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Chilean mother travels 1,300 kilometers on foot to try to save her son with dystrophy

In the city of Ancud, one of the most important of the Chiloe archipelago, in the south of Chile, there is no hospital, so if one of its about 165,000 inhabitants gets sick, he must take the ferry and travel about 50 kilometers to reach the neighboring city of Puerto Montt, the nearest place.

Camila Gómez, a young mother, decided to take a trip but this time to walk to the Palacio de la Moneda, in Santiago de Chile, more than 1,300 kilometers from her home, to raise funds and make visible the drama of her son Tomás, who suffers from Duchenne muscular dystrophy, one of the so-called “rare diseases”, which almost no one worries and no one finances.

Its main objective is to help collect the nearly four million dollars that costs a vital treatment that does not exist in Chile – it must be imported from the United States – and that would help stop the progression of the child’s ailment, barely five years old.

“Tomás has Duchenne muscular dystrophy in a neuromuscular degenerative disease that gradually weakens the muscles, the respiratory system and the heart, which leads to premature death,” he explains in one of the highs of his journey.

“In Chile there is no type of treatment for this disease, but in the United States there are several treatment options, there are three and here they told me that it was not possible to cover a medicine that is abroad. And it motivated me to do this walk, this physical effort,” he adds.

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Gómez regrets that no one, neither the precarious public service nor the greedy private insurance, has offered him an exit in the country, although his son “does have options abroad.

“That’s why we decided to walk, to make the disease visible and take it very particularly to collect the 3.9 million dollars that the drug that is administered for the only time in a lifetime costs. So far (its administration) is approved until the age of four and five. Tomás is five and a half years old. So we are against time,” she urges in anguish.

Even so, hope has not been erased from his face and sometimes, especially when asked about solidarity, he outlines a smile of love and trust.

“We are all aware of the great health deficit, that Chile is a country very backward in health, unlike other more developed countries and we are all aware of that. So people have empathized, supported and contributed to the campaign,” he says.

Along with this mother, who left Ancud on April 28, her husband and father of Tomás, Alex Ross, a friend Álvaro Neira and Marco Reyes, president of the Duchenne Families corporation in Chile, who has two teenage children with the same disease and who proposed the Ross Gómez family to the odyssey.

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“I am the logistical support for Camila and Marco who have been walking from Chiloé. I assist them on the way, usually with a change of clothes, food, food, I manage the lodging,” explains Alex.

“(Camila) Walk through Tomás, because we are against time, but he also does it so that no mom has to do it,” he says.

Camila’s third objective is to be able to speak in person with the President of the Republic, Gabriel Boric, to urge him to promote a bill to Congress that allows improving the coverage of rare diseases in the country, and medical assistance in rural areas, abandoned by the state in a country where the privatization of health care prevails.

Neira joined the walk because he was moved by Tomás’ suffering but also because he is worried that “in Chile we do not have the means, a clinic where we can have these medicines, that we have to go to this.”

Tomás was diagnosed in March 2023 with Duchenne’s syndrome, the most common but also most severe form of this type of muscular dystrophy that is triggered by a defective gene that affects dystrophin, a protein that helps keep the body’s cells intact.

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It causes problems when walking and running, fatigue, learning difficulties and heart and respiratory deficiencies, and those who suffer from it usually have a life expectancy of between 20 or 30 years in difficult conditions.

With more than 700 kilometers of love in her terrified legs, this mother hopes to arrive in the Chilean capital at the end of this month of May from Chiloe, where there is a movement so that the spending on a bridge that they believe is unnecessary, is dedicated to the construction of a perentory hospital

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International

Iran Rejects Negotiations With U.S. as Strait of Hormuz Remains Blocked Amid New Attack

Tensions remained high in the Strait of Hormuz on Monday after a vessel was hit by a projectile, despite U.S. President Donald Trump’s claims that negotiations with Iran were moving forward and that the strategic maritime route could reopen as early as Tuesday.

Tehran denied that direct talks were taking place, but Trump insisted that discussions were underway and described the situation as a final opportunity for Iran to reach an agreement.

“This is the last chance they have to sign a good document,” Trump told reporters at the White House, adding that the reopening of the Strait of Hormuz could happen “literally tomorrow” Tuesday.

The comments came after another escalation in rhetoric from Washington. Last week, Trump threatened Iran with military strikes before unexpectedly changing course on Sunday and announcing that negotiations with Tehran would resume.

Iranian Foreign Ministry spokesman Esmail Baqai rejected the U.S. president’s version of events, stating that Tehran was not holding negotiations with Washington.

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“At this moment, we are not negotiating with the United States. We are negotiating with Oman to guarantee safe passage through the Strait of Hormuz,” Baqai said.

Earlier, the Iranian official said that Tehran was close to reaching an agreement with Oman, which lies across the Strait of Hormuz, to reopen the crucial waterway that plays a key role in global energy trade.

The maritime route has remained blocked by Iran since the outbreak of hostilities following U.S. and Israeli strikes against the Islamic Republic on February 28.

Meanwhile, Yemen’s Houthi rebels announced Tuesday that they had launched an attack against an airport in Saudi Arabia. The Iran-backed group had previously disrupted the passage of Saudi vessels through the Red Sea, an alternative route used for crude exports by the world’s largest oil producer.

The continued instability in the region has raised concerns over global energy supplies, as the Strait of Hormuz remains one of the most important chokepoints for international oil shipments.

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International

Lula Launches Re-Election Campaign Amid Rising Tensions With Trump

Brazilian President Luiz Inácio Lula da Silva is set to be officially nominated for re-election by his Workers’ Party (PT), marking the start of his campaign for a fourth presidential term.

The nomination takes place during the party’s national convention in São Paulo, Brazil’s economic hub, where around 3,000 supporters gathered to back the veteran leftist leader.

“Today I’m here because Lula’s policies changed my life and my family’s. Thanks to him, we finally own a home after eight generations without one,” said Cristiane Rosa Julho, a 51-year-old social worker attending the event dressed in the PT’s signature red.

Seeking the presidency for the seventh time in his political career, Lula is expected to face Senator Flávio Bolsonaro in next year’s election.

The 45-year-old senator is the son of former far-right President Jair Bolsonaro, who has been jailed over his alleged role in an attempted coup following his defeat to Lula in the 2022 election.

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The party convention opened with videos highlighting Lula’s social initiatives and speeches by four women praising his leadership, while supporters waved PT flags and held signs reading “We Want Lula as President” and “Brazil Is Not for Sale.”

The campaign begins amid growing tensions with the United States and President Donald Trump, a close ally of the Bolsonaro family who has openly backed several conservative candidates across Latin America.

Last week, Lula warned against foreign interference, declaring, “In Brazil, we do not accept anyone sticking their nose where it doesn’t belong.”

In July, the United States imposed two rounds of tariffs on Brazilian products, accusing the country of unfair trade practices. The measures followed earlier restrictions introduced in 2025, encouraged by Jair Bolsonaro’s son Eduardo Bolsonaro, in response to legal proceedings against the former president.

Lula has vowed to wage what he called a “war of truth against lies” in response to Washington’s pressure and accused Flávio Bolsonaro of undermining Brazil’s interests by allegedly helping the United States damage the country’s economy. The senator has denied the accusations.

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The Brazilian president also claims Washington is attempting to influence the country’s political landscape in an effort to prevent his re-election.

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International

Truck bomb attack near police station in Colombia leaves 14 injured ahead of presidential inauguration

A truck loaded with explosives exploded on Saturday near a police station in the Colombian city of Cúcuta, close to the Venezuelan border, leaving 14 people injured in an attack that occurred six days before president-elect Abelardo de la Espriella’s inauguration.

The blast took place in the early hours of the morning and was allegedly carried out by members of the National Liberation Army (ELN), who detonated a vehicle packed with explosives. According to the latest report from the Colombian Army, the attack injured 11 police officers and three civilians.

The explosion involved around 15 explosive devices, and two of the wounded officers are in critical condition and “fighting for their lives,” said William Villamizar, governor of Norte de Santander, the region where the attack occurred.

The incident comes amid Colombia’s worst wave of violence in the past decade, with armed groups expanding their presence in several areas of the country.

“I strongly condemn the cowardly terrorist attack carried out in Cúcuta against our National Police. Terrorism will not intimidate Colombia or break the determination of Colombians to live in peace and security,” De la Espriella said in a post on X.

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The conservative lawyer, who has been described as a far-right figure, will take office on August 7, replacing Gustavo Petro, Colombia’s first left-wing president. The inauguration ceremony will be held in Cali, the country’s third-largest city and a frequent target of attacks by armed groups.

The United Nations condemned what it described as an “indiscriminate attack” that caused not only injuries but also “fear and distress among the population.”

De la Espriella has repeatedly warned about an alleged plot against his life. Meanwhile, President Gustavo Petro, who is currently visiting Cuba, has not commented on the attack. During his visit, Petro met with Cuban President Miguel Díaz-Canel to discuss what Havana describes as the United States’ “policy of suffocation” toward the island.

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