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Chilean mother travels 1,300 kilometers on foot to try to save her son with dystrophy

In the city of Ancud, one of the most important of the Chiloe archipelago, in the south of Chile, there is no hospital, so if one of its about 165,000 inhabitants gets sick, he must take the ferry and travel about 50 kilometers to reach the neighboring city of Puerto Montt, the nearest place.

Camila Gómez, a young mother, decided to take a trip but this time to walk to the Palacio de la Moneda, in Santiago de Chile, more than 1,300 kilometers from her home, to raise funds and make visible the drama of her son Tomás, who suffers from Duchenne muscular dystrophy, one of the so-called “rare diseases”, which almost no one worries and no one finances.

Its main objective is to help collect the nearly four million dollars that costs a vital treatment that does not exist in Chile – it must be imported from the United States – and that would help stop the progression of the child’s ailment, barely five years old.

“Tomás has Duchenne muscular dystrophy in a neuromuscular degenerative disease that gradually weakens the muscles, the respiratory system and the heart, which leads to premature death,” he explains in one of the highs of his journey.

“In Chile there is no type of treatment for this disease, but in the United States there are several treatment options, there are three and here they told me that it was not possible to cover a medicine that is abroad. And it motivated me to do this walk, this physical effort,” he adds.

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Gómez regrets that no one, neither the precarious public service nor the greedy private insurance, has offered him an exit in the country, although his son “does have options abroad.

“That’s why we decided to walk, to make the disease visible and take it very particularly to collect the 3.9 million dollars that the drug that is administered for the only time in a lifetime costs. So far (its administration) is approved until the age of four and five. Tomás is five and a half years old. So we are against time,” she urges in anguish.

Even so, hope has not been erased from his face and sometimes, especially when asked about solidarity, he outlines a smile of love and trust.

“We are all aware of the great health deficit, that Chile is a country very backward in health, unlike other more developed countries and we are all aware of that. So people have empathized, supported and contributed to the campaign,” he says.

Along with this mother, who left Ancud on April 28, her husband and father of Tomás, Alex Ross, a friend Álvaro Neira and Marco Reyes, president of the Duchenne Families corporation in Chile, who has two teenage children with the same disease and who proposed the Ross Gómez family to the odyssey.

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“I am the logistical support for Camila and Marco who have been walking from Chiloé. I assist them on the way, usually with a change of clothes, food, food, I manage the lodging,” explains Alex.

“(Camila) Walk through Tomás, because we are against time, but he also does it so that no mom has to do it,” he says.

Camila’s third objective is to be able to speak in person with the President of the Republic, Gabriel Boric, to urge him to promote a bill to Congress that allows improving the coverage of rare diseases in the country, and medical assistance in rural areas, abandoned by the state in a country where the privatization of health care prevails.

Neira joined the walk because he was moved by Tomás’ suffering but also because he is worried that “in Chile we do not have the means, a clinic where we can have these medicines, that we have to go to this.”

Tomás was diagnosed in March 2023 with Duchenne’s syndrome, the most common but also most severe form of this type of muscular dystrophy that is triggered by a defective gene that affects dystrophin, a protein that helps keep the body’s cells intact.

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It causes problems when walking and running, fatigue, learning difficulties and heart and respiratory deficiencies, and those who suffer from it usually have a life expectancy of between 20 or 30 years in difficult conditions.

With more than 700 kilometers of love in her terrified legs, this mother hopes to arrive in the Chilean capital at the end of this month of May from Chiloe, where there is a movement so that the spending on a bridge that they believe is unnecessary, is dedicated to the construction of a perentory hospital

International

Marco Rubio warns Cuba could be Trump administration’s next target

U.S. Secretary of State Marco Rubio did not rule out that Cuba’s communist government could become the next target of the Trump administration, just one day after the arrest of Venezuelan strongman Nicolás Maduro.

In an interview on Meet the Press, Rubio issued a warning to Havana, stating that Cuban authorities are “in a lot of trouble.”

“Is the Cuban government the next target of the Trump administration?” journalist Kristen Welker asked.
“Well, the Cuban government is a major problem. Yes,” Rubio replied.
“So that’s a yes?” Welker pressed.
“I think they’re in a lot of trouble, yes,” the Secretary of State added.

In a separate appearance, Rubio—who is the son of Cuban immigrants—claimed that Venezuela’s intelligence services were “full of Cubans” and said the island nation had effectively taken control of Venezuela.

“In some cases, one of the biggest challenges Venezuelans face is having to declare their independence from Cuba,” Rubio said from President Trump’s Mar-a-Lago club. “They basically tried to colonize the country from a security standpoint. So yes, if I were living in Havana and part of the government, I would at least be worried.”

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During a press conference on Saturday, President Trump himself said the United States seeks to be surrounded by “good neighbors.”

“It’s very similar in the sense that we want to help the people of Cuba, but we also want to help those who are forced to leave and live in this country,” Trump said. He also described the island as a “nation in decline” that is “not doing very well right now.”

The Cuban government has not yet responded to Rubio’s remarks. However, as a staunch ally of Maduro’s regime, Cuban authorities strongly condemned recent explosions and U.S. operations in Caracas.

“All nations in the region must remain alert, as the threat looms over everyone. In Cuba, our determination to fight is firm and unbreakable. The decision is one and only one: Homeland or Death,” Cuban officials said in a statement.

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International

Trump signals possible expansion of U.S. regional policy beyond Venezuela

U.S. President Donald Trump said on Saturday that Cuba could become a subject of discussion as part of a broader regional policy, highlighting the possibility that Washington may expand its focus beyond Venezuela amid rising tensions in Latin America.

The remarks suggest that the White House is considering a recalibration of its strategy toward the region, in a context shaped by recent actions and warnings related to political stability and hemispheric security.

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International

World leaders react to U.S. attacks on Venezuela, sparking global divide

The following are international reactions to the U.S. attacks carried out on Saturday against Venezuela:

Chinese Ministry of Foreign Affairs

China said it was “deeply shocked” and strongly condemned the use of force by the United States against a sovereign country, as well as the use of force against the president of that nation.

“China firmly opposes this hegemonic behavior by the United States, which seriously violates international law, infringes upon Venezuela’s sovereignty, and threatens peace and security in Latin America and the Caribbean,” the ministry said. It urged Washington to comply with international law and the purposes and principles of the United Nations Charter, and to cease actions that violate the sovereignty and security of other countries.

French Foreign Minister Jean-Noël Barrot

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Barrot stated that the military operation that led to the capture of Nicolás Maduro violates the principle of non-use of force, which underpins international law. He stressed that no lasting political solution can be imposed from outside and that only sovereign peoples can decide their own future.

Russian Ministry of Foreign Affairs

Russia said the United States had committed an act of armed aggression against Venezuela, describing the move as deeply troubling and condemnable.

“The pretexts used to justify such actions are unfounded,” the ministry said, adding that ideological animosity had prevailed over pragmatism and the willingness to build relations based on trust and predictability.

Moscow emphasized the need to prevent further escalation and to focus on resolving the crisis through dialogue. It reiterated that Latin America should remain a zone of peace, as declared in 2014, and that Venezuela must be guaranteed the right to determine its own destiny without external — especially military — interference.

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Russia also said it supports calls by Venezuelan authorities and Latin American leaders for an urgent meeting of the United Nations Security Council.

United Nations

UN spokesman Stéphane Dujarric said Secretary-General António Guterres continues to stress the importance of full respect for international law, including the UN Charter. He added that the secretary-general is deeply concerned that international legal norms were not respected.

Government of Argentina and President Javier Milei

Argentine President Javier Milei, a close regional ally of Donald Trump, posted on X: “FREEDOM MOVES FORWARD. LONG LIVE FREEDOM, DAMN IT,” alongside a video showing him at a summit describing Maduro as a threat to the region and supporting the pressure exerted by Trump on Caracas.

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In a statement, the Argentine government praised “the decision and determination shown by the President of the United States and his administration in the recent actions taken in Venezuela that led to the capture of the dictator Nicolás Maduro, leader of the Cartel of the Suns.”

Argentina said it hopes these developments represent a decisive step forward in the fight against narcoterrorism in the region.

Mexican Foreign Ministry

Mexico strongly condemned and rejected the unilateral military actions carried out in recent hours by U.S. armed forces against targets in Venezuelan territory, calling them a clear violation of Article 2 of the United Nations Charter.

The Mexican government reiterated that dialogue and negotiation are the only legitimate and effective means to resolve disputes and reaffirmed its willingness to support any effort aimed at facilitating dialogue, mediation, or accompaniment to preserve regional peace and prevent confrontation.

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