International
Chilean mother travels 1,300 kilometers on foot to try to save her son with dystrophy
In the city of Ancud, one of the most important of the Chiloe archipelago, in the south of Chile, there is no hospital, so if one of its about 165,000 inhabitants gets sick, he must take the ferry and travel about 50 kilometers to reach the neighboring city of Puerto Montt, the nearest place.
Camila Gómez, a young mother, decided to take a trip but this time to walk to the Palacio de la Moneda, in Santiago de Chile, more than 1,300 kilometers from her home, to raise funds and make visible the drama of her son Tomás, who suffers from Duchenne muscular dystrophy, one of the so-called “rare diseases”, which almost no one worries and no one finances.
Its main objective is to help collect the nearly four million dollars that costs a vital treatment that does not exist in Chile – it must be imported from the United States – and that would help stop the progression of the child’s ailment, barely five years old.
“Tomás has Duchenne muscular dystrophy in a neuromuscular degenerative disease that gradually weakens the muscles, the respiratory system and the heart, which leads to premature death,” he explains in one of the highs of his journey.
“In Chile there is no type of treatment for this disease, but in the United States there are several treatment options, there are three and here they told me that it was not possible to cover a medicine that is abroad. And it motivated me to do this walk, this physical effort,” he adds.
Gómez regrets that no one, neither the precarious public service nor the greedy private insurance, has offered him an exit in the country, although his son “does have options abroad.
“That’s why we decided to walk, to make the disease visible and take it very particularly to collect the 3.9 million dollars that the drug that is administered for the only time in a lifetime costs. So far (its administration) is approved until the age of four and five. Tomás is five and a half years old. So we are against time,” she urges in anguish.
Even so, hope has not been erased from his face and sometimes, especially when asked about solidarity, he outlines a smile of love and trust.
“We are all aware of the great health deficit, that Chile is a country very backward in health, unlike other more developed countries and we are all aware of that. So people have empathized, supported and contributed to the campaign,” he says.
Along with this mother, who left Ancud on April 28, her husband and father of Tomás, Alex Ross, a friend Álvaro Neira and Marco Reyes, president of the Duchenne Families corporation in Chile, who has two teenage children with the same disease and who proposed the Ross Gómez family to the odyssey.
“I am the logistical support for Camila and Marco who have been walking from Chiloé. I assist them on the way, usually with a change of clothes, food, food, I manage the lodging,” explains Alex.
“(Camila) Walk through Tomás, because we are against time, but he also does it so that no mom has to do it,” he says.
Camila’s third objective is to be able to speak in person with the President of the Republic, Gabriel Boric, to urge him to promote a bill to Congress that allows improving the coverage of rare diseases in the country, and medical assistance in rural areas, abandoned by the state in a country where the privatization of health care prevails.
Neira joined the walk because he was moved by Tomás’ suffering but also because he is worried that “in Chile we do not have the means, a clinic where we can have these medicines, that we have to go to this.”
Tomás was diagnosed in March 2023 with Duchenne’s syndrome, the most common but also most severe form of this type of muscular dystrophy that is triggered by a defective gene that affects dystrophin, a protein that helps keep the body’s cells intact.
It causes problems when walking and running, fatigue, learning difficulties and heart and respiratory deficiencies, and those who suffer from it usually have a life expectancy of between 20 or 30 years in difficult conditions.
With more than 700 kilometers of love in her terrified legs, this mother hopes to arrive in the Chilean capital at the end of this month of May from Chiloe, where there is a movement so that the spending on a bridge that they believe is unnecessary, is dedicated to the construction of a perentory hospital
International
Venezuela Debates Broad Amnesty Law Covering 27 Years of Chavismo
Venezuela’s Parliament began debating on Thursday a sweeping amnesty bill that would cover the 27 years of Chavismo in power, while explicitly excluding serious human rights violations and crimes against humanity.
The proposed legislation, titled the “Amnesty Law for Democratic Coexistence,” was introduced by interim President Delcy Rodríguez, who assumed power following the capture of Nicolás Maduro during a U.S. military operation.
The legislative session was convened for Thursday afternoon, with lawmakers holding an initial discussion focused on the general principles of the bill. This phase precedes a consultation process with civil society, after which the proposal will move to a final debate examining each article individually.
According to a draft of the bill obtained by AFP, the amnesty would apply to individuals accused of crimes such as “treason,” “terrorism,” and “incitement to hatred,” charges that were frequently brought against political prisoners over the past decades. The scope also includes offenses ranging from acts of rebellion to punishments imposed for social media posts or messages sent through private messaging services.
The bill’s explanatory text emphasizes reconciliation, stating that it seeks to move away from “vengeance, retaliation, and hatred” in favor of “opening a path toward reconciliation.”
However, the proposal explicitly excludes from its benefits crimes such as “serious human rights violations, crimes against humanity, war crimes, intentional homicide, corruption, and drug trafficking.”
These exclusions, the text notes, are based on strict compliance with the Venezuelan Constitution, which already prohibits granting amnesties or pardons for such offenses.
International
Díaz-Canel Calls for Talks With Washington Without Pressure as U.S. Tightens Oil Sanctions
Cuban President Miguel Díaz-Canel said on Thursday that his government is willing to engage in dialogue with the United States, provided that talks take place on equal terms and without pressure.
“Cuba is prepared to hold a dialogue with the United States on any issue that either side wishes to discuss,” Díaz-Canel said during a press conference broadcast nationwide on radio and television.
He stressed, however, that such dialogue would only be possible “without pressure, without preconditions, on the basis of equality, and with full respect for our sovereignty, independence, and self-determination.” The Cuban leader added that discussions should avoid issues that could be interpreted as interference in the country’s internal affairs.
Díaz-Canel’s remarks come at a time when Cuba is facing growing pressure from the administration of U.S. President Donald Trump, which has implemented a series of measures that have restricted the island’s access to fuel needed to generate electricity.
Washington has sought to prevent Cuba from receiving oil from Venezuela, its main ally for more than two decades, and has stepped up pressure to reduce crude shipments from Mexico. In addition, Trump signed an executive order in late January allowing the United States to impose tariffs on countries that sell oil to Cuba.
In that order, the U.S. president declared that Cuba represents an “unusual and extraordinary threat” to U.S. national security and foreign policy, accusing the island of aligning itself with hostile countries and actors.
International
HRW Warns Trump’s Influence Has Weakened Human Rights in Latin America
Human Rights Watch (HRW) warned that the political influence and rhetoric of U.S. President Donald Trump have contributed to a deterioration of human rights conditions across Latin America and the Caribbean. In its World Report 2026, the organization stated that several governments in the region have committed abuses against migrants and citizens, or have used U.S. policies as justification to impose harsher repressive measures.
During the first year of Trump’s new term, HRW observed that multiple countries violated the rights of foreign nationals under direct pressure from Washington. Other governments deepened security strategies based on militarization, mass detentions and excessive use of force, according to the report.
“The impact of the Trump administration has undoubtedly been negative in Latin America and the Caribbean,” said Juanita Goebertus, HRW’s Americas director. However, she emphasized that “governments in the region remain responsible for defending democracy and fundamental rights, regardless of who is in power in Washington.”
HRW also reported that the United States significantly reduced cooperation funding for human rights organizations and independent media. At the same time, countries such as El Salvador, Peru and Ecuador passed laws allowing the arbitrary closure of civil society organizations and media outlets, weakening democratic systems and institutional checks and balances.
The organization further criticized what it described as a “double standard” in U.S. foreign policy, which condemns human rights violations in Venezuela, Cuba and Nicaragua while overlooking serious abuses committed by allies such as El Salvador, Peru and Ecuador. The report also included criticism of the U.S. military attack against Venezuela in early 2026, warning that it could strengthen Nicolás Maduro’s regime and respond primarily to U.S. political and commercial interests.
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