International
Chilean mother travels 1,300 kilometers on foot to try to save her son with dystrophy
In the city of Ancud, one of the most important of the Chiloe archipelago, in the south of Chile, there is no hospital, so if one of its about 165,000 inhabitants gets sick, he must take the ferry and travel about 50 kilometers to reach the neighboring city of Puerto Montt, the nearest place.
Camila Gómez, a young mother, decided to take a trip but this time to walk to the Palacio de la Moneda, in Santiago de Chile, more than 1,300 kilometers from her home, to raise funds and make visible the drama of her son Tomás, who suffers from Duchenne muscular dystrophy, one of the so-called “rare diseases”, which almost no one worries and no one finances.
Its main objective is to help collect the nearly four million dollars that costs a vital treatment that does not exist in Chile – it must be imported from the United States – and that would help stop the progression of the child’s ailment, barely five years old.
“Tomás has Duchenne muscular dystrophy in a neuromuscular degenerative disease that gradually weakens the muscles, the respiratory system and the heart, which leads to premature death,” he explains in one of the highs of his journey.
“In Chile there is no type of treatment for this disease, but in the United States there are several treatment options, there are three and here they told me that it was not possible to cover a medicine that is abroad. And it motivated me to do this walk, this physical effort,” he adds.
Gómez regrets that no one, neither the precarious public service nor the greedy private insurance, has offered him an exit in the country, although his son “does have options abroad.
“That’s why we decided to walk, to make the disease visible and take it very particularly to collect the 3.9 million dollars that the drug that is administered for the only time in a lifetime costs. So far (its administration) is approved until the age of four and five. Tomás is five and a half years old. So we are against time,” she urges in anguish.
Even so, hope has not been erased from his face and sometimes, especially when asked about solidarity, he outlines a smile of love and trust.
“We are all aware of the great health deficit, that Chile is a country very backward in health, unlike other more developed countries and we are all aware of that. So people have empathized, supported and contributed to the campaign,” he says.
Along with this mother, who left Ancud on April 28, her husband and father of Tomás, Alex Ross, a friend Álvaro Neira and Marco Reyes, president of the Duchenne Families corporation in Chile, who has two teenage children with the same disease and who proposed the Ross Gómez family to the odyssey.
“I am the logistical support for Camila and Marco who have been walking from Chiloé. I assist them on the way, usually with a change of clothes, food, food, I manage the lodging,” explains Alex.
“(Camila) Walk through Tomás, because we are against time, but he also does it so that no mom has to do it,” he says.
Camila’s third objective is to be able to speak in person with the President of the Republic, Gabriel Boric, to urge him to promote a bill to Congress that allows improving the coverage of rare diseases in the country, and medical assistance in rural areas, abandoned by the state in a country where the privatization of health care prevails.
Neira joined the walk because he was moved by Tomás’ suffering but also because he is worried that “in Chile we do not have the means, a clinic where we can have these medicines, that we have to go to this.”
Tomás was diagnosed in March 2023 with Duchenne’s syndrome, the most common but also most severe form of this type of muscular dystrophy that is triggered by a defective gene that affects dystrophin, a protein that helps keep the body’s cells intact.
It causes problems when walking and running, fatigue, learning difficulties and heart and respiratory deficiencies, and those who suffer from it usually have a life expectancy of between 20 or 30 years in difficult conditions.
With more than 700 kilometers of love in her terrified legs, this mother hopes to arrive in the Chilean capital at the end of this month of May from Chiloe, where there is a movement so that the spending on a bridge that they believe is unnecessary, is dedicated to the construction of a perentory hospital
International
Trump says Jimmy Kimmel show suspension due to poor ratings, not politics
U.S. President Donald Trump dismissed any political motive behind ABC’s suspension of Jimmy Kimmel’s show, stating that the decision is due to “poor viewership ratings” and not a reaction to Kimmel’s comments about the death of Charlie Kirk.
The suspension of Kimmel’s program was announced yesterday and coincided with the comedian’s remarks regarding Kirk’s death and the reactions of prominent Republican figures in the United States.
However, Trump, on his social media platform Truth Social, emphasized that the cancellations of both Kimmel’s and Stephen Colbert’s shows are due to low ratings and limited audience reach.
“Good news for the United States: Jimmy Kimmel’s show, with terrible ratings, has been canceled! Congratulations to ABC for finally having the courage to make this decision. Kimmel has no talent, and his ratings are even worse than Colbert’s, if that’s possible. Now only Jimmy and Seth remain, two failures, on the fake news network NBC. Their ratings are also catastrophic,” Trump wrote.
ABC announced on Wednesday that Jimmy Kimmel’s variety show will be taken off the air “indefinitely,” following threats of legal action from the U.S. government after the host made comments on the political repercussions of conservative activist Charlie Kirk’s assassination.
International
Padilla and Durbin seek oversight as deportation of Guatemalan minors sparks legal concerns
Democratic Senators Alex Padilla and Dick Durbin have demanded explanations from President Donald Trump’s administration regarding its plans to deport dozens of unaccompanied Guatemalan children in U.S. custody, without allowing them the chance to defend their immigration cases.
The lawmakers said on Wednesday that they have requested oversight hearings in the Senate to compel the White House to respond about the planned deportations, which were initially scheduled for August 31 but remain on hold due to a court order.
According to lawyers representing ten children aged 10 to 16 who filed a lawsuit, the administration violated due process by ignoring ongoing immigration cases and disregarding the special protections granted to minors who crossed the border from Mexico alone.
Under the Trafficking Victims Protection Reauthorization Act (TVPRA), unaccompanied immigrant children in the U.S. generally have the opportunity to appear before an immigration judge before being deported.
Padilla and Durbin’s demand comes after a report by the Government Accountability Project (GAP) alleged that the Trump administration misrepresented the safety of unaccompanied Guatemalan children under its care in order to justify removing them from the country.
The report revealed that at least 30 of the 327 Guatemalan children the administration attempted to deport “show signs” of having been victims of abuse, including death threats, gang violence, human trafficking, or expressed fear of returning to Guatemala.
However, Angie Salazar, director of the Office of Refugee Resettlement (ORR), which maintains custody of the children, testified in court under penalty of perjury that these children showed no evidence of abuse or neglect by a parent or guardian.
International
Trump criticizes Putin, calls Ukraine war “one of the deadliest conflicts”
U.S. President Donald Trump expressed his disappointment on Thursday with Russian President Vladimir Putin, stating that the war in Ukraine would have been easier to resolve due to the personal relationship they share, but has instead become one of the deadliest conflicts.
During a press conference following a meeting with British Prime Minister Keir Starmer at the official Chequers residence, Trump said he has successfully negotiated the end of seven armed conflicts, though he admitted that the war in Ukraine has been particularly challenging.
The president noted that he initially thought the Russia-Ukraine conflict would be “one of the easiest” to negotiate. However, he cautioned that “you never know in war” and often things “happen in the opposite way than expected.”
When asked why he was disappointed, Trump stated that Putin “is killing a lot of people,” adding that “Russian soldiers are being killed in greater numbers than Ukrainians.”
Prime Minister Starmer emphasized that the United Kingdom continues to work alongside the United States to halt “the killing in Ukraine.” He noted that in recent days, Putin has revealed his true intentions by ordering the most devastating attack since the invasion began in 2022, resulting in more civilian casualties and new violations of NATO airspace.
“President Trump and I have discussed how we can strengthen our defenses, maintain support for Ukraine, and increase international pressure to force Putin to accept a lasting peace agreement,” Starmer said.
The joint statement came on the second day of President Trump’s state visit to the United Kingdom, from the Chequers country residence in Aylesbury, about 60 kilometers from London.
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