International
Chilean mother travels 1,300 kilometers on foot to try to save her son with dystrophy
In the city of Ancud, one of the most important of the Chiloe archipelago, in the south of Chile, there is no hospital, so if one of its about 165,000 inhabitants gets sick, he must take the ferry and travel about 50 kilometers to reach the neighboring city of Puerto Montt, the nearest place.
Camila Gómez, a young mother, decided to take a trip but this time to walk to the Palacio de la Moneda, in Santiago de Chile, more than 1,300 kilometers from her home, to raise funds and make visible the drama of her son Tomás, who suffers from Duchenne muscular dystrophy, one of the so-called “rare diseases”, which almost no one worries and no one finances.
Its main objective is to help collect the nearly four million dollars that costs a vital treatment that does not exist in Chile – it must be imported from the United States – and that would help stop the progression of the child’s ailment, barely five years old.
“Tomás has Duchenne muscular dystrophy in a neuromuscular degenerative disease that gradually weakens the muscles, the respiratory system and the heart, which leads to premature death,” he explains in one of the highs of his journey.
“In Chile there is no type of treatment for this disease, but in the United States there are several treatment options, there are three and here they told me that it was not possible to cover a medicine that is abroad. And it motivated me to do this walk, this physical effort,” he adds.
Gómez regrets that no one, neither the precarious public service nor the greedy private insurance, has offered him an exit in the country, although his son “does have options abroad.
“That’s why we decided to walk, to make the disease visible and take it very particularly to collect the 3.9 million dollars that the drug that is administered for the only time in a lifetime costs. So far (its administration) is approved until the age of four and five. Tomás is five and a half years old. So we are against time,” she urges in anguish.
Even so, hope has not been erased from his face and sometimes, especially when asked about solidarity, he outlines a smile of love and trust.
“We are all aware of the great health deficit, that Chile is a country very backward in health, unlike other more developed countries and we are all aware of that. So people have empathized, supported and contributed to the campaign,” he says.
Along with this mother, who left Ancud on April 28, her husband and father of Tomás, Alex Ross, a friend Álvaro Neira and Marco Reyes, president of the Duchenne Families corporation in Chile, who has two teenage children with the same disease and who proposed the Ross Gómez family to the odyssey.
“I am the logistical support for Camila and Marco who have been walking from Chiloé. I assist them on the way, usually with a change of clothes, food, food, I manage the lodging,” explains Alex.
“(Camila) Walk through Tomás, because we are against time, but he also does it so that no mom has to do it,” he says.
Camila’s third objective is to be able to speak in person with the President of the Republic, Gabriel Boric, to urge him to promote a bill to Congress that allows improving the coverage of rare diseases in the country, and medical assistance in rural areas, abandoned by the state in a country where the privatization of health care prevails.
Neira joined the walk because he was moved by Tomás’ suffering but also because he is worried that “in Chile we do not have the means, a clinic where we can have these medicines, that we have to go to this.”
Tomás was diagnosed in March 2023 with Duchenne’s syndrome, the most common but also most severe form of this type of muscular dystrophy that is triggered by a defective gene that affects dystrophin, a protein that helps keep the body’s cells intact.
It causes problems when walking and running, fatigue, learning difficulties and heart and respiratory deficiencies, and those who suffer from it usually have a life expectancy of between 20 or 30 years in difficult conditions.
With more than 700 kilometers of love in her terrified legs, this mother hopes to arrive in the Chilean capital at the end of this month of May from Chiloe, where there is a movement so that the spending on a bridge that they believe is unnecessary, is dedicated to the construction of a perentory hospital
International
German Authorities Investigate More Than 100 New Cases Against Convicted Nurse
German authorities announced Monday that they are investigating more than 100 additional cases involving a nurse who was sentenced to life in prison in November for the murder of 10 patients.
The man, who was 44 at the time of his conviction, worked in palliative care at a hospital in Würselen, near Aachen. He was also found guilty of 27 attempted murders.
Aachen prosecutors are now examining 121 new cases, a spokesperson for the office said.
Prosecutors leading the investigation are preparing a new indictment that could be filed next year. Nearly 40 bodies have so far been exhumed as part of the investigation, which covers alleged incidents dating back to September 2022.
Meanwhile, prosecutors in the city of Cologne are investigating 18 additional cases. According to a spokesperson, the oldest case dates back to 2010.
Before working at the Würselen hospital, the nurse is believed to have worked at a clinic in eastern Cologne, according to local media reports.
At the time of his November conviction, the court ruled that the severity of his crimes was particularly serious, a finding that would make it difficult for him to obtain early release after 15 years in prison.
Between December 2023 and May 2024, the nurse administered overdoses of sedatives or painkillers to terminally ill patients, most of them elderly, according to the indictment in the original case.
His alleged motive was to sedate patients who required care so that he could minimize his workload during night shifts, prosecutors said.
According to the indictment, the nurse worked «without enthusiasm» and «without motivation». When faced with patients requiring extensive care, he allegedly became «irritated» and showed a lack of empathy.
The case has revived painful memories in Germany of Niels Högel, a former nurse and serial killer who was sentenced to life imprisonment in June 2019 for the murders of at least 85 patients.
International
Venezuela Raises Earthquake Death Toll to 6,301
The death toll from the earthquakes that struck Venezuela on June 24 has risen to 6,301, while relatives continue searching for missing people among the rubble of collapsed buildings, parliamentary leader Jorge Rodríguez said Monday.
So far, the Venezuelan government has not released an official figure for the number of people missing after the magnitude 7.2 and 7.5 earthquakes, which caused around 190 buildings to collapse, most of them in the coastal state of La Guaira, about 25 miles (40 kilometers) from Caracas.
The latest figure represents an increase from the 6,125 deaths reported by Venezuelan authorities on August 3.
According to statements made to local media by La Guaira Governor José Alejandro Terán, around 1,400 people were still missing just over a week ago.
Thousands of homes remain at risk
In addition to buildings that completely collapsed, authorities have classified another 9,567 structures as being at «high risk». Meanwhile, 12,411 homes remain under a «restricted» classification.
As a result, many families who lived in these properties have been relocated to temporary shelters or have sought accommodation with relatives and friends.
Nearly 24,000 people left homeless by the disaster are currently living in camps in Caracas and La Guaira, a popular tourist destination whose economy has been severely affected by the earthquakes.
The situation sparked renewed concern among Venezuelans on Monday after a magnitude 7.4 earthquake, with its epicenter in Colombia, was felt across several regions of Venezuela.
The earthquake in Colombia left at least 111 people dead and dozens injured, according to preliminary figures released by authorities in that country.
International
CEAPI Backs Colombia’s New Government and Calls for Greater Public-Private Cooperation
The Ibero-American Business Alliance Council (CEAPI), led by its president, Núria Vilanova, participated in the inauguration ceremony of Abelardo de la Espriella as Colombia’s new president. The events were held on August 7 in Cali and brought together heads of state and institutional representatives from numerous countries.
CEAPI maintains a strong relationship with Colombia as part of its mission to serve as a meeting point between Ibero-American business leaders and the region’s main institutions and governments. The organization has more than 25 members in Colombia, including Jaime Gilinski, Luis Carlos Sarmiento, Omar González and Diego Urrea. In addition, Colombia hosted the seventh CEAPI Ibero-American Congress, held in Cartagena de Indias in 2024.
During his inauguration speech, President De la Espriella identified confidence and economic stability as key pillars of his administration and emphasized the role of private enterprise in Colombia’s future.
He also reaffirmed his intention to govern for all Colombians and strengthen institutional dialogue, while referring to Spain’s democratic transition and the leadership of former Prime Minister Adolfo Suárez.
Vilanova said she has seen this commitment firsthand during meetings with members of the new government, who have expressed their willingness to work closely with business leaders and the private sector to promote economic growth.
According to CEAPI, the government is considering measures aimed at strengthening legal certainty and business confidence, encouraging investment and promoting formal employment.
For Vilanova, Colombia’s new political and economic stage represents an opportunity to demonstrate that «when the public and private sectors are aligned, they can achieve more».
«Colombia has everything it needs to make it happen. And Ibero-American business leaders are ready to support it», she said, adding that CEAPI is already working with the government to organize a future investment delegation to the country.
The organization said the planned visit would seek to strengthen business ties and identify new investment opportunities in Colombia, reinforcing the role of the private sector in the country’s economic development.
German Authorities Investigate More Than 100 New Cases Against Convicted Nurse
Venezuela Raises Earthquake Death Toll to 6,301
CEAPI Backs Colombia’s New Government and Calls for Greater Public-Private Cooperation
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