International
Chilean mother travels 1,300 kilometers on foot to try to save her son with dystrophy
In the city of Ancud, one of the most important of the Chiloe archipelago, in the south of Chile, there is no hospital, so if one of its about 165,000 inhabitants gets sick, he must take the ferry and travel about 50 kilometers to reach the neighboring city of Puerto Montt, the nearest place.
Camila Gómez, a young mother, decided to take a trip but this time to walk to the Palacio de la Moneda, in Santiago de Chile, more than 1,300 kilometers from her home, to raise funds and make visible the drama of her son Tomás, who suffers from Duchenne muscular dystrophy, one of the so-called “rare diseases”, which almost no one worries and no one finances.
Its main objective is to help collect the nearly four million dollars that costs a vital treatment that does not exist in Chile – it must be imported from the United States – and that would help stop the progression of the child’s ailment, barely five years old.
“Tomás has Duchenne muscular dystrophy in a neuromuscular degenerative disease that gradually weakens the muscles, the respiratory system and the heart, which leads to premature death,” he explains in one of the highs of his journey.
“In Chile there is no type of treatment for this disease, but in the United States there are several treatment options, there are three and here they told me that it was not possible to cover a medicine that is abroad. And it motivated me to do this walk, this physical effort,” he adds.
Gómez regrets that no one, neither the precarious public service nor the greedy private insurance, has offered him an exit in the country, although his son “does have options abroad.
“That’s why we decided to walk, to make the disease visible and take it very particularly to collect the 3.9 million dollars that the drug that is administered for the only time in a lifetime costs. So far (its administration) is approved until the age of four and five. Tomás is five and a half years old. So we are against time,” she urges in anguish.
Even so, hope has not been erased from his face and sometimes, especially when asked about solidarity, he outlines a smile of love and trust.
“We are all aware of the great health deficit, that Chile is a country very backward in health, unlike other more developed countries and we are all aware of that. So people have empathized, supported and contributed to the campaign,” he says.
Along with this mother, who left Ancud on April 28, her husband and father of Tomás, Alex Ross, a friend Álvaro Neira and Marco Reyes, president of the Duchenne Families corporation in Chile, who has two teenage children with the same disease and who proposed the Ross Gómez family to the odyssey.
“I am the logistical support for Camila and Marco who have been walking from Chiloé. I assist them on the way, usually with a change of clothes, food, food, I manage the lodging,” explains Alex.
“(Camila) Walk through Tomás, because we are against time, but he also does it so that no mom has to do it,” he says.
Camila’s third objective is to be able to speak in person with the President of the Republic, Gabriel Boric, to urge him to promote a bill to Congress that allows improving the coverage of rare diseases in the country, and medical assistance in rural areas, abandoned by the state in a country where the privatization of health care prevails.
Neira joined the walk because he was moved by Tomás’ suffering but also because he is worried that “in Chile we do not have the means, a clinic where we can have these medicines, that we have to go to this.”
Tomás was diagnosed in March 2023 with Duchenne’s syndrome, the most common but also most severe form of this type of muscular dystrophy that is triggered by a defective gene that affects dystrophin, a protein that helps keep the body’s cells intact.
It causes problems when walking and running, fatigue, learning difficulties and heart and respiratory deficiencies, and those who suffer from it usually have a life expectancy of between 20 or 30 years in difficult conditions.
With more than 700 kilometers of love in her terrified legs, this mother hopes to arrive in the Chilean capital at the end of this month of May from Chiloe, where there is a movement so that the spending on a bridge that they believe is unnecessary, is dedicated to the construction of a perentory hospital
International
Venezuela accuses U.S. of using Naval Deployment to pressure Maduro government
The world’s largest aircraft carrier, the USS Gerald R. Ford, joined the U.S. Navy’s anti-drug operation in Latin America on Tuesday—a deployment Venezuela has condemned as an attempt to pressure President Nicolás Maduro from power.
In a statement, the U.S. Southern Command confirmed that the carrier, ordered to deploy nearly three weeks ago, has entered its area of responsibility, which includes Latin America and the Caribbean.
“The world’s largest aircraft carrier will strengthen the United States’ ability to detect, monitor, and dismantle illicit actors and activities that threaten the security and prosperity of U.S. territory and our safety in the Western Hemisphere,” said Pentagon spokesperson Sean Parnell.
According to the White House, the U.S. government under Donald Trump has carried out about twenty operations in the Caribbean and the Pacific since early September, resulting in the deaths of 76 suspected drug traffickers.
However, U.S. authorities have not yet presented evidence that the targeted vessels were being used for drug trafficking or posed a direct threat to the country.
The operations have raised concerns in Caracas, where the Maduro administration views the deployment as a strategic move aimed at provoking regime change in Venezuela.
International
Venezuela mobilizes forces nationwide as tensions with U.S. rise
Venezuela’s armed forces launched a “massive” nationwide deployment on Tuesday in response to what the government calls “imperialist threats” from the United States, which continues its anti-drug military operation in the region and is preparing for the arrival of its most advanced aircraft carrier.
Since late August, U.S. forces have maintained a growing presence in the Caribbean to combat alleged drug trafficking originating from Colombia and Venezuela. The operation has resulted in the bombing of 20 vessels in international waters in the Caribbean and Pacific, leaving 76 people dead.
Venezuelan authorities claim the U.S. mission is aimed at toppling President Nicolás Maduro. While insisting he seeks peace, Maduro has repeatedly warned the country is prepared to defend itself and has frequently showcased military activities.
A statement from Venezuela’s Defense Ministry said the deployment includes land, air, naval, river and missile systems; armed forces units; the Bolivarian militia; and additional police, military and civilian defense structures.
State broadcaster VTV aired speeches from military leaders in various states, along with images of troops mobilizing and equipment being positioned.
However, analysts note that these frequent and highly publicized announcements do not always lead to visible operations on the ground.
On Monday, Maduro cautioned that Venezuela has the “strength and power” to respond to any aggression, including mobilizing civilians. “If imperialism were to strike and do harm, from the moment the order is given, the entire Venezuelan people would mobilize and fight,” he warned.
International
Jara: “Real toughness” means targeting drug money in Chile’s crime fight
Left-wing presidential candidate Jeannette Jara said during Chile’s final debate on Monday that the “real tough approach” to crime is to go after the financial networks behind drug trafficking and organized crime.
Rising crime, often linked in public discourse to a surge in irregular migration, has become the top concern among Chileans and has dominated the election campaign.
Although Chile’s homicide rate has nearly tripled over the past decade — from 2.5 to 6.7 per 100,000 inhabitants — the country remains one of the safest in Latin America, according to the United Nations.
“I want to call on the right-wing candidates to join us in targeting those who control the money behind drug trafficking and organized crime. That is real tough action,” Jara, who is favored to win Sunday’s first-round vote, declared during the debate.
All eight candidates faced off on Monday night in the final televised confrontation before the election.
Polls — unavailable since they were suspended on November 2 — indicate that far-right candidate José Antonio Kast is likely to finish second behind Jara, but would hold the advantage in a potential December 14 runoff.
Kast is expected to consolidate support from three other right-wing contenders: Evelyn Matthei, Johannes Kaiser and Franco Parisi.
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