International
Chilean mother travels 1,300 kilometers on foot to try to save her son with dystrophy
In the city of Ancud, one of the most important of the Chiloe archipelago, in the south of Chile, there is no hospital, so if one of its about 165,000 inhabitants gets sick, he must take the ferry and travel about 50 kilometers to reach the neighboring city of Puerto Montt, the nearest place.
Camila Gómez, a young mother, decided to take a trip but this time to walk to the Palacio de la Moneda, in Santiago de Chile, more than 1,300 kilometers from her home, to raise funds and make visible the drama of her son Tomás, who suffers from Duchenne muscular dystrophy, one of the so-called “rare diseases”, which almost no one worries and no one finances.
Its main objective is to help collect the nearly four million dollars that costs a vital treatment that does not exist in Chile – it must be imported from the United States – and that would help stop the progression of the child’s ailment, barely five years old.
“Tomás has Duchenne muscular dystrophy in a neuromuscular degenerative disease that gradually weakens the muscles, the respiratory system and the heart, which leads to premature death,” he explains in one of the highs of his journey.
“In Chile there is no type of treatment for this disease, but in the United States there are several treatment options, there are three and here they told me that it was not possible to cover a medicine that is abroad. And it motivated me to do this walk, this physical effort,” he adds.
Gómez regrets that no one, neither the precarious public service nor the greedy private insurance, has offered him an exit in the country, although his son “does have options abroad.
“That’s why we decided to walk, to make the disease visible and take it very particularly to collect the 3.9 million dollars that the drug that is administered for the only time in a lifetime costs. So far (its administration) is approved until the age of four and five. Tomás is five and a half years old. So we are against time,” she urges in anguish.
Even so, hope has not been erased from his face and sometimes, especially when asked about solidarity, he outlines a smile of love and trust.
“We are all aware of the great health deficit, that Chile is a country very backward in health, unlike other more developed countries and we are all aware of that. So people have empathized, supported and contributed to the campaign,” he says.
Along with this mother, who left Ancud on April 28, her husband and father of Tomás, Alex Ross, a friend Álvaro Neira and Marco Reyes, president of the Duchenne Families corporation in Chile, who has two teenage children with the same disease and who proposed the Ross Gómez family to the odyssey.
“I am the logistical support for Camila and Marco who have been walking from Chiloé. I assist them on the way, usually with a change of clothes, food, food, I manage the lodging,” explains Alex.
“(Camila) Walk through Tomás, because we are against time, but he also does it so that no mom has to do it,” he says.
Camila’s third objective is to be able to speak in person with the President of the Republic, Gabriel Boric, to urge him to promote a bill to Congress that allows improving the coverage of rare diseases in the country, and medical assistance in rural areas, abandoned by the state in a country where the privatization of health care prevails.
Neira joined the walk because he was moved by Tomás’ suffering but also because he is worried that “in Chile we do not have the means, a clinic where we can have these medicines, that we have to go to this.”
Tomás was diagnosed in March 2023 with Duchenne’s syndrome, the most common but also most severe form of this type of muscular dystrophy that is triggered by a defective gene that affects dystrophin, a protein that helps keep the body’s cells intact.
It causes problems when walking and running, fatigue, learning difficulties and heart and respiratory deficiencies, and those who suffer from it usually have a life expectancy of between 20 or 30 years in difficult conditions.
With more than 700 kilometers of love in her terrified legs, this mother hopes to arrive in the Chilean capital at the end of this month of May from Chiloe, where there is a movement so that the spending on a bridge that they believe is unnecessary, is dedicated to the construction of a perentory hospital
International
North Korea amends its constitution and defines the South as a “hostile state”
North Korea confirmed some details about its recent constitutional amendment, where it has defined the South as a “hostile state”, in the first modification of its magna carta that eliminates references to a possible reunification.
“This is an inevitable and legitimate measure, in which South Korea is clearly defined as a hostile state, and it is due to the serious security circumstances that lead to the brink of war by the political and military provocations of hostile forces,” the North Korean state agency KCNA published today.
Changes in North Korea
Last week, North Korea concluded an important parliamentary session in which it was planned to amend its Constitution, but did not reveal any details about the changes then, although it did say that the vote had been held unanimously.
It was already expected that in this amendment references to reunification with the South would be removed and national borders would be redefined, as the country’s leader, Kim Jong-un, had ordered.
Kim urged to reflect that the South – with which relations have been non-existent in the last five years – is the main national enemy, to eliminate clauses related to reunification and to clarify what the territorial limits of the country are, including the disputed western maritime border.
Zero dialogues with the South
Experts believe that Kim’s desire to discard dialogue, formalize the existence of two clearly differentiated states in the peninsula and unilaterally define the northern borders can further worsen the terrible atmosphere that is breathed in the region.
Pyongyang’s constitutional amendment comes in a context of renewed resurgence of tensions with Seoul, after the latter’s Army fired shots south of the border with the North on Tuesday in response to the detonations used by the latter to destroy sections of roads in its territory that connect both countries.
The detonations occurred in northern sections of the Gyeongui and Donghae corridors and after Pyongyang announced last week that it was going to cut all transport routes to the neighboring country.
International
Relatives of the Menéndez brothers press for their release
The family members of Erik and Lyle Menéndez, the brothers who are serving a life sentence for killing their parents in Beverly Hills more than 35 years ago, asked the Los Angeles Prosecutor’s Office on Wednesday to consider releasing them, after the new evidence that came to light in the case.
The brothers were sentenced in 1996 to life imprisonment for the murder of their parents, José and Kitty Menéndez, in a controversial case in which the young people reported being sexually abused by their father.
“I had no idea of the magnitude of the abuse they suffered at the hands of my brother-in-law. None of us knew,” Joan Andersen VanderMolen, Kitty Menéndez’s sister, said in a choppy voice at a press conference in Los Angeles where more than 20 family members attended.
Menéndez brothers, victims of abuse
The woman described the couple’s death as “tragic,” but warned that it is now known that the abuse “has lasting effects and that trauma victims sometimes act in ways that are very difficult to understand.”
He added that at the time of the trial “the whole world was not prepared to hear that boys could be raped … and today we know more.”
For her part, Ana Maria Baralt, Erik and Lyle’s cousin and family spokesperson, said that “if the case had been heard today, with the understanding we have now about abuse and post-traumatic stress disorder, I have no doubt that the sentence would have been very different.”
Mark Geragos, the brothers’ lawyer, believes that the brothers must regain their freedom after the new evidence presented in the case to the office of the Los Angeles prosecutor, George Gascón.
The new tests
Among the new evidence is “a letter that one of the brothers allegedly sent to another family member confessing that he was a victim of abuse,” long before the murder.
Added to this are the statements of a member of the famous group Menudo, who claims that José Menéndez abused him on a visit to his home.
At the beginning of the month, Gascón said that although the Prosecutor’s Office maintains that the brothers committed the murders, it considers reviewing this evidence and making a decision on whether a new sentence is necessary.
After the crime, which occurred on the afternoon of August 20, 1989 at their home, located in a luxurious Beverly Hills neighborhood, with shotguns that they had bought days before the attack, the brothers told the authorities that they found the lifeless bodies of their parents after having spent the afternoon away from home.
The details of the crime
The case gained special relevance when the brothers began to follow a life of luxury and excesses after accessing their father’s fortune, which raised the suspicions of the authorities.
Shortly after, Erik’s psychologist’s girlfriend warned the Police of the existence of recorded sessions in which she admitted and discussed her guilt.
Although the Prosecutor’s Office argued that they sought to inherit the family fortune, the brothers affirmed, and today they maintain, that their actions were due to a lifetime of physical, emotional and sexual abuse by their father.
The brothers’ lawyer, Mark Geragos, also highlighted today that during their time in prison the brothers created programs to advise and guide other inmates, and were part of the first class of 22 prisoners who obtained their university degree while they were imprisoned.
The family also opened a website to seek public support in the release of the two brothers, of Cuban roots.
International
María Corina Machado denies Maduro and denies that he has fled to Spain: “I’m here in Venezuela”
The anti-Chavista leader María Corina Machado assured, in an interview with EVTV, that she is “in Venezuela,” with which she denies the Government of Nicolás Maduro, who had said shortly before that the former deputy “fled the country to Spain,” where the opponent Edmundo González Urrutia is exiled.
“Venezuelans know that I am here in Venezuela, people know it and Nicolás Maduro also knows it. What happens is that they are desperate to know where I am, and I am not going to give them that pleasure,” said Machado, who maintained that she and the citizens of the country are “here fighting and determined to advance to the end.”
On the other hand, the head of state, according to Machado, is in a “parallel universe surrounded by bodyguards” because “he knows that the people defeated him” in the presidential elections of July 28, in which the opponent asserts that González Urrutia was the “elected” candidate, despite the fact that the National Electoral Council (CNE) proclaimed Maduro the winner.
“María Corina Machado fled to Spain,” says the Government
Shortly before, the Government of Venezuela had assured that Machado “fled the country to Spain,” where the standard-bearer of the opposition coalition, Edmundo González Urrutia, considered the winner of the last presidential elections of July 28 by the Spanish Congress of Deputies, is exiled.
In a televised event, President Nicolás Maduro – proclaimed re-elected by the Venezuelan National Electoral Council (CNE) – said that “the sayona” – as he usually refers to in a derogatory way to Machado – “also left” the country and “fled” to “a very good tavern there somewhere in Spain.”
Although the head of state did not mention the name of the opponent, the Minister of Communication, Freddy Ñáñez, collected these statements and assured on Telegram that, according to the president, “María Corina Machado fled the country to Spain.”
Specifically, Maduro said: “I have a secret from you, but I don’t know, do you know how to keep a secret? (…) Who likes gossip? (…) It turns out that the old man (in reference to González Urrutia) left a month ago, (…) and the sayona also left, fled, fled, (…) left until the end, a very good tavern there in a place in Spain, (…) that’s where he got. Please don’t tell this to anyone.”
The ‘Sayona’ is a character who, according to Venezuelan oral literature, appears in the form of a specter and punishes unfaithful men.
Machado and González Urrutia
Last Monday, the president, without giving names or direct references, said that “she” had left the country, despite the fact that she has been banned from leaving the national territory since June 2014.
“Don’t tell anyone, he left the country, my sources tell me that he fled (…) they are cowards, they are good at sending messages of hatred and intolerance, but he left, his Gucci suitcases arrived and he left,” he said then, once again, without giving any name.
González Urrutia, leader of the main opposition coalition – the Democratic Unitary Platform (PUD) – arrived in Madrid on September 8, after requesting asylum due to the political and judicial “persecution” that he denounced having suffered in his country after the elections.
After the departure of the opponent, Machado, who claims to be in “the clandestinity”, fearing for his “life” and “freedom”, reiterated that he will continue to fight from Venezuela, while González Urrutia will do so “from the outside.”
Likewise, on September 30, the former deputy, in her speech of gratitude by videoconference after having won the Václav Havel Human Rights Award, reiterated that she will “continue to fight alongside the Venezuelan people.”
North Korea amends its constitution and defines the South as a “hostile state”
Relatives of the Menéndez brothers press for their release
María Corina Machado denies Maduro and denies that he has fled to Spain: “I’m here in Venezuela”
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