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Chilean mother travels 1,300 kilometers on foot to try to save her son with dystrophy

In the city of Ancud, one of the most important of the Chiloe archipelago, in the south of Chile, there is no hospital, so if one of its about 165,000 inhabitants gets sick, he must take the ferry and travel about 50 kilometers to reach the neighboring city of Puerto Montt, the nearest place.

Camila Gómez, a young mother, decided to take a trip but this time to walk to the Palacio de la Moneda, in Santiago de Chile, more than 1,300 kilometers from her home, to raise funds and make visible the drama of her son Tomás, who suffers from Duchenne muscular dystrophy, one of the so-called “rare diseases”, which almost no one worries and no one finances.

Its main objective is to help collect the nearly four million dollars that costs a vital treatment that does not exist in Chile – it must be imported from the United States – and that would help stop the progression of the child’s ailment, barely five years old.

“Tomás has Duchenne muscular dystrophy in a neuromuscular degenerative disease that gradually weakens the muscles, the respiratory system and the heart, which leads to premature death,” he explains in one of the highs of his journey.

“In Chile there is no type of treatment for this disease, but in the United States there are several treatment options, there are three and here they told me that it was not possible to cover a medicine that is abroad. And it motivated me to do this walk, this physical effort,” he adds.

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Gómez regrets that no one, neither the precarious public service nor the greedy private insurance, has offered him an exit in the country, although his son “does have options abroad.

“That’s why we decided to walk, to make the disease visible and take it very particularly to collect the 3.9 million dollars that the drug that is administered for the only time in a lifetime costs. So far (its administration) is approved until the age of four and five. Tomás is five and a half years old. So we are against time,” she urges in anguish.

Even so, hope has not been erased from his face and sometimes, especially when asked about solidarity, he outlines a smile of love and trust.

“We are all aware of the great health deficit, that Chile is a country very backward in health, unlike other more developed countries and we are all aware of that. So people have empathized, supported and contributed to the campaign,” he says.

Along with this mother, who left Ancud on April 28, her husband and father of Tomás, Alex Ross, a friend Álvaro Neira and Marco Reyes, president of the Duchenne Families corporation in Chile, who has two teenage children with the same disease and who proposed the Ross Gómez family to the odyssey.

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“I am the logistical support for Camila and Marco who have been walking from Chiloé. I assist them on the way, usually with a change of clothes, food, food, I manage the lodging,” explains Alex.

“(Camila) Walk through Tomás, because we are against time, but he also does it so that no mom has to do it,” he says.

Camila’s third objective is to be able to speak in person with the President of the Republic, Gabriel Boric, to urge him to promote a bill to Congress that allows improving the coverage of rare diseases in the country, and medical assistance in rural areas, abandoned by the state in a country where the privatization of health care prevails.

Neira joined the walk because he was moved by Tomás’ suffering but also because he is worried that “in Chile we do not have the means, a clinic where we can have these medicines, that we have to go to this.”

Tomás was diagnosed in March 2023 with Duchenne’s syndrome, the most common but also most severe form of this type of muscular dystrophy that is triggered by a defective gene that affects dystrophin, a protein that helps keep the body’s cells intact.

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It causes problems when walking and running, fatigue, learning difficulties and heart and respiratory deficiencies, and those who suffer from it usually have a life expectancy of between 20 or 30 years in difficult conditions.

With more than 700 kilometers of love in her terrified legs, this mother hopes to arrive in the Chilean capital at the end of this month of May from Chiloe, where there is a movement so that the spending on a bridge that they believe is unnecessary, is dedicated to the construction of a perentory hospital

International

U.S. Proposes Higher Citizenship Fees and Limits on Immigration Fee Waivers

The U.S. Department of Homeland Security (DHS) has proposed increasing fees related to citizenship applications, while also seeking changes to programs that reduce or waive immigration-related costs for certain applicants.

The proposal would eliminate fee waivers and reduced-fee programs for immigrants whose household incomes are at or below 400% of the federal poverty level.

However, the changes would not take effect immediately. Before receiving final approval, the proposal must go through a 60-day public comment period, allowing individuals and organizations to submit feedback.

DHS justified the proposed increases by stating that the goal is to fully cover the costs associated with processing citizenship and naturalization applications.

“Although the Department of Homeland Security has historically limited form fees to promote naturalization, the agency no longer considers that these applications should have lower costs at the expense of other immigration benefits,” the department said in the proposal document.

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If approved, the reform would modify the current immigration fee structure and could impact thousands of applicants who rely on financial assistance programs to complete their citizenship process.

U.S. authorities said the measure is part of a broader review of immigration service fees and the mechanisms used to fund the administration of these programs.

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International

Cristiano Ronaldo Makes History as First Player to Score in Six World Cups

Cristiano Ronaldo made football history on Tuesday by becoming the first player ever to score in six different editions of the FIFA World Cup.

The Portuguese forward opened the scoring in Portugal’s Group K match against Uzbekistan in Houston. Just six minutes into the game, Ronaldo found the back of the net with a right-footed strike from inside the box, sending the Portuguese fans into celebration.

The “Commander” sparked excitement throughout the stadium with his iconic celebration, as supporters joined in with his famous “Siuuu!” chant to honor another milestone in the career of one of football’s greatest stars.

At 41 years old, Ronaldo has now scored in Germany 2006, South Africa 2010, Brazil 2014, Russia 2018, Qatar 2022, and North America 2026. With his two goals in this tournament, he has surpassed Lionel Messi’s record, as the Argentine has scored in every World Cup he played except South Africa 2010.

The Portuguese captain has also reached nine World Cup goals, matching Eusébio as Portugal’s all-time top scorer in the history of the tournament.

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Ronaldo’s achievement came just one day after Messi also made history by becoming the outright leading scorer in World Cup history, reaching 18 goals after scoring twice in Argentina’s 2-0 victory over Austria.

With his appearance at the 2026 World Cup, Cristiano Ronaldo has also extended another remarkable record by becoming the first player to participate in six consecutive editions of the tournament, further cementing his legacy as one of the most influential players in football history.

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Mbappé Ties Klose on All-Time World Cup Scoring List After Brace Against Iraq

Kylian Mbappé moved another step closer to World Cup history on Monday, scoring twice against Iraq to reach 16 career goals in the tournament and draw level with German legend Miroslav Klose on the all-time scoring chart.

The French forward found the net in the 14th and 54th minutes of France’s Group I clash in Philadelphia, registering his second consecutive brace of the 2026 FIFA World Cup.

Mbappé’s achievement came on the same day that Argentina captain Lionel Messi set a new all-time World Cup scoring record. The Argentine star scored twice against Austria to raise his career total to 18 goals, surpassing the previous mark of 16 held by Klose.

Klose established his record on July 8, 2014, during Germany’s historic 7-1 victory over Brazil in the World Cup semifinals in Belo Horizonte.

Before facing Iraq, Mbappé was tied with German striker Gerd Müller on 14 World Cup goals. His first goal of the match lifted him to 15, drawing level with Brazilian great Ronaldo Nazário.

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The second strike moved the Real Madrid forward to 16 goals, allowing him to surpass Ronaldo, match Klose’s tally, and position himself just two goals behind Messi in the race for World Cup immortality.

The match also marked a personal milestone for Mbappé, as he made his 100th appearance for the French national team.

At 27 years old, the French superstar remains firmly in pursuit of Messi’s newly established record and continues to strengthen his legacy as one of the most prolific scorers in World Cup history.

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