International
Chilean mother travels 1,300 kilometers on foot to try to save her son with dystrophy
In the city of Ancud, one of the most important of the Chiloe archipelago, in the south of Chile, there is no hospital, so if one of its about 165,000 inhabitants gets sick, he must take the ferry and travel about 50 kilometers to reach the neighboring city of Puerto Montt, the nearest place.
Camila Gómez, a young mother, decided to take a trip but this time to walk to the Palacio de la Moneda, in Santiago de Chile, more than 1,300 kilometers from her home, to raise funds and make visible the drama of her son Tomás, who suffers from Duchenne muscular dystrophy, one of the so-called “rare diseases”, which almost no one worries and no one finances.
Its main objective is to help collect the nearly four million dollars that costs a vital treatment that does not exist in Chile – it must be imported from the United States – and that would help stop the progression of the child’s ailment, barely five years old.
“Tomás has Duchenne muscular dystrophy in a neuromuscular degenerative disease that gradually weakens the muscles, the respiratory system and the heart, which leads to premature death,” he explains in one of the highs of his journey.
“In Chile there is no type of treatment for this disease, but in the United States there are several treatment options, there are three and here they told me that it was not possible to cover a medicine that is abroad. And it motivated me to do this walk, this physical effort,” he adds.
Gómez regrets that no one, neither the precarious public service nor the greedy private insurance, has offered him an exit in the country, although his son “does have options abroad.
“That’s why we decided to walk, to make the disease visible and take it very particularly to collect the 3.9 million dollars that the drug that is administered for the only time in a lifetime costs. So far (its administration) is approved until the age of four and five. Tomás is five and a half years old. So we are against time,” she urges in anguish.
Even so, hope has not been erased from his face and sometimes, especially when asked about solidarity, he outlines a smile of love and trust.
“We are all aware of the great health deficit, that Chile is a country very backward in health, unlike other more developed countries and we are all aware of that. So people have empathized, supported and contributed to the campaign,” he says.
Along with this mother, who left Ancud on April 28, her husband and father of Tomás, Alex Ross, a friend Álvaro Neira and Marco Reyes, president of the Duchenne Families corporation in Chile, who has two teenage children with the same disease and who proposed the Ross Gómez family to the odyssey.
“I am the logistical support for Camila and Marco who have been walking from Chiloé. I assist them on the way, usually with a change of clothes, food, food, I manage the lodging,” explains Alex.
“(Camila) Walk through Tomás, because we are against time, but he also does it so that no mom has to do it,” he says.
Camila’s third objective is to be able to speak in person with the President of the Republic, Gabriel Boric, to urge him to promote a bill to Congress that allows improving the coverage of rare diseases in the country, and medical assistance in rural areas, abandoned by the state in a country where the privatization of health care prevails.
Neira joined the walk because he was moved by Tomás’ suffering but also because he is worried that “in Chile we do not have the means, a clinic where we can have these medicines, that we have to go to this.”
Tomás was diagnosed in March 2023 with Duchenne’s syndrome, the most common but also most severe form of this type of muscular dystrophy that is triggered by a defective gene that affects dystrophin, a protein that helps keep the body’s cells intact.
It causes problems when walking and running, fatigue, learning difficulties and heart and respiratory deficiencies, and those who suffer from it usually have a life expectancy of between 20 or 30 years in difficult conditions.
With more than 700 kilometers of love in her terrified legs, this mother hopes to arrive in the Chilean capital at the end of this month of May from Chiloe, where there is a movement so that the spending on a bridge that they believe is unnecessary, is dedicated to the construction of a perentory hospital
International
Iran issues threat to Trump as conflict escalates over Strait of Hormuz
The head of Iran’s Supreme National Security Council, Ali Larijani, threatened U.S. President Donald Trump on Tuesday, warning him to “beware of being eliminated.”
The Republican president had warned on Monday that he would strike Iran “very hard” if the Islamic Republic blocked oil shipments through the Strait of Hormuz, which has effectively been closed since the war began eleven days ago.
“Iran is not afraid of your empty threats. Others more powerful than you tried to destroy the Iranian nation and failed. Beware that you are not eliminated,” Larijani wrote on X.
Earlier, Iran’s Revolutionary Guards — the ideological military force of the Islamic Republic — also said their forces would move to block oil exports from the Gulf.
Meanwhile, Israeli Prime Minister Benjamin Netanyahu said Israel’s military offensive against Iran is far from over.
“Our aspiration is that the Iranian people free themselves from the yoke of tyranny; ultimately, that depends on them. But there is no doubt that with the measures taken so far we are breaking their bones, and we are not finished yet,” Netanyahu said in a statement.
International
Driver detained after suspicious vehicle incident near the White House
The driver was detained and no injuries were reported after an incident that occurred before dawn in Lafayette Square, just north of the White House.
The U.S. Secret Service, which is responsible for presidential security, said in a statement that it was “investigating a suspicious vehicle.” The driver of the car was taken into custody and is currently being questioned.
Washington remains under heightened security measures amid the ongoing conflict involving the United States and Israel against Iran.
Police closed several major streets around the White House. However, by about 8:30 a.m. local time (12:30 GMT), government employees and staff from nearby institutions were allowed to pass through the area with proper identification, according to an AFP journalist at the scene.
Dozens of emergency vehicles with flashing lights responded to the location, while tourists and residents waited for authorities to reopen the streets.
International
Trump Raises Possibility of “Friendly Takeover” of Cuba Amid Deepening Crisis
The President of the United States, Donald Trump, reiterated Monday the possibility that Washington could pursue a “friendly takeover” of Cuba, amid the severe crisis facing the island following the oil blockade promoted by the U.S. government.
Speaking at a press conference in Miami, the president said that U.S. Secretary of State Marco Rubio is currently “negotiating” with representatives of the Cuban government, although authorities in Havana have repeatedly denied that such talks are taking place.
Trump suggested that Washington could play a more direct role in the island’s future.
“It may be a friendly takeover. It may not be a friendly takeover. It wouldn’t matter because they’re really down to, as they say, fumes. They have no energy, they have no money. They are in deep trouble on a humanitarian basis, and we really don’t want to see that,” the U.S. president said.
The president also argued that the Cuban government had long depended heavily on support from Venezuela, particularly oil supplies.
According to Trump, that support has been drastically reduced following measures adopted by Washington.
“They were living off Venezuela. Venezuela doesn’t send them energy, fuel, oil, money, or anything anymore. They couldn’t survive without Venezuela, they couldn’t have made it, and we cut everything off,” Trump said.
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