International
Chilean mother travels 1,300 kilometers on foot to try to save her son with dystrophy
In the city of Ancud, one of the most important of the Chiloe archipelago, in the south of Chile, there is no hospital, so if one of its about 165,000 inhabitants gets sick, he must take the ferry and travel about 50 kilometers to reach the neighboring city of Puerto Montt, the nearest place.
Camila Gómez, a young mother, decided to take a trip but this time to walk to the Palacio de la Moneda, in Santiago de Chile, more than 1,300 kilometers from her home, to raise funds and make visible the drama of her son Tomás, who suffers from Duchenne muscular dystrophy, one of the so-called “rare diseases”, which almost no one worries and no one finances.
Its main objective is to help collect the nearly four million dollars that costs a vital treatment that does not exist in Chile – it must be imported from the United States – and that would help stop the progression of the child’s ailment, barely five years old.
“Tomás has Duchenne muscular dystrophy in a neuromuscular degenerative disease that gradually weakens the muscles, the respiratory system and the heart, which leads to premature death,” he explains in one of the highs of his journey.
“In Chile there is no type of treatment for this disease, but in the United States there are several treatment options, there are three and here they told me that it was not possible to cover a medicine that is abroad. And it motivated me to do this walk, this physical effort,” he adds.
Gómez regrets that no one, neither the precarious public service nor the greedy private insurance, has offered him an exit in the country, although his son “does have options abroad.
“That’s why we decided to walk, to make the disease visible and take it very particularly to collect the 3.9 million dollars that the drug that is administered for the only time in a lifetime costs. So far (its administration) is approved until the age of four and five. Tomás is five and a half years old. So we are against time,” she urges in anguish.
Even so, hope has not been erased from his face and sometimes, especially when asked about solidarity, he outlines a smile of love and trust.
“We are all aware of the great health deficit, that Chile is a country very backward in health, unlike other more developed countries and we are all aware of that. So people have empathized, supported and contributed to the campaign,” he says.
Along with this mother, who left Ancud on April 28, her husband and father of Tomás, Alex Ross, a friend Álvaro Neira and Marco Reyes, president of the Duchenne Families corporation in Chile, who has two teenage children with the same disease and who proposed the Ross Gómez family to the odyssey.
“I am the logistical support for Camila and Marco who have been walking from Chiloé. I assist them on the way, usually with a change of clothes, food, food, I manage the lodging,” explains Alex.
“(Camila) Walk through Tomás, because we are against time, but he also does it so that no mom has to do it,” he says.
Camila’s third objective is to be able to speak in person with the President of the Republic, Gabriel Boric, to urge him to promote a bill to Congress that allows improving the coverage of rare diseases in the country, and medical assistance in rural areas, abandoned by the state in a country where the privatization of health care prevails.
Neira joined the walk because he was moved by Tomás’ suffering but also because he is worried that “in Chile we do not have the means, a clinic where we can have these medicines, that we have to go to this.”
Tomás was diagnosed in March 2023 with Duchenne’s syndrome, the most common but also most severe form of this type of muscular dystrophy that is triggered by a defective gene that affects dystrophin, a protein that helps keep the body’s cells intact.
It causes problems when walking and running, fatigue, learning difficulties and heart and respiratory deficiencies, and those who suffer from it usually have a life expectancy of between 20 or 30 years in difficult conditions.
With more than 700 kilometers of love in her terrified legs, this mother hopes to arrive in the Chilean capital at the end of this month of May from Chiloe, where there is a movement so that the spending on a bridge that they believe is unnecessary, is dedicated to the construction of a perentory hospital
International
Brazil offers to mediate Colombia-Ecuador tensions, calls for restraint
The government of Brazil has offered to mediate in the ongoing tensions between Colombia and Ecuador, while calling on both nations to exercise restraint.
In a statement released Wednesday, Brazil’s Ministry of Foreign Affairs urged the parties involved to act with moderation and seek a peaceful resolution to the dispute.
“Brazil encourages all sides to act with moderation in order to find a peaceful solution to the controversy. It stands ready to support dialogue efforts aimed at preserving peace and security in the region,” the statement said.
Brazil also expressed “serious concern” over reports of deaths in the border area between Colombia and Ecuador, noting that the circumstances surrounding the incidents have not yet been clarified.
The diplomatic move comes amid rising tensions between the neighboring countries, increasing regional concern over stability and security along their shared border.
International
U.S. lowers travel advisory for much of Venezuela but keeps high-risk zones under warning
The U.S. Department of State announced on Thursday that it has lowered its travel advisory for much of Venezuela to Level 3 (“Reconsider Travel”), reflecting what it described as improved security conditions in parts of the country.
However, the agency will maintain the highest Level 4 warning (“Do Not Travel”) for several regions, including the states of Táchira, Amazonas, Apure, Aragua and Guárico, as well as rural areas of Bolívar, citing ongoing risks such as crime, kidnapping and terrorism.
The updated advisory marks a shift from December, when the United States raised the alert for Venezuela to Level 4 nationwide, warning of severe security threats.
Despite the partial downgrade, U.S. authorities continue to urge caution, emphasizing that conditions remain volatile in certain areas and that travelers should carefully assess risks before planning any trips to the country.
International
EU lawmakers move to ban AI tools that generate non-consensual nude images
Members of the European Parliament are pushing to ban across the bloc artificial intelligence services that allow users to digitally “undress” people without their consent.
The proposal, adopted on Wednesday at committee level, aims to prohibit applications that generate non-consensual explicit images. Irish lawmaker Michael McNamara, one of the sponsors, said the measure seeks to stop tools that “have caused significant harm for the benefit of a few.”
Dutch MEP Kim van Sparrentak welcomed the move, calling it “a major victory, especially for women and children in Europe.”
The amendment, part of broader EU legislation on artificial intelligence, was approved by the Parliament’s civil liberties and internal market committees. It specifically targets systems that use AI to create or manipulate sexually explicit or intimate images resembling identifiable individuals without their consent.
The proposal will be put to a full vote in the European Parliament on March 26. If adopted, lawmakers and European Union member states will need to agree on a final version before it can take effect.
Separately, representatives of the 27 EU countries recently backed a Franco-Spanish amendment seeking to ban AI services used to generate non-consensual sexual images or child sexual abuse material.
The initiative follows controversy surrounding a feature introduced in Grok, developed by xAI, which allowed users to create simulated nude images from real photos. The tool sparked widespread criticism and prompted an EU investigation.
In response, xAI restricted image generation features in mid-January to paying subscribers and stated it blocks the creation of sexualized images in jurisdictions where such content is illegal.
Brazil offers to mediate Colombia-Ecuador tensions, calls for restraint
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EU lawmakers move to ban AI tools that generate non-consensual nude images
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