International
Chilean mother travels 1,300 kilometers on foot to try to save her son with dystrophy
In the city of Ancud, one of the most important of the Chiloe archipelago, in the south of Chile, there is no hospital, so if one of its about 165,000 inhabitants gets sick, he must take the ferry and travel about 50 kilometers to reach the neighboring city of Puerto Montt, the nearest place.
Camila Gómez, a young mother, decided to take a trip but this time to walk to the Palacio de la Moneda, in Santiago de Chile, more than 1,300 kilometers from her home, to raise funds and make visible the drama of her son Tomás, who suffers from Duchenne muscular dystrophy, one of the so-called “rare diseases”, which almost no one worries and no one finances.
Its main objective is to help collect the nearly four million dollars that costs a vital treatment that does not exist in Chile – it must be imported from the United States – and that would help stop the progression of the child’s ailment, barely five years old.
“Tomás has Duchenne muscular dystrophy in a neuromuscular degenerative disease that gradually weakens the muscles, the respiratory system and the heart, which leads to premature death,” he explains in one of the highs of his journey.
“In Chile there is no type of treatment for this disease, but in the United States there are several treatment options, there are three and here they told me that it was not possible to cover a medicine that is abroad. And it motivated me to do this walk, this physical effort,” he adds.
Gómez regrets that no one, neither the precarious public service nor the greedy private insurance, has offered him an exit in the country, although his son “does have options abroad.
“That’s why we decided to walk, to make the disease visible and take it very particularly to collect the 3.9 million dollars that the drug that is administered for the only time in a lifetime costs. So far (its administration) is approved until the age of four and five. Tomás is five and a half years old. So we are against time,” she urges in anguish.
Even so, hope has not been erased from his face and sometimes, especially when asked about solidarity, he outlines a smile of love and trust.
“We are all aware of the great health deficit, that Chile is a country very backward in health, unlike other more developed countries and we are all aware of that. So people have empathized, supported and contributed to the campaign,” he says.
Along with this mother, who left Ancud on April 28, her husband and father of Tomás, Alex Ross, a friend Álvaro Neira and Marco Reyes, president of the Duchenne Families corporation in Chile, who has two teenage children with the same disease and who proposed the Ross Gómez family to the odyssey.
“I am the logistical support for Camila and Marco who have been walking from Chiloé. I assist them on the way, usually with a change of clothes, food, food, I manage the lodging,” explains Alex.
“(Camila) Walk through Tomás, because we are against time, but he also does it so that no mom has to do it,” he says.
Camila’s third objective is to be able to speak in person with the President of the Republic, Gabriel Boric, to urge him to promote a bill to Congress that allows improving the coverage of rare diseases in the country, and medical assistance in rural areas, abandoned by the state in a country where the privatization of health care prevails.
Neira joined the walk because he was moved by Tomás’ suffering but also because he is worried that “in Chile we do not have the means, a clinic where we can have these medicines, that we have to go to this.”
Tomás was diagnosed in March 2023 with Duchenne’s syndrome, the most common but also most severe form of this type of muscular dystrophy that is triggered by a defective gene that affects dystrophin, a protein that helps keep the body’s cells intact.
It causes problems when walking and running, fatigue, learning difficulties and heart and respiratory deficiencies, and those who suffer from it usually have a life expectancy of between 20 or 30 years in difficult conditions.
With more than 700 kilometers of love in her terrified legs, this mother hopes to arrive in the Chilean capital at the end of this month of May from Chiloe, where there is a movement so that the spending on a bridge that they believe is unnecessary, is dedicated to the construction of a perentory hospital
International
Trump will receive Netanyahu at the White House next week
Israeli Prime Minister Benjamin Netanyahu will visit Washington next week, a high-ranking official of Donald Trump’s government told EFE.
The visit, which according to the specialized portal Jewish Insider will take place on Monday, comes amid pressure from Washington to achieve a ceasefire in the Gaza strip.
The US president launched a message on Sunday on his social network Truth calling for an immediate agreement to end the conflict and “release the hostages.”
This message follows another one from last Friday in which he assured that a solution to the conflict in Palestine could be reached as early as this week.
“We are working in Gaza and trying to solve it. We are supplying a lot of money and a lot of food to that area because we have to do it,” the president stressed at an event in Washington.
In addition to publicly insisting on his desire to reach a cease of hostilities in the region, Trump has also supported Netanyahu, a key ally, despite the fact that the Israeli is going through a judicial process where he is charged with bribery, fraud and breach of trust in three different criminal cases.
Israel has maintained its offensive in Gaza, in a resurgence of the conflict that has already lasted for more than a year and that leaves dozens of deaths daily.
The Israeli Army has intensified its attacks in the north of the Strip after ordering last Sunday the forced evacuation of residents in several neighborhoods of the capital of Gaza and the northern city of Yabalia.
Since October 7, 2023, at least 56,259 Palestinians have died and more than 132,000 have been injured by Israeli fire, according to figures from the Ministry of Health of the Hamas Government.
International
The US climate agency will lose access to key data for hurricane forecasting in July
The National Oceanic and Atmospheric Administration (NOAA) announced on Monday that it will lose access to essential satellite data for the hurricane forecast on July 31, when the Department of Defense will stop sharing the images with that US agency.
Initially, NOAA was going to lose access to the data from today Monday, but managed to extend the deadline since NASA, which was also going to be affected by the measure, requested an extension until July 31.
According to a NOAA statement, late on Friday, June 27, the Naval Meteorology and Oceanography Command received a request from Karen St. Germain, director of NASA’s Earth Science Division, “to postpone the withdrawal and continue processing and distributing data from the Defense Meteorological Satellite Program until July 31.”
The original decision to cut off access to satellite data as of today was made with the aim of “mitigating a significant cybersecurity risk,” according to the note.
NOAA’s access to data provided by the Defense Weather Satellite Program was crucial for predicting hurricane formation, since they allowed to mediate variables that were not available to conventional satellites.
In addition, the measure takes place in the middle of hurricane season, which experts expect to be more intense than normal in the Atlantic Ocean.
According to the Colorado State University (CSU), the probability of a major hurricane, category 3 or higher, impacting the United States in the current Atlantic cyclone season amounts to 51%.
This coincides with the approval in the Lower House of Congress of the controversial “great and beautiful bill” of US President Donald Trump, which includes a cut of almost 30% of the annual budget to NOAA and 646 million dollars to the Federal Emergency Management Agency (FEMA).
International
The Argentine justice declares Milei’s measure that limited the right to strike unconstitutional
The Justice of Argentina declared on Monday the unconstitutionality of two articles of the decree signed on May 20 by President Javier Milei that limited the right to strike of workers from various sectors, giving rise to a precautionary measure requested by the General Confederation of Labor (CGT), the main workers’ central of the country.
The decision was made by the National Labor Court No. 3, which ordered to stop the application of articles 2 and 3 of decree 340/2025, considering that they violate constitutional guarantees such as freedom of association and the right to strike, established in the Constitution and in international agreements signed by Argentina.
The decree modified article 24 of Law 25,877, which regulates collective labor conflicts, and declared a long list of activities as essential, limiting the possibility of its workers to carry out union action measures.
Judge Moira Fullana, who intervened in the case, argued that the unconstitutionality is based on the fact that, at the time of the signing of the decree, the National Congress was in full function, so there was no justification of necessity and urgency that deserved to skip the legislative treatment of such modifications.
On June 2, Fullana had provisionally failed to suspend the application of this measure, in response to another precautionary measure, requested by the Association of State Workers (ATE).
Until before its recent challenge, Decree 340/2025 required to guarantee between 50% and 75% of the usual benefits in sectors such as the production of medicines and/or hospital supplies, land and underground transport, radio and television, industrial activities, the food industry, the production and distribution of building materials, all airport services, logistics services, mining activity, refrigeration activity, mail and the distribution and marketing of food and beverages, among others, even during trade union conflicts.
The Government also included in that list of essential services all branches of maritime and river transport, customs, immigration services and education at all levels.
The measure, originally included in an extensive decree of general deregulation of the economy signed by Milei shortly after its assumption in December 2023, had already been unconstitutional by the Argentine Justice at that time.
Trump will receive Netanyahu at the White House next week
The US climate agency will lose access to key data for hurricane forecasting in July
The Argentine justice declares Milei’s measure that limited the right to strike unconstitutional
Tec de Monterrey honors one of its students for his contribution to nanotechnology in medicine
Defense Minister commends salvadoran soldier for Central American Cross Country victory
Extension of the state of emergency approved in southern Chile
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