International
Chilean mother travels 1,300 kilometers on foot to try to save her son with dystrophy
In the city of Ancud, one of the most important of the Chiloe archipelago, in the south of Chile, there is no hospital, so if one of its about 165,000 inhabitants gets sick, he must take the ferry and travel about 50 kilometers to reach the neighboring city of Puerto Montt, the nearest place.
Camila Gómez, a young mother, decided to take a trip but this time to walk to the Palacio de la Moneda, in Santiago de Chile, more than 1,300 kilometers from her home, to raise funds and make visible the drama of her son Tomás, who suffers from Duchenne muscular dystrophy, one of the so-called “rare diseases”, which almost no one worries and no one finances.
Its main objective is to help collect the nearly four million dollars that costs a vital treatment that does not exist in Chile – it must be imported from the United States – and that would help stop the progression of the child’s ailment, barely five years old.
“Tomás has Duchenne muscular dystrophy in a neuromuscular degenerative disease that gradually weakens the muscles, the respiratory system and the heart, which leads to premature death,” he explains in one of the highs of his journey.
“In Chile there is no type of treatment for this disease, but in the United States there are several treatment options, there are three and here they told me that it was not possible to cover a medicine that is abroad. And it motivated me to do this walk, this physical effort,” he adds.
Gómez regrets that no one, neither the precarious public service nor the greedy private insurance, has offered him an exit in the country, although his son “does have options abroad.
“That’s why we decided to walk, to make the disease visible and take it very particularly to collect the 3.9 million dollars that the drug that is administered for the only time in a lifetime costs. So far (its administration) is approved until the age of four and five. Tomás is five and a half years old. So we are against time,” she urges in anguish.
Even so, hope has not been erased from his face and sometimes, especially when asked about solidarity, he outlines a smile of love and trust.
“We are all aware of the great health deficit, that Chile is a country very backward in health, unlike other more developed countries and we are all aware of that. So people have empathized, supported and contributed to the campaign,” he says.
Along with this mother, who left Ancud on April 28, her husband and father of Tomás, Alex Ross, a friend Álvaro Neira and Marco Reyes, president of the Duchenne Families corporation in Chile, who has two teenage children with the same disease and who proposed the Ross Gómez family to the odyssey.
“I am the logistical support for Camila and Marco who have been walking from Chiloé. I assist them on the way, usually with a change of clothes, food, food, I manage the lodging,” explains Alex.
“(Camila) Walk through Tomás, because we are against time, but he also does it so that no mom has to do it,” he says.
Camila’s third objective is to be able to speak in person with the President of the Republic, Gabriel Boric, to urge him to promote a bill to Congress that allows improving the coverage of rare diseases in the country, and medical assistance in rural areas, abandoned by the state in a country where the privatization of health care prevails.
Neira joined the walk because he was moved by Tomás’ suffering but also because he is worried that “in Chile we do not have the means, a clinic where we can have these medicines, that we have to go to this.”
Tomás was diagnosed in March 2023 with Duchenne’s syndrome, the most common but also most severe form of this type of muscular dystrophy that is triggered by a defective gene that affects dystrophin, a protein that helps keep the body’s cells intact.
It causes problems when walking and running, fatigue, learning difficulties and heart and respiratory deficiencies, and those who suffer from it usually have a life expectancy of between 20 or 30 years in difficult conditions.
With more than 700 kilometers of love in her terrified legs, this mother hopes to arrive in the Chilean capital at the end of this month of May from Chiloe, where there is a movement so that the spending on a bridge that they believe is unnecessary, is dedicated to the construction of a perentory hospital
International
Former South Korean President Yoon sentenced to five years in prison
Former South Korean president Yoon Suk-yeol was sentenced on Friday to five years in prison for obstruction of justice and other charges, concluding the first in a series of trials stemming from his failed attempt to impose martial law in December 2024.
The sentence is shorter than the 10-year prison term sought by prosecutors against the 65-year-old conservative former leader, whose move against Parliament triggered a major political crisis that ultimately led to his removal from office.
Yoon, a former prosecutor, is still facing seven additional trials. One of them, on charges of insurrection, could potentially result in the death penalty.
On Friday, the Seoul Central District Court ruled on one of the multiple secondary cases linked to the affair, which plunged the country into months of mass protests and political instability.
International
U.S. deportation flight returns venezuelans to Caracas after Maduro’s ouster
A new flight carrying 231 Venezuelans deported from the United States arrived on Friday at the airport serving Caracas, marking the first such arrival since the military operation that ousted and captured President Nicolás Maduro.
On January 3, U.S. forces bombed the Venezuelan capital during an incursion in which Maduro and his wife, Cilia Flores, were captured. Both are now facing narcotrafficking charges in New York.
This was the first U.S.-flagged aircraft transporting migrants to land in Venezuela since the military action ordered by President Donald Trump, who has stated that he is now in charge of the country.
The aircraft departed from Phoenix, Arizona, and landed at Maiquetía International Airport, which serves the Venezuelan capital, at around 10:30 a.m. local time (14:30 GMT), according to AFP reporters on the ground.
The deportees arrived in Venezuela under a repatriation program that remained in place even during the height of the crisis between the two countries, when Maduro was still in power. U.S. planes carrying undocumented Venezuelan migrants continued to arrive throughout last year, despite the military deployment ordered by Trump.
International
Sheinbaum highlights anti-drug gains after U.S. says challenges remain
Mexican President Claudia Sheinbaum on Friday highlighted her government’s achievements in the fight against drug trafficking, after the United States said challenges remain in combating organized crime.
On Thursday, Mexican Foreign Minister Juan Ramón de la Fuente held talks with his U.S. counterpart, Secretary of State Marco Rubio. Following the meeting, the U.S. State Department said in a statement that “despite progress, challenges still exist” in addressing organized crime.
“There are very strong results from joint cooperation and from the work Mexico is doing: first, a 50% reduction in fentanyl seizures at the U.S. border,” Sheinbaum said during her regular morning press conference.
The president also said that authorities have seized nearly 320 tons of drugs and that there has been a “40% decrease in intentional homicides in Mexico” since the start of her administration on October 1, 2024.
Sheinbaum added that the United States should implement campaigns to reduce drug consumption within its territory and curb the flow of weapons into Mexico.
“There are many results and there will be more, but there must be mutual respect and shared responsibility, as well as respect for our sovereignties,” she said.
On Monday, Sheinbaum held a phone call with U.S. President Donald Trump to discuss security issues. She said she once again ruled out the presence of U.S. troops in Mexico to fight drug cartels.
Security has been a recurring issue used by Trump to threaten tariffs on Mexico and to pressure negotiations over the USMCA (T-MEC) free trade agreement, which are scheduled for 2026.
The agreement is crucial for Mexico’s economy, as about 80% of the country’s exports are destined for the United States.
Former South Korean President Yoon sentenced to five years in prison
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