International
Chilean mother travels 1,300 kilometers on foot to try to save her son with dystrophy
In the city of Ancud, one of the most important of the Chiloe archipelago, in the south of Chile, there is no hospital, so if one of its about 165,000 inhabitants gets sick, he must take the ferry and travel about 50 kilometers to reach the neighboring city of Puerto Montt, the nearest place.
Camila Gómez, a young mother, decided to take a trip but this time to walk to the Palacio de la Moneda, in Santiago de Chile, more than 1,300 kilometers from her home, to raise funds and make visible the drama of her son Tomás, who suffers from Duchenne muscular dystrophy, one of the so-called “rare diseases”, which almost no one worries and no one finances.
Its main objective is to help collect the nearly four million dollars that costs a vital treatment that does not exist in Chile – it must be imported from the United States – and that would help stop the progression of the child’s ailment, barely five years old.
“Tomás has Duchenne muscular dystrophy in a neuromuscular degenerative disease that gradually weakens the muscles, the respiratory system and the heart, which leads to premature death,” he explains in one of the highs of his journey.
“In Chile there is no type of treatment for this disease, but in the United States there are several treatment options, there are three and here they told me that it was not possible to cover a medicine that is abroad. And it motivated me to do this walk, this physical effort,” he adds.
Gómez regrets that no one, neither the precarious public service nor the greedy private insurance, has offered him an exit in the country, although his son “does have options abroad.
“That’s why we decided to walk, to make the disease visible and take it very particularly to collect the 3.9 million dollars that the drug that is administered for the only time in a lifetime costs. So far (its administration) is approved until the age of four and five. Tomás is five and a half years old. So we are against time,” she urges in anguish.
Even so, hope has not been erased from his face and sometimes, especially when asked about solidarity, he outlines a smile of love and trust.
“We are all aware of the great health deficit, that Chile is a country very backward in health, unlike other more developed countries and we are all aware of that. So people have empathized, supported and contributed to the campaign,” he says.
Along with this mother, who left Ancud on April 28, her husband and father of Tomás, Alex Ross, a friend Álvaro Neira and Marco Reyes, president of the Duchenne Families corporation in Chile, who has two teenage children with the same disease and who proposed the Ross Gómez family to the odyssey.
“I am the logistical support for Camila and Marco who have been walking from Chiloé. I assist them on the way, usually with a change of clothes, food, food, I manage the lodging,” explains Alex.
“(Camila) Walk through Tomás, because we are against time, but he also does it so that no mom has to do it,” he says.
Camila’s third objective is to be able to speak in person with the President of the Republic, Gabriel Boric, to urge him to promote a bill to Congress that allows improving the coverage of rare diseases in the country, and medical assistance in rural areas, abandoned by the state in a country where the privatization of health care prevails.
Neira joined the walk because he was moved by Tomás’ suffering but also because he is worried that “in Chile we do not have the means, a clinic where we can have these medicines, that we have to go to this.”
Tomás was diagnosed in March 2023 with Duchenne’s syndrome, the most common but also most severe form of this type of muscular dystrophy that is triggered by a defective gene that affects dystrophin, a protein that helps keep the body’s cells intact.
It causes problems when walking and running, fatigue, learning difficulties and heart and respiratory deficiencies, and those who suffer from it usually have a life expectancy of between 20 or 30 years in difficult conditions.
With more than 700 kilometers of love in her terrified legs, this mother hopes to arrive in the Chilean capital at the end of this month of May from Chiloe, where there is a movement so that the spending on a bridge that they believe is unnecessary, is dedicated to the construction of a perentory hospital
International
Top U.S. Military Commander Meets Interim Venezuelan Leaders After Maduro’s Capture
The commander of the United States Southern Command, Marine Francis L. Donovan, visited Venezuela on Wednesday, holding meetings with interim leaders following the recent capture of former President Nicolás Maduro by U.S. forces. The visit, confirmed by both U.S. and Venezuelan officials, marked a significant diplomatic and security engagement in Caracas.
Donovan, accompanied by senior U.S. officials including acting Assistant Secretary of Defense Joseph M. Humire and top diplomat Laura Dogu, met with acting President Delcy Rodríguez and key members of her cabinet, including Defense Minister Vladimir Padrino López and Interior Minister Diosdado Cabello.
According to official statements, discussions focused on strengthening bilateral cooperation on regional security issues, including efforts to combat illicit drug trafficking, terrorism, and migration. Both sides reiterated a commitment to pursuing diplomatic engagement and shared security goals for Venezuela and the Western Hemisphere.
The meetings also discussed progress on a three-phase plan supported by the United States to help stabilize Venezuela, following Maduro’s removal from power and subsequent detention in the U.S. on drug-related charges. This agenda reflects expanding U.S. engagement with Venezuela’s interim government amid broader efforts to restore diplomatic relations and address regional challenges.
The visit concluded on Wednesday, underscoring a growing U.S. focus on cooperation with Venezuelan authorities in the aftermath of major political developments earlier this year.
International
Bayly Says Trump ‘Gets Along Better With Dictators’ and Criticizes U.S.–Venezuela Policy
Peruvian author and journalist Jaime Bayly said Tuesday in Madrid that U.S. President Donald Trump “gets along better with dictators than he does with democrats” and that his administration is experiencing “a honeymoon with the Venezuelan dictatorship,” according to a report on his remarks during the launch of his new novel Los golpistas (Galaxia Gutenberg).
Bayly made the comments while presenting the book, which reconstructs the turbulent three days in April 2002 when Venezuelan leader Hugo Chávez briefly lost power. He also sharply criticized the current Venezuelan leadership, saying that Delcy Rodríguez should be recognized as a dictator and “a continuation of Maduro’s dictatorship.”
The writer lamented that the failed 2002 coup — which he described as carried out by “amateurs” — did not lead to free elections that might have restored democracy to Venezuela. He argued that, even now, U.S. policy under Trump seems more focused on securing access to Venezuelan oil than on supporting Venezuelans’ freedom. “Venezuela could have chosen a free, clean and legitimate government — which we still impatiently await despite Trump, who only seems interested in freeing Venezuelan oil, not Venezuelans,” Bayly said.
Bayly also claimed that “every day that passes, Trump seems more enchanted with Delcy,” suggesting that Washington might leave Venezuelan leaders in power so long as they cooperate on economic interests.
A U.S. citizen who has lived in Miami for decades, Bayly said he is proud never to have voted for Trump, whom he described as “servile with the powerful and cruel with the weak.” He also criticized U.S. immigration enforcement as abusive.
Regarding the book’s creative process, Bayly said he combined extensive documentation and interviews with historical events, weaving fictional dialogue and narrative into real episodes without altering core facts. Los golpistas explores why the April 2002 coup attempt against Chávez failed and how key figures such as Chávez and Cuban leader Fidel Castroshaped modern Venezuelan history.
International
Maduro and Cilia Flores Receive Consular Visit in U.S. Jail Ahead of March 26 Hearing
Venezuelan President Nicolás Maduro, who is detained in the United States, and his wife, Cilia Flores, received a consular visit from a Venezuelan government official on January 30 while they remain in a New York jail awaiting their next court appearance, scheduled for March 26, 2026, according to a court filing.
The notification, submitted to the judge by prosecutors and the defense and now part of the digital case file, states that Maduro and Flores were visited by “an official representing the Republic of Venezuela to help facilitate any services the accused needed.”
The document also notes that U.S. District Judge Alvin Hellerstein ordered the U.S. prosecutor’s office at the couple’s first court appearance on January 5 to ensure they had access to consular services and to inform the court when such access was provided.
Their next hearing was postponed by the court from an original date of March 17 to March 26 at 11:00 a.m., after prosecutors, with the consent of the defense, requested extra time to gather evidence, allow the defense to review it, and determine which pretrial motions they will file, the filing says.
Maduro has denied wrongdoing, calling himself “innocent” of the narcotics charges authorities have brought in federal court.
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