International
Chilean mother travels 1,300 kilometers on foot to try to save her son with dystrophy
In the city of Ancud, one of the most important of the Chiloe archipelago, in the south of Chile, there is no hospital, so if one of its about 165,000 inhabitants gets sick, he must take the ferry and travel about 50 kilometers to reach the neighboring city of Puerto Montt, the nearest place.
Camila Gómez, a young mother, decided to take a trip but this time to walk to the Palacio de la Moneda, in Santiago de Chile, more than 1,300 kilometers from her home, to raise funds and make visible the drama of her son Tomás, who suffers from Duchenne muscular dystrophy, one of the so-called “rare diseases”, which almost no one worries and no one finances.
Its main objective is to help collect the nearly four million dollars that costs a vital treatment that does not exist in Chile – it must be imported from the United States – and that would help stop the progression of the child’s ailment, barely five years old.
“Tomás has Duchenne muscular dystrophy in a neuromuscular degenerative disease that gradually weakens the muscles, the respiratory system and the heart, which leads to premature death,” he explains in one of the highs of his journey.
“In Chile there is no type of treatment for this disease, but in the United States there are several treatment options, there are three and here they told me that it was not possible to cover a medicine that is abroad. And it motivated me to do this walk, this physical effort,” he adds.
Gómez regrets that no one, neither the precarious public service nor the greedy private insurance, has offered him an exit in the country, although his son “does have options abroad.
“That’s why we decided to walk, to make the disease visible and take it very particularly to collect the 3.9 million dollars that the drug that is administered for the only time in a lifetime costs. So far (its administration) is approved until the age of four and five. Tomás is five and a half years old. So we are against time,” she urges in anguish.
Even so, hope has not been erased from his face and sometimes, especially when asked about solidarity, he outlines a smile of love and trust.
“We are all aware of the great health deficit, that Chile is a country very backward in health, unlike other more developed countries and we are all aware of that. So people have empathized, supported and contributed to the campaign,” he says.
Along with this mother, who left Ancud on April 28, her husband and father of Tomás, Alex Ross, a friend Álvaro Neira and Marco Reyes, president of the Duchenne Families corporation in Chile, who has two teenage children with the same disease and who proposed the Ross Gómez family to the odyssey.
“I am the logistical support for Camila and Marco who have been walking from Chiloé. I assist them on the way, usually with a change of clothes, food, food, I manage the lodging,” explains Alex.
“(Camila) Walk through Tomás, because we are against time, but he also does it so that no mom has to do it,” he says.
Camila’s third objective is to be able to speak in person with the President of the Republic, Gabriel Boric, to urge him to promote a bill to Congress that allows improving the coverage of rare diseases in the country, and medical assistance in rural areas, abandoned by the state in a country where the privatization of health care prevails.
Neira joined the walk because he was moved by Tomás’ suffering but also because he is worried that “in Chile we do not have the means, a clinic where we can have these medicines, that we have to go to this.”
Tomás was diagnosed in March 2023 with Duchenne’s syndrome, the most common but also most severe form of this type of muscular dystrophy that is triggered by a defective gene that affects dystrophin, a protein that helps keep the body’s cells intact.
It causes problems when walking and running, fatigue, learning difficulties and heart and respiratory deficiencies, and those who suffer from it usually have a life expectancy of between 20 or 30 years in difficult conditions.
With more than 700 kilometers of love in her terrified legs, this mother hopes to arrive in the Chilean capital at the end of this month of May from Chiloe, where there is a movement so that the spending on a bridge that they believe is unnecessary, is dedicated to the construction of a perentory hospital
International
India Approves New Dengue Vaccine as Global Cases Continue to Rise
India has approved a new dengue vaccine as health authorities seek to strengthen prevention efforts against a mosquito-borne viral disease that affects millions of people worldwide every year.
According to the World Health Organization (WHO), half of the global population is currently at risk of contracting dengue, which causes between 100 million and 400 million infections annually.
Since 2021, India has recorded more than one million dengue cases, including at least 1,500 deaths.
The virus can cause high fever, severe headaches, muscle pain, nausea, skin rashes and, in rare cases, internal bleeding and death.
The vaccine, authorized by India’s Central Drugs Standard Control Organization (CDSCO), was developed by Japanese pharmaceutical company Takeda. The Indian Health Ministry said the vaccine is recommended in two doses for people between 4 and 60 years old.
The treatment has already been approved by health authorities in around 40 countries worldwide.
Meanwhile, Indian pharmaceutical company Panacea Biotec has begun the final phase of clinical trials for a single-dose dengue vaccine, aiming to provide another prevention option against the disease.
Brazil recently announced the suspension of the use of another single-dose dengue vaccine developed in the country after two suspected deaths were reported.
International
U.S. Sends First Humanitarian Aid Flight to Cuba Amid Ongoing Tensions Between Both Governments
The United States announced Tuesday the dispatch of a humanitarian aid flight to Cuba as part of a $100 million assistance package proposed by Secretary of State Marco Rubio in May.
The flight departed from Miami with the support of Catholic Relief Services, according to a statement from the U.S. State Department.
The administration of President Donald Trump, which has maintained restrictions on oil supplies to the island and tightened sanctions against the Cuban government, had initially announced humanitarian assistance in November following the devastating impact of Hurricane Melissa.
In February, amid rising tensions between Washington and Havana, Rubio announced an increase in aid while continuing to criticize the Cuban government.
The U.S. secretary of state accused Cuba’s communist authorities of obstructing the distribution of assistance. Washington has insisted that the aid be delivered through the Catholic Church to ensure it reaches Cuban citizens directly.
The Cuban government, meanwhile, has blamed the U.S. oil blockade for making the distribution of humanitarian assistance significantly more difficult.
The aid shipment comes as relations between the two countries remain strained, with disagreements continuing over sanctions, energy supplies and the management of humanitarian support.
International
Controversial Pesticide Law Passes in France, Sparking Ecological Concerns and Ministerial Fallout
The French Parliament on Tuesday approved a highly controversial agricultural law that allows certain farmers to use two pesticides considered harmful to bees, substances that had been banned in France but remain authorized in the European Union.
After the National Assembly, the lower house of Parliament, approved the agricultural bill in the early hours of Tuesday, the Senate gave its final approval with a vote of 214 in favor and 111 against, officially adopting the measure.
Following the decision to reintroduce the use of acetamiprid and flupyradifurone, the office of Environment Minister Monique Barbut announced that she would soon submit her resignation.
Supporters of the measure argue that French producers of sugar beets, apples and hazelnuts need access to these insecticides — banned in France since 2018 and 2019, respectively — to remain competitive with European farmers in other countries where the products are still allowed.
Opponents, including environmental groups, argue that the substances pose serious risks to bees and could also threaten human health.
“Let us be proud of the work that has been done,” said Senator Laurent Duplomb of the conservative Republicans party, one of the main supporters of the measure.
The vote came after France’s Constitutional Council, the country’s highest court, struck down a previous attempt last year to bring back acetamiprid, ruling that the measure could pose risks to human health. That decision followed a petition signed by more than two million people opposing the pesticide’s reintroduction.
The previous bill had also been promoted by Duplomb, who argued that French agriculture needed additional tools to compete in international markets.
India Approves New Dengue Vaccine as Global Cases Continue to Rise
U.S. Sends First Humanitarian Aid Flight to Cuba Amid Ongoing Tensions Between Both Governments
Controversial Pesticide Law Passes in France, Sparking Ecological Concerns and Ministerial Fallout
Tec de Monterrey honors one of its students for his contribution to nanotechnology in medicine
Defense Minister commends salvadoran soldier for Central American Cross Country victory
Extension of the state of emergency approved in southern Chile
-
International3 days agoTen Bodies Found in Mexico’s Zacatecas State Amid Security Operation
-
International9 hours agoControversial Pesticide Law Passes in France, Sparking Ecological Concerns and Ministerial Fallout
-
International1 day agoIran Says It Is in “Full-Scale War” as U.S. Launches Ninth Consecutive Night of Airstrikes
-
International1 day agoFrench Parliament Moves to Approve Social Media Age Limit for Minors
-
International1 day agoWHO to Hold New Round of Talks After Slow Progress on Pandemic Accord
-
International9 hours agoU.S. Sends First Humanitarian Aid Flight to Cuba Amid Ongoing Tensions Between Both Governments
-
Sports9 hours agoMLS Awaits Blockbuster Debuts as Griezmann and Lewandowski Join the Spotlight
-
International9 hours agoIndia Approves New Dengue Vaccine as Global Cases Continue to Rise