International
Chilean mother travels 1,300 kilometers on foot to try to save her son with dystrophy
In the city of Ancud, one of the most important of the Chiloe archipelago, in the south of Chile, there is no hospital, so if one of its about 165,000 inhabitants gets sick, he must take the ferry and travel about 50 kilometers to reach the neighboring city of Puerto Montt, the nearest place.
Camila Gómez, a young mother, decided to take a trip but this time to walk to the Palacio de la Moneda, in Santiago de Chile, more than 1,300 kilometers from her home, to raise funds and make visible the drama of her son Tomás, who suffers from Duchenne muscular dystrophy, one of the so-called “rare diseases”, which almost no one worries and no one finances.
Its main objective is to help collect the nearly four million dollars that costs a vital treatment that does not exist in Chile – it must be imported from the United States – and that would help stop the progression of the child’s ailment, barely five years old.
“Tomás has Duchenne muscular dystrophy in a neuromuscular degenerative disease that gradually weakens the muscles, the respiratory system and the heart, which leads to premature death,” he explains in one of the highs of his journey.
“In Chile there is no type of treatment for this disease, but in the United States there are several treatment options, there are three and here they told me that it was not possible to cover a medicine that is abroad. And it motivated me to do this walk, this physical effort,” he adds.
Gómez regrets that no one, neither the precarious public service nor the greedy private insurance, has offered him an exit in the country, although his son “does have options abroad.
“That’s why we decided to walk, to make the disease visible and take it very particularly to collect the 3.9 million dollars that the drug that is administered for the only time in a lifetime costs. So far (its administration) is approved until the age of four and five. Tomás is five and a half years old. So we are against time,” she urges in anguish.
Even so, hope has not been erased from his face and sometimes, especially when asked about solidarity, he outlines a smile of love and trust.
“We are all aware of the great health deficit, that Chile is a country very backward in health, unlike other more developed countries and we are all aware of that. So people have empathized, supported and contributed to the campaign,” he says.
Along with this mother, who left Ancud on April 28, her husband and father of Tomás, Alex Ross, a friend Álvaro Neira and Marco Reyes, president of the Duchenne Families corporation in Chile, who has two teenage children with the same disease and who proposed the Ross Gómez family to the odyssey.
“I am the logistical support for Camila and Marco who have been walking from Chiloé. I assist them on the way, usually with a change of clothes, food, food, I manage the lodging,” explains Alex.
“(Camila) Walk through Tomás, because we are against time, but he also does it so that no mom has to do it,” he says.
Camila’s third objective is to be able to speak in person with the President of the Republic, Gabriel Boric, to urge him to promote a bill to Congress that allows improving the coverage of rare diseases in the country, and medical assistance in rural areas, abandoned by the state in a country where the privatization of health care prevails.
Neira joined the walk because he was moved by Tomás’ suffering but also because he is worried that “in Chile we do not have the means, a clinic where we can have these medicines, that we have to go to this.”
Tomás was diagnosed in March 2023 with Duchenne’s syndrome, the most common but also most severe form of this type of muscular dystrophy that is triggered by a defective gene that affects dystrophin, a protein that helps keep the body’s cells intact.
It causes problems when walking and running, fatigue, learning difficulties and heart and respiratory deficiencies, and those who suffer from it usually have a life expectancy of between 20 or 30 years in difficult conditions.
With more than 700 kilometers of love in her terrified legs, this mother hopes to arrive in the Chilean capital at the end of this month of May from Chiloe, where there is a movement so that the spending on a bridge that they believe is unnecessary, is dedicated to the construction of a perentory hospital
International
Sheinbaum highlights anti-drug gains after U.S. says challenges remain
Mexican President Claudia Sheinbaum on Friday highlighted her government’s achievements in the fight against drug trafficking, after the United States said challenges remain in combating organized crime.
On Thursday, Mexican Foreign Minister Juan Ramón de la Fuente held talks with his U.S. counterpart, Secretary of State Marco Rubio. Following the meeting, the U.S. State Department said in a statement that “despite progress, challenges still exist” in addressing organized crime.
“There are very strong results from joint cooperation and from the work Mexico is doing: first, a 50% reduction in fentanyl seizures at the U.S. border,” Sheinbaum said during her regular morning press conference.
The president also said that authorities have seized nearly 320 tons of drugs and that there has been a “40% decrease in intentional homicides in Mexico” since the start of her administration on October 1, 2024.
Sheinbaum added that the United States should implement campaigns to reduce drug consumption within its territory and curb the flow of weapons into Mexico.
“There are many results and there will be more, but there must be mutual respect and shared responsibility, as well as respect for our sovereignties,” she said.
On Monday, Sheinbaum held a phone call with U.S. President Donald Trump to discuss security issues. She said she once again ruled out the presence of U.S. troops in Mexico to fight drug cartels.
Security has been a recurring issue used by Trump to threaten tariffs on Mexico and to pressure negotiations over the USMCA (T-MEC) free trade agreement, which are scheduled for 2026.
The agreement is crucial for Mexico’s economy, as about 80% of the country’s exports are destined for the United States.
International
Canada accuses Iran of killing its citizen during anti-government unrest
A Canadian citizen has died “at the hands of Iranian authorities,” the Canadian government said on Thursday, amid ongoing protests against the government in Tehran.
“I have just learned that a Canadian citizen has died in Iran at the hands of Iranian authorities,” Canada’s Minister of Foreign Affairs, Anita Anand, said, without providing further details. She added that Tehran’s response to what she described as “peaceful protests” has “led the regime to show a blatant disregard for human life.”
On Thursday, the United States imposed sanctions on Iranian security officials and individuals linked to the country’s banking networks, accusing them of orchestrating a violent crackdown on peaceful demonstrations and laundering billions of dollars in oil revenues. U.S. Treasury Secretary Scott Bessent announced the measures following what were described as the largest anti-government protests in the history of the Islamic Republic, although demonstrations have reportedly eased in recent days amid heavy repression and a near week-long internet shutdown.
“The United States stands firmly with the Iranian people in their pursuit of freedom and justice,” Bessent said in a statement, adding that the sanctions were imposed at the direction of President Donald Trump.
Those sanctioned include Ali Larijani, secretary of Iran’s Supreme National Security Council, whom Washington accused of coordinating the repression and the use of force against protesters.
International
Ukraine declares nationwide energy emergency amid russian attacks and extreme cold
The Ukrainian government on Wednesday declared a nationwide energy state of emergency amid continued Russian military attacks and extreme winter weather, with nighttime temperatures dropping as low as minus 18 degrees Celsius.
“The consequences of Russian attacks and worsening weather conditions are severe (…) Overall, a state of emergency will be declared for Ukraine’s energy sector,” Ukrainian President Volodymyr Zelensky said in a statement posted on social media following a meeting with senior officials.
Zelensky announced the creation of a “permanent coordination headquarters” to manage the crisis in the capital, Kyiv, and tasked former defence minister and current energy chief Denys Shmyhal with overseeing support efforts for affected individuals and communities, including addressing power outages, heating shortages and other “practical issues.”
“There are many problems that require urgent solutions,” the president said, noting that repair crews, energy companies, municipal services and the State Emergency Service are working “around the clock” to restore electricity supplies. Kyiv has been particularly affected after Russian strikes last Friday disabled key parts of the power grid, as daytime temperatures hover around minus 12 degrees Celsius and plunge to minus 18 at night.
Zelensky added that public authorities will “maximize efforts with partners to obtain the necessary equipment and additional support,” while the government will ensure “maximum deregulation of all processes” to speed up the connection of backup power equipment to the grid. He also confirmed that work is underway to significantly increase electricity imports into Ukraine.
The Ukrainian leader further instructed his Cabinet to review curfew regulations in light of the extreme cold, arguing that citizens must have the greatest possible access to assistance centers, while businesses should be given flexibility to plan their operations according to the state of the energy system.
Sheinbaum highlights anti-drug gains after U.S. says challenges remain
Canada accuses Iran of killing its citizen during anti-government unrest
Ukraine declares nationwide energy emergency amid russian attacks and extreme cold
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Defense Minister commends salvadoran soldier for Central American Cross Country victory
Extension of the state of emergency approved in southern Chile
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