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Chilean mother travels 1,300 kilometers on foot to try to save her son with dystrophy

In the city of Ancud, one of the most important of the Chiloe archipelago, in the south of Chile, there is no hospital, so if one of its about 165,000 inhabitants gets sick, he must take the ferry and travel about 50 kilometers to reach the neighboring city of Puerto Montt, the nearest place.

Camila Gómez, a young mother, decided to take a trip but this time to walk to the Palacio de la Moneda, in Santiago de Chile, more than 1,300 kilometers from her home, to raise funds and make visible the drama of her son Tomás, who suffers from Duchenne muscular dystrophy, one of the so-called “rare diseases”, which almost no one worries and no one finances.

Its main objective is to help collect the nearly four million dollars that costs a vital treatment that does not exist in Chile – it must be imported from the United States – and that would help stop the progression of the child’s ailment, barely five years old.

“Tomás has Duchenne muscular dystrophy in a neuromuscular degenerative disease that gradually weakens the muscles, the respiratory system and the heart, which leads to premature death,” he explains in one of the highs of his journey.

“In Chile there is no type of treatment for this disease, but in the United States there are several treatment options, there are three and here they told me that it was not possible to cover a medicine that is abroad. And it motivated me to do this walk, this physical effort,” he adds.

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Gómez regrets that no one, neither the precarious public service nor the greedy private insurance, has offered him an exit in the country, although his son “does have options abroad.

“That’s why we decided to walk, to make the disease visible and take it very particularly to collect the 3.9 million dollars that the drug that is administered for the only time in a lifetime costs. So far (its administration) is approved until the age of four and five. Tomás is five and a half years old. So we are against time,” she urges in anguish.

Even so, hope has not been erased from his face and sometimes, especially when asked about solidarity, he outlines a smile of love and trust.

“We are all aware of the great health deficit, that Chile is a country very backward in health, unlike other more developed countries and we are all aware of that. So people have empathized, supported and contributed to the campaign,” he says.

Along with this mother, who left Ancud on April 28, her husband and father of Tomás, Alex Ross, a friend Álvaro Neira and Marco Reyes, president of the Duchenne Families corporation in Chile, who has two teenage children with the same disease and who proposed the Ross Gómez family to the odyssey.

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“I am the logistical support for Camila and Marco who have been walking from Chiloé. I assist them on the way, usually with a change of clothes, food, food, I manage the lodging,” explains Alex.

“(Camila) Walk through Tomás, because we are against time, but he also does it so that no mom has to do it,” he says.

Camila’s third objective is to be able to speak in person with the President of the Republic, Gabriel Boric, to urge him to promote a bill to Congress that allows improving the coverage of rare diseases in the country, and medical assistance in rural areas, abandoned by the state in a country where the privatization of health care prevails.

Neira joined the walk because he was moved by Tomás’ suffering but also because he is worried that “in Chile we do not have the means, a clinic where we can have these medicines, that we have to go to this.”

Tomás was diagnosed in March 2023 with Duchenne’s syndrome, the most common but also most severe form of this type of muscular dystrophy that is triggered by a defective gene that affects dystrophin, a protein that helps keep the body’s cells intact.

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It causes problems when walking and running, fatigue, learning difficulties and heart and respiratory deficiencies, and those who suffer from it usually have a life expectancy of between 20 or 30 years in difficult conditions.

With more than 700 kilometers of love in her terrified legs, this mother hopes to arrive in the Chilean capital at the end of this month of May from Chiloe, where there is a movement so that the spending on a bridge that they believe is unnecessary, is dedicated to the construction of a perentory hospital

International

Colombia says it would not reject Maduro asylum request as regional tensions escalate

The Colombian government stated on Thursday that it would have no reason to reject a potential asylum request from Venezuelan President Nicolás Maduro should he leave office, as regional tensions persist over the deployment of U.S. military forces in the Caribbean since August.

“In the current climate of tension, negotiations are necessary, and if the United States demands a transition or political change, that is something to be assessed. If such a transition results in him (Maduro) needing to live elsewhere or seek protection, Colombia would have no reason to deny it,” said Colombian Foreign Minister Rosa Villavicencio in an interview with Caracol Radio.
However, Villavicencio noted that it is unlikely Maduro would choose Colombia as a refuge. “I believe he would opt for someplace more distant and calmer,” she added.

Colombian President Gustavo Petro also commented on Venezuela’s situation on Wednesday, arguing that the country needs a “democratic revolution” rather than “inefficient repression.” His remarks followed the recent detention and passport cancellation of Cardinal Baltazar Porras at the Caracas airport.

“The Maduro government must understand that responding to external aggression requires more than military preparations; it requires a democratic revolution. A country is defended with more democracy, not more inefficient repression,” Petro wrote on X (formerly Twitter), in a rare public criticism of the Venezuelan leader.

Petro also called for a general amnesty for political opponents and reiterated his call for forming a broad transitional government to address Venezuela’s prolonged crisis.

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Since September, U.S. military forces have destroyed more than 20 vessels allegedly carrying drugs in Caribbean and Pacific waters near Venezuela and Colombia, resulting in over 80 deaths.
U.S. President Donald Trump has repeatedly warned that attacks “inside Venezuela” will begin “soon,” while Maduro has urged Venezuelans to prepare for what he describes as an impending external aggression.

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International

Cuba battles out-of-control dengue and chikungunya epidemic as death toll rises to 44

Cuba is facing a severe dengue and chikungunya epidemic that has already claimed at least 44 lives, including 29 minors, according to the Ministry of Public Health (Minsap). The outbreak—now considered out of control—has expanded across the entire country amid a critical shortage of resources to confront the emergency.

Authorities report more than 42,000 chikungunya infections and at least 26,000 dengue cases, though they acknowledge significant underreporting as many patients avoid seeking care in health centers where medicines, supplies, and medical personnel are scarce. The first cluster was detected in July in the city of Matanzas, but the government did not officially use the term “epidemic” until November 12.

Chikungunya—virtually unknown on the island until this year—causes high fever, rashes, fatigue, and severe joint pain that can last for months, leaving thousands temporarily incapacitated. Dengue, endemic to the region, triggers fever, muscle pain, vomiting, and, in severe cases, internal bleeding. Cuba currently has no vaccines available for either virus.

Minsap reports that of the 44 deaths recorded so far, 28 were caused by chikungunya and 16 by dengue.

The health crisis unfolds amid deep economic deterioration, marked by the absence of fumigation campaigns, uncollected garbage, and shortages of medical supplies—conditions that have fueled the spread of the Aedes aegypti mosquito, the primary vector for both diseases. “The healthcare system is overwhelmed,” non-official medical sources acknowledge.

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Beyond the health impact, the epidemic is heavily disrupting economic and family life. The intense joint pain caused by chikungunya has led to widespread work absences, while hospital overcrowding has forced relatives to leave their jobs to care for the sick. In November, authorities launched a clinical trial using the Cuban drug Jusvinza to reduce joint pain, though results have not yet been released.

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International

Ecuador on track for record violence as homicides hit highest level in Latin America again

Violence in Ecuador is expected to reach historic levels by the end of 2025, with the country set to record the highest homicide rate in Latin America for the third consecutive year, according to a report released Thursday by the Armed Conflict Location & Event Data Project (ACLED). The organization warns that criminal activity is not only persisting but could worsen in 2026.

Official figures show 7,553 homicides recorded through October, surpassing the 7,063 registered throughout all of 2024. ACLED estimates that 71% of the population was exposed to violent incidents this year, despite President Daniel Noboa’s declaration of an “internal armed conflict” in an attempt to confront powerful criminal groups.

According to the report, several factors are driving the deterioration of security: a territorial war between Los Chonerosand Los Lobos, the two most influential criminal organizations in the country; the fragmentation of other groups after the fall of their leaders; and Ecuador’s expanding role as a strategic hub for regional drug trafficking.

Since 2021, violence has forced the internal displacement of around 132,000 people, while more than 400,000 Ecuadorians — equivalent to 2% of the population — have left the country. Between January and November alone, violent deaths rose 42%, fueled by prison massacres and clashes between rival gangs.

The report warns that conditions may deteriorate further. Ecuador has been added to ACLED’s 2026 Conflict Watchlist, which highlights regions at risk of escalating violence. The expansion of Colombian armed groups such as FARC dissidents and the ELN, state weakness, and a potential rerouting of drug trafficking corridors from the Caribbean to the Pacific intensify the threat.

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“The president is facing a wave of violence that shows no signs of easing,” the report concludes.

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