International
Chilean mother travels 1,300 kilometers on foot to try to save her son with dystrophy
In the city of Ancud, one of the most important of the Chiloe archipelago, in the south of Chile, there is no hospital, so if one of its about 165,000 inhabitants gets sick, he must take the ferry and travel about 50 kilometers to reach the neighboring city of Puerto Montt, the nearest place.
Camila Gómez, a young mother, decided to take a trip but this time to walk to the Palacio de la Moneda, in Santiago de Chile, more than 1,300 kilometers from her home, to raise funds and make visible the drama of her son Tomás, who suffers from Duchenne muscular dystrophy, one of the so-called “rare diseases”, which almost no one worries and no one finances.
Its main objective is to help collect the nearly four million dollars that costs a vital treatment that does not exist in Chile – it must be imported from the United States – and that would help stop the progression of the child’s ailment, barely five years old.
“Tomás has Duchenne muscular dystrophy in a neuromuscular degenerative disease that gradually weakens the muscles, the respiratory system and the heart, which leads to premature death,” he explains in one of the highs of his journey.
“In Chile there is no type of treatment for this disease, but in the United States there are several treatment options, there are three and here they told me that it was not possible to cover a medicine that is abroad. And it motivated me to do this walk, this physical effort,” he adds.
Gómez regrets that no one, neither the precarious public service nor the greedy private insurance, has offered him an exit in the country, although his son “does have options abroad.
“That’s why we decided to walk, to make the disease visible and take it very particularly to collect the 3.9 million dollars that the drug that is administered for the only time in a lifetime costs. So far (its administration) is approved until the age of four and five. Tomás is five and a half years old. So we are against time,” she urges in anguish.
Even so, hope has not been erased from his face and sometimes, especially when asked about solidarity, he outlines a smile of love and trust.
“We are all aware of the great health deficit, that Chile is a country very backward in health, unlike other more developed countries and we are all aware of that. So people have empathized, supported and contributed to the campaign,” he says.
Along with this mother, who left Ancud on April 28, her husband and father of Tomás, Alex Ross, a friend Álvaro Neira and Marco Reyes, president of the Duchenne Families corporation in Chile, who has two teenage children with the same disease and who proposed the Ross Gómez family to the odyssey.
“I am the logistical support for Camila and Marco who have been walking from Chiloé. I assist them on the way, usually with a change of clothes, food, food, I manage the lodging,” explains Alex.
“(Camila) Walk through Tomás, because we are against time, but he also does it so that no mom has to do it,” he says.
Camila’s third objective is to be able to speak in person with the President of the Republic, Gabriel Boric, to urge him to promote a bill to Congress that allows improving the coverage of rare diseases in the country, and medical assistance in rural areas, abandoned by the state in a country where the privatization of health care prevails.
Neira joined the walk because he was moved by Tomás’ suffering but also because he is worried that “in Chile we do not have the means, a clinic where we can have these medicines, that we have to go to this.”
Tomás was diagnosed in March 2023 with Duchenne’s syndrome, the most common but also most severe form of this type of muscular dystrophy that is triggered by a defective gene that affects dystrophin, a protein that helps keep the body’s cells intact.
It causes problems when walking and running, fatigue, learning difficulties and heart and respiratory deficiencies, and those who suffer from it usually have a life expectancy of between 20 or 30 years in difficult conditions.
With more than 700 kilometers of love in her terrified legs, this mother hopes to arrive in the Chilean capital at the end of this month of May from Chiloe, where there is a movement so that the spending on a bridge that they believe is unnecessary, is dedicated to the construction of a perentory hospital
International
Mexico Arrests CJNG Leader “El Jardinero” in Nayarit
Mexican authorities arrested Audias Flores, known as “El Jardinero,” on Monday during a naval operation in the western state of Nayarit, delivering another major blow to the Cártel Jalisco Nueva Generación (CJNG).
Flores was considered one of the top regional leaders within the cartel and had reportedly overseen criminal operations along Mexico’s Pacific coast. Security analysts viewed him as a potential successor to slain drug kingpin Nemesio Oseguera.
The arrest was carried out by Mexico’s Navy Special Forces in a planned operation, according to Security Minister Omar García Harfuch.
The United States Department of the Treasury had previously identified Flores as a “significant foreign narcotics trafficker,” while U.S. authorities offered a reward of up to $5 million for information leading to his capture and extradition.
A U.S. grand jury indicted Flores in 2021 on charges including conspiracy to distribute cocaine and heroin.
His capture comes months after the reported death of “El Mencho,” an operation that Mexican authorities considered a priority due to the cartel leader’s alleged involvement in a 2020 assassination attempt against García Harfuch.
International
Suspect Armed With Shotgun and Knives Detained at White House Correspondents Dinner
U.S. authorities confirmed Saturday that the suspect who stormed into the White House Correspondents’ Association Dinner while President Donald Trump was attending acted alone, adding that there is no ongoing threat to the public following the incident, which left one Secret Service agent injured.
Acting Metropolitan Police Department chief Jeff Carroll said during a press conference that the suspect was carrying “a shotgun, a handgun, and multiple knives” when he attempted to pass through a Secret Service security checkpoint inside the hotel lobby at approximately 8:36 p.m. local time.
“At this point, everything indicates that this was a lone actor, a lone gunman,” Carroll stated, adding that investigators have found no preliminary evidence suggesting the involvement of additional suspects.
During the exchange of gunfire inside the hotel corridors, the suspect was not struck by bullets but was subdued by law enforcement officers and later transported to a hospital for medical evaluation.
A member of the United States Secret Service Uniformed Division was shot during the incident, though the bullet was stopped by the officer’s ballistic vest, preventing serious injuries. The agent was taken to a hospital and is reportedly “in good spirits,” according to Carroll.
The shooting prompted the immediate evacuation of President Trump, Melania Trump, and several senior officials attending the event after multiple gunshots were heard outside the hotel’s main ballroom.
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