Connect with us

International

Chilean mother travels 1,300 kilometers on foot to try to save her son with dystrophy

In the city of Ancud, one of the most important of the Chiloe archipelago, in the south of Chile, there is no hospital, so if one of its about 165,000 inhabitants gets sick, he must take the ferry and travel about 50 kilometers to reach the neighboring city of Puerto Montt, the nearest place.

Camila Gómez, a young mother, decided to take a trip but this time to walk to the Palacio de la Moneda, in Santiago de Chile, more than 1,300 kilometers from her home, to raise funds and make visible the drama of her son Tomás, who suffers from Duchenne muscular dystrophy, one of the so-called “rare diseases”, which almost no one worries and no one finances.

Its main objective is to help collect the nearly four million dollars that costs a vital treatment that does not exist in Chile – it must be imported from the United States – and that would help stop the progression of the child’s ailment, barely five years old.

“Tomás has Duchenne muscular dystrophy in a neuromuscular degenerative disease that gradually weakens the muscles, the respiratory system and the heart, which leads to premature death,” he explains in one of the highs of his journey.

“In Chile there is no type of treatment for this disease, but in the United States there are several treatment options, there are three and here they told me that it was not possible to cover a medicine that is abroad. And it motivated me to do this walk, this physical effort,” he adds.

Advertisement
20260101_dengue_cubeta_728x90
previous arrow
next arrow

Gómez regrets that no one, neither the precarious public service nor the greedy private insurance, has offered him an exit in the country, although his son “does have options abroad.

“That’s why we decided to walk, to make the disease visible and take it very particularly to collect the 3.9 million dollars that the drug that is administered for the only time in a lifetime costs. So far (its administration) is approved until the age of four and five. Tomás is five and a half years old. So we are against time,” she urges in anguish.

Even so, hope has not been erased from his face and sometimes, especially when asked about solidarity, he outlines a smile of love and trust.

“We are all aware of the great health deficit, that Chile is a country very backward in health, unlike other more developed countries and we are all aware of that. So people have empathized, supported and contributed to the campaign,” he says.

Along with this mother, who left Ancud on April 28, her husband and father of Tomás, Alex Ross, a friend Álvaro Neira and Marco Reyes, president of the Duchenne Families corporation in Chile, who has two teenage children with the same disease and who proposed the Ross Gómez family to the odyssey.

Advertisement
20260101_dengue_cubeta_728x90
previous arrow
next arrow

“I am the logistical support for Camila and Marco who have been walking from Chiloé. I assist them on the way, usually with a change of clothes, food, food, I manage the lodging,” explains Alex.

“(Camila) Walk through Tomás, because we are against time, but he also does it so that no mom has to do it,” he says.

Camila’s third objective is to be able to speak in person with the President of the Republic, Gabriel Boric, to urge him to promote a bill to Congress that allows improving the coverage of rare diseases in the country, and medical assistance in rural areas, abandoned by the state in a country where the privatization of health care prevails.

Neira joined the walk because he was moved by Tomás’ suffering but also because he is worried that “in Chile we do not have the means, a clinic where we can have these medicines, that we have to go to this.”

Tomás was diagnosed in March 2023 with Duchenne’s syndrome, the most common but also most severe form of this type of muscular dystrophy that is triggered by a defective gene that affects dystrophin, a protein that helps keep the body’s cells intact.

Advertisement
20260101_dengue_cubeta_728x90
previous arrow
next arrow

It causes problems when walking and running, fatigue, learning difficulties and heart and respiratory deficiencies, and those who suffer from it usually have a life expectancy of between 20 or 30 years in difficult conditions.

With more than 700 kilometers of love in her terrified legs, this mother hopes to arrive in the Chilean capital at the end of this month of May from Chiloe, where there is a movement so that the spending on a bridge that they believe is unnecessary, is dedicated to the construction of a perentory hospital

International

Venezuela Earthquake Death Toll Rises to 3,535 as Search for Victims Continues

The death toll from the twin earthquakes that struck Venezuela on June 24 rose to 3,535 on Monday, while the number of injured remained at 16,740, according to a statement released by the Venezuelan government.

Authorities have not disclosed an official number of missing persons. However, the United Nations estimates that as many as 50,000 people could still be unaccounted for, although other projections suggest the figure may be closer to 10,000.

Search and recovery operations continue in the state of La Guaira, neighboring Caracas and the region hardest hit by the earthquakes, as emergency crews and volunteers work to recover victims and provide them with dignified burials.

On Sunday, authorities began burying unidentified victims.

More than 150 unidentified bodies were laid to rest at La Esperanza Cemetery in the municipality of Catia La Mar, according to journalists from AFP.

Advertisement
20260101_dengue_cubeta_728x90
previous arrow
next arrow

Rows of individual graves now stretch across a dry section of the cemetery, each marked by white stones outlining the burial plots.

Every grave bears a small bouquet of flowers at the base of a white cross, along with a plaque reading “Special Identification” and the date of death: June 24, 2026.

Continue Reading

International

WHO warns of increased disease outbreak risk in Venezuela amid low vaccination coverage

The World Health Organization (WHO) has warned of an increased risk of disease outbreaks in Venezuela, including vaccine-preventable illnesses, due to low immunization coverage across the country.

“The vaccination coverage in Venezuela, particularly against measles and other diseases, was already low, so the risk of measles cases and other illnesses is currently high,” said Ciro Ugarte, director for emergencies at the Pan American Health Organization (PAHO), the WHO’s regional office.

Speaking during a video conference with journalists, Ugarte said the risk is especially high in shelters, where overcrowding could significantly accelerate the transmission of infectious diseases.

He also highlighted water quality as an additional concern in the aftermath of the disaster, noting that safe drinking water is not guaranteed in the most affected areas.

“Unfortunately, supply is scarce, making it very difficult to assess conditions in all shelters. That is why evaluating the quality of water provided to the population, especially in large shelters, is a priority,” he said during a briefing in Geneva.

Advertisement
20260101_dengue_cubeta_728x90
previous arrow
next arrow

Ugarte suggested that targeted vaccination campaigns could be deployed against mosquito-borne and other vector-transmitted diseases, particularly in overcrowded shelters and in areas where people remain displaced.

According to PAHO, eight health facilities have been assessed so far, all of which require assistance, with three reporting structural damage.

He also stressed that the José María Vargas Hospital, one of Caracas’s major public reference hospitals, requires urgent support due to critical conditions. The facility is currently treating 96 patients in an eight-bed unit, while its blood bank is operating at extremely low levels.

In La Guaira, the Rafael Medina Jiménez Hospital has reduced its capacity from 108 to 35 beds. Additionally, 22 other health centers have reported severe shortages, underscoring the strain on Venezuela’s healthcare system.

Advertisement
20260101_dengue_cubeta_728x90
previous arrow
next arrow
Continue Reading

International

María Corina Machado’s attempted return to Venezuela reportedly halted amid US political concerns

The administration of U.S. President Donald Trump reportedly pressured Venezuelan opposition leader and Nobel Peace Prize laureate María Corina Machado and disrupted her planned return to Venezuela following recent earthquakes, amid concerns over a potential political crisis, according to The Wall Street Journal.

Sources familiar with the matter told the newspaper that a private jet carrying Machado from the United States to Curaçao was ordered to turn back last week after U.S. officials concluded she intended to continue onward to Venezuelan territory, effectively reversing her earlier departure route from December.

The opposition figure had reportedly spent months preparing to re-enter Venezuela in an effort to renew pressure for new elections, following the detention of then-president Nicolás Maduro under an order issued by Trump. The U.S. president has since stated that Washington’s relationship with Venezuela’s acting leadership, headed by Delcy Rodríguez, is “excellent.”

According to The Wall Street Journal, intermediaries close to the White House warned Machado that proceeding with her return plan could jeopardize her support from Trump and undermine broader U.S. strategy toward Venezuela, potentially delaying electoral plans.

Despite these warnings, Machado reportedly attempted a second route back through Panama. However, Copa Airlines declined to transport her to Venezuela, citing concerns over possible retaliation from Caracas against the airline, according to unnamed sources.

Advertisement
20260101_dengue_cubeta_728x90
previous arrow
next arrow

From Panama City, Machado stated on Monday that the Venezuelan government had closed commercial airspace to prevent her return, calling it “urgent” to go back to the country to “face this catastrophe together,” without addressing reports of U.S. pressure.

Axios reported that Trump administration officials viewed Machado’s attempted return as “grotesque political opportunism” in the aftermath of recent earthquakes that have left at least 2,595 people dead and thousands injured, while also delaying reconstruction efforts and potential electoral processes.

Since Maduro’s detention on January 3, President Trump has reportedly expressed support for Rodríguez, the former vice president, who has agreed to trade, mining, and oil agreements demanded by Washington. Trump has described Venezuela as effectively operating under U.S. oversight and has claimed the country is improving economically through increased oil production and exports.

Venezuelan opposition groups based in the United States have urged the Trump administration to reconsider its relationship with Rodríguez and criticized Washington’s stated satisfaction with reconstruction efforts following the June 24 earthquakes.

Advertisement
20260101_dengue_cubeta_728x90
previous arrow
next arrow
Continue Reading
Advertisement
20260101_dengue_balde_300x250

Trending

Central News