International
Chilean mother travels 1,300 kilometers on foot to try to save her son with dystrophy
In the city of Ancud, one of the most important of the Chiloe archipelago, in the south of Chile, there is no hospital, so if one of its about 165,000 inhabitants gets sick, he must take the ferry and travel about 50 kilometers to reach the neighboring city of Puerto Montt, the nearest place.
Camila Gómez, a young mother, decided to take a trip but this time to walk to the Palacio de la Moneda, in Santiago de Chile, more than 1,300 kilometers from her home, to raise funds and make visible the drama of her son Tomás, who suffers from Duchenne muscular dystrophy, one of the so-called “rare diseases”, which almost no one worries and no one finances.
Its main objective is to help collect the nearly four million dollars that costs a vital treatment that does not exist in Chile – it must be imported from the United States – and that would help stop the progression of the child’s ailment, barely five years old.
“Tomás has Duchenne muscular dystrophy in a neuromuscular degenerative disease that gradually weakens the muscles, the respiratory system and the heart, which leads to premature death,” he explains in one of the highs of his journey.
“In Chile there is no type of treatment for this disease, but in the United States there are several treatment options, there are three and here they told me that it was not possible to cover a medicine that is abroad. And it motivated me to do this walk, this physical effort,” he adds.
Gómez regrets that no one, neither the precarious public service nor the greedy private insurance, has offered him an exit in the country, although his son “does have options abroad.
“That’s why we decided to walk, to make the disease visible and take it very particularly to collect the 3.9 million dollars that the drug that is administered for the only time in a lifetime costs. So far (its administration) is approved until the age of four and five. Tomás is five and a half years old. So we are against time,” she urges in anguish.
Even so, hope has not been erased from his face and sometimes, especially when asked about solidarity, he outlines a smile of love and trust.
“We are all aware of the great health deficit, that Chile is a country very backward in health, unlike other more developed countries and we are all aware of that. So people have empathized, supported and contributed to the campaign,” he says.
Along with this mother, who left Ancud on April 28, her husband and father of Tomás, Alex Ross, a friend Álvaro Neira and Marco Reyes, president of the Duchenne Families corporation in Chile, who has two teenage children with the same disease and who proposed the Ross Gómez family to the odyssey.
“I am the logistical support for Camila and Marco who have been walking from Chiloé. I assist them on the way, usually with a change of clothes, food, food, I manage the lodging,” explains Alex.
“(Camila) Walk through Tomás, because we are against time, but he also does it so that no mom has to do it,” he says.
Camila’s third objective is to be able to speak in person with the President of the Republic, Gabriel Boric, to urge him to promote a bill to Congress that allows improving the coverage of rare diseases in the country, and medical assistance in rural areas, abandoned by the state in a country where the privatization of health care prevails.
Neira joined the walk because he was moved by Tomás’ suffering but also because he is worried that “in Chile we do not have the means, a clinic where we can have these medicines, that we have to go to this.”
Tomás was diagnosed in March 2023 with Duchenne’s syndrome, the most common but also most severe form of this type of muscular dystrophy that is triggered by a defective gene that affects dystrophin, a protein that helps keep the body’s cells intact.
It causes problems when walking and running, fatigue, learning difficulties and heart and respiratory deficiencies, and those who suffer from it usually have a life expectancy of between 20 or 30 years in difficult conditions.
With more than 700 kilometers of love in her terrified legs, this mother hopes to arrive in the Chilean capital at the end of this month of May from Chiloe, where there is a movement so that the spending on a bridge that they believe is unnecessary, is dedicated to the construction of a perentory hospital
Central America
El Niño could intensify global climate risks, warns World Meteorological Organization
Latin American countries, one of the regions in the world most affected by El Niño, must “take extreme precautions” and make use of so-called “climate intelligence” to mitigate the most severe impacts of the phenomenon, the Secretary-General of the World Meteorological Organization (WMO), Celeste Saulo, told EFE on Tuesday.
With a 90% probability, El Niño is expected to return in the second half of this year, and a strong intensity cannot be ruled out.
As a result, the phenomenon could trigger intense rainfall and flooding in some areas, while causing droughts in others, leading to direct impacts on communities and a wide range of economic sectors, including fishing and agriculture.
Saulo said countries in the region have improved their scientific and institutional capacity to monitor and respond to El Niño, as well as to understand how it interacts with other climate variables, including those linked to climate change, in order to better forecast “more or less severe impacts.”
When describing likely consequences in South and Central America, the Argentine scientist first referred to the “Coastal El Niño,” as the phenomenon is known in Peru and Ecuador.
She explained that this event brings increased rainfall and ocean warming, which strongly affects the fishing industry.
She added that northern South America, Central America, and northeastern Brazil are typically exposed to below-normal rainfall or drought conditions. In past extreme episodes, El Niño has even affected the operational capacity of the Panama Canal and created serious water access and management challenges during severe droughts.
In contrast, southeastern South America—including southern Brazil, Paraguay, northern and northeastern Argentina, and Uruguay—can expect above-average rainfall, increasing the risk of flooding, severe storms, and landslides.
Given the potential for fear and misinformation among populations, Saulo urged people to “trust the institutions responsible for meteorological information,” stressing that national meteorological services are the official and authoritative sources in each country.
“These are the ultimate responsible authorities and the voices of expertise,” she emphasized.
The most recent El Niño episode occurred between 2023 and 2024 and was among the five strongest ever recorded, contributing to record global temperatures.
The WMO chief noted that climate models remain uncertain about the intensity of the next El Niño, though more accurate forecasts are expected in the coming weeks.
While climate change has not been proven to increase the frequency or intensity of El Niño events, scientists do know that both can interact and amplify extreme weather impacts, potentially leading to natural disasters.
Although Latin America is often heavily affected, El Niño impacts can also be felt in North America, the Caribbean, central and eastern Africa, parts of Asia, and Australia.
Central America
Argentina Falls to Lowest Rating in Global Workers’ Rights Index Under Milei Administration
Argentina and Panama have joined Ecuador among the world’s 10 worst countries for workers’ rights, according to a report released Monday by the International Trade Union Confederation (ITUC).
The three Latin American nations appear alongside Belarus, Egypt, Eswatini, Myanmar, Nigeria, Tunisia and Turkey in the latest edition of the Global Rights Index, which evaluates the protection of labor rights around the world.
According to the ITUC, Argentina entered the list this year after being downgraded to Category 5, marking its second consecutive year of declining ratings.
“Argentina joins the list of the 10 worst countries for workers this year after falling to Category 5, following a second consecutive year of deterioration in its rating,” the organization stated.
The report argues that working conditions and the environment for trade unions have become increasingly restrictive under the administration of President Javier Milei.
“Conditions for workers and trade unions have become increasingly repressive and hostile under the far-right government of President Javier Milei,” the study said.
The ITUC also highlighted Argentina’s implementation of an anti-blockade protocol aimed at maintaining public order during road blockades. According to the report, the measure authorizes what it describes as the indiscriminate use of police force.
The organization noted that Argentina’s rating has worsened for a second consecutive year, placing the country in Category 5, the lowest level assigned in the index and the worst rating Argentina has ever received.
“This represents an abrupt and unprecedented decline from Category 3 to Category 5 in just two years,” the report stated.
Category 5 includes countries where workers’ rights are considered “not guaranteed.” According to the ITUC, the downgrade reflects a shift from recurring labor rights violations to a situation in which workers are no longer assured basic protections.
The annual index assesses issues such as freedom of association, collective bargaining rights, the right to strike and legal protections for workers and trade unions.
The report’s findings place renewed international attention on labor conditions in several countries, particularly in Latin America, where Argentina, Panama and Ecuador now rank among the most challenging environments for workers’ rights.
International
OAS Election Mission to Monitor Claims of Political Interference by Colombia’s President
The Electoral Observation Mission of the Organization of American States (OAS) has pledged to follow up on allegations regarding the alleged involvement of Colombian President Gustavo Petro in political campaigning ahead of Sunday’s presidential election.
The announcement was made by presidential candidate Claudia López after a meeting with the head of the OAS Electoral Observation Mission, former Dominican Republic President Leonel Fernández.
According to a statement released by López’s campaign, the OAS mission listened to the concerns raised by the candidate and committed to monitoring the complaints she has submitted to both national and international organizations.
The mission also reiterated its commitment to overseeing the electoral process to help ensure that the will of Colombian voters is respected throughout the election.
“We have turned to international forums and technical observation missions to warn that Colombian democracy cannot be left at the mercy of fear or undue pressure,” López, the former mayor of Bogotá, said following the meeting.
López has repeatedly expressed concerns about what she describes as political interference in the electoral process and has called on national and international institutions to closely monitor the conduct of the campaign.
The OAS observation mission is one of several international bodies deployed to Colombia to monitor the presidential election, which is taking place amid heightened political tensions and intense competition among candidates from across the ideological spectrum.
The election is expected to be closely watched both domestically and internationally as Colombians choose whether to continue with the country’s first left-wing administration or shift toward a new political direction.
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