a trip but this time to walk to the Palacio de la Moneda, in Santiago de Chile, more than 1,300 kilometers from her home, to raise funds and make visible the drama of her son Tomás, who suffers from Duchenne muscular dystrophy, one of the so-called “rare diseases”, which almost no one worries and no one finances.

Its main objective is to help collect the nearly four million dollars that costs a vital treatment that does not exist in Chile – it must be imported from the United States – and that would help stop the progression of the child’s ailment, barely five years old.

“Tomás has Duchenne muscular dystrophy in a neuromuscular degenerative disease that gradually weakens the muscles, the respiratory system and the heart, which leads to premature death,” he explains in one of the highs of his journey.

“In Chile there is no type of treatment for this disease, but in the United States there are several treatment options, there are three and here they told me that it was not possible to cover a medicine that is abroad. And it motivated me to do this walk, this physical effort,” he adds.

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Gómez regrets that no one, neither the precarious public service nor the greedy private insurance, has offered him an exit in the country, although his son “does have options abroad.

“That’s why we decided to walk, to make the disease visible and take it very particularly to collect the 3.9 million dollars that the drug that is administered for the only time in a lifetime costs. So far (its administration) is approved until the age of four and five. Tomás is five and a half years old. So we are against time,” she urges in anguish.

Even so, hope has not been erased from his face and sometimes, especially when asked about solidarity, he outlines a smile of love and trust.

“We are all aware of the great health deficit, that Chile is a country very backward in health, unlike other more developed countries and we are all aware of that. So people have empathized, supported and contributed to the campaign,” he says.

Along with this mother, who left Ancud on April 28, her husband and father of Tomás, Alex Ross, a friend Álvaro Neira and Marco Reyes, president of the Duchenne Families corporation in Chile, who has two teenage children with the same disease and who proposed the Ross Gómez family to the odyssey.

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“I am the logistical support for Camila and Marco who have been walking from Chiloé. I assist them on the way, usually with a change of clothes, food, food, I manage the lodging,” explains Alex.

“(Camila) Walk through Tomás, because we are against time, but he also does it so that no mom has to do it,” he says.

Camila’s third objective is to be able to speak in person with the President of the Republic, Gabriel Boric, to urge him to promote a bill to Congress that allows improving the coverage of rare diseases in the country, and medical assistance in rural areas, abandoned by the state in a country where the privatization of health care prevails.

Neira joined the walk because he was moved by Tomás’ suffering but also because he is worried that “in Chile we do not have the means, a clinic where we can have these medicines, that we have to go to this.”

Tomás was diagnosed in March 2023 with Duchenne’s syndrome, the most common but also most severe form of this type of muscular dystrophy that is triggered by a defective gene that affects dystrophin, a protein that helps keep the body’s cells intact.

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It causes problems when walking and running, fatigue, learning difficulties and heart and respiratory deficiencies, and those who suffer from it usually have a life expectancy of between 20 or 30 years in difficult conditions.

With more than 700 kilometers of love in her terrified legs, this mother hopes to arrive in the Chilean capital at the end of this month of May from Chiloe, where there is a movement so that the spending on a bridge that they believe is unnecessary, is dedicated to the construction of a perentory hospital

International

Argentina’s Milei opens dialogue with parties to push “Second-Generation Reforms”

Empowered by his midterm election victory, Argentine President Javier Milei is relaunching his administration and opening dialogue with other political forces, focusing on three major reforms: tax, labor, and pension systems, which form the core of his ultra-liberal agenda.

The government approached the legislative elections amid financial turbulence, which eased following Milei’s triumph. It now faces the challenge of reviving a stagnant economy while consolidating its political project.

The first step will be negotiating the country’s first budget law in two years, with the vote likely postponed until December, when the government expects to have more favorable numbers in Congress.

Milei’s party will have an expanded bloc, but it will not gain full control of the legislature. Preliminary results indicate that, starting December 10, the administration will hold around 100 of 257 seats in the Chamber of Deputies and 19 of 72 seats in the Senate.

To advance his so-called “second-generation reforms” in 2026, Milei has called for dialogue with provincial governors and other political parties.

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International

Melissa leaves path of destruction in Caribbean, 735,000 evacuated in Cuba

Hurricane Melissa caused significant damage and widespread flooding in Cuba on Wednesday (October 29, 2025), following its devastating passage through Jamaica as the strongest storm to make landfall in the island in 90 years.

After striking Jamaica as a Category 5 hurricane with violent winds and torrential rains, the Jamaican government declared the country a disaster zone. In Haiti, the cyclone has already caused 20 fatalities, although authorities expect the number to rise due to an unknown number of missing persons.

In Jamaica, there were three deaths, the same number reported in Panama, and one death in the Dominican Republic.

Melissa then made landfall in eastern Cuba with slightly reduced strength and maximum sustained winds of 195 km/h. “It has been a very difficult night. Significant damage has occurred, and Hurricane Melissa is still over Cuban territory,” said President Miguel Díaz-Canel in his first assessment of the situation.

In Santiago de Cuba, the second-largest city in the eastern region, the storm flooded homes and streets and knocked down trees, utility poles, and power lines. Cuban authorities reported that around 735,000 people were evacuated, particularly in the provinces of Santiago de Cuba, Holguín, and Guantánamo.

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Jamaica faces widespread destruction as hurricane Melissa hits the island

Jamaican authorities reported on Tuesday that Hurricane Melissa, which weakened to a Category 4 storm just hours after making landfall in Jamaica, caused damage to six hospitals and left roads flooded, along with downed power lines and fallen trees, according to preliminary data.

Videos shared by local media and social media users show strong gusts of wind impacting Kingston in the southeast and southern municipalities of the island, causing power outages and damaging the roofs of several homes.

Flooded roads and damage to several medical institutions have also been reported. The Bustamante Children’s Hospital in Kingston experienced blocked access after a utility pole fell onto its premises. Part of the Savanna-la-Mar Public General Hospital in Westmoreland also suffered severe damage when hurricane-force winds ripped off its roof.

Additionally, Health and Wellness Minister Christopher Tufton reported on Tuesday that four hospitals sustained “significant damage” due to Melissa. The affected medical facilities are Noel Holmes Hospital in Hanover, Black River Hospital in Saint Elizabeth, Cornwall Regional Hospital in Saint James, and Falmouth Hospital in Trelawny.

At Cornwall Regional Hospital, damage was limited to staff areas, which have since been repurposed for other uses. The Ministry stated that it is actively coordinating with the Southern Regional Health Authority and emergency services to stabilize hospital operations.

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