International

Chilean mother travels 1,300 kilometers on foot to try to save her son with dystrophy

In the city of Ancud, one of the most important of the Chiloe archipelago, in the south of Chile, there is no hospital, so if one of its about 165,000 inhabitants gets sick, he must take the ferry and travel about 50 kilometers to reach the neighboring city of Puerto Montt, the nearest place.

Camila Gómez, a young mother, decided to take a trip but this time to walk to the Palacio de la Moneda, in Santiago de Chile, more than 1,300 kilometers from her home, to raise funds and make visible the drama of her son Tomás, who suffers from Duchenne muscular dystrophy, one of the so-called “rare diseases”, which almost no one worries and no one finances.

Its main objective is to help collect the nearly four million dollars that costs a vital treatment that does not exist in Chile – it must be imported from the United States – and that would help stop the progression of the child’s ailment, barely five years old.

“Tomás has Duchenne muscular dystrophy in a neuromuscular degenerative disease that gradually weakens the muscles, the respiratory system and the heart, which leads to premature death,” he explains in one of the highs of his journey.

“In Chile there is no type of treatment for this disease, but in the United States there are several treatment options, there are three and here they told me that it was not possible to cover a medicine that is abroad. And it motivated me to do this walk, this physical effort,” he adds.

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Gómez regrets that no one, neither the precarious public service nor the greedy private insurance, has offered him an exit in the country, although his son “does have options abroad.

“That’s why we decided to walk, to make the disease visible and take it very particularly to collect the 3.9 million dollars that the drug that is administered for the only time in a lifetime costs. So far (its administration) is approved until the age of four and five. Tomás is five and a half years old. So we are against time,” she urges in anguish.

Even so, hope has not been erased from his face and sometimes, especially when asked about solidarity, he outlines a smile of love and trust.

“We are all aware of the great health deficit, that Chile is a country very backward in health, unlike other more developed countries and we are all aware of that. So people have empathized, supported and contributed to the campaign,” he says.

Along with this mother, who left Ancud on April 28, her husband and father of Tomás, Alex Ross, a friend Álvaro Neira and Marco Reyes, president of the Duchenne Families corporation in Chile, who has two teenage children with the same disease and who proposed the Ross Gómez family to the odyssey.

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“I am the logistical support for Camila and Marco who have been walking from Chiloé. I assist them on the way, usually with a change of clothes, food, food, I manage the lodging,” explains Alex.

“(Camila) Walk through Tomás, because we are against time, but he also does it so that no mom has to do it,” he says.

Camila’s third objective is to be able to speak in person with the President of the Republic, Gabriel Boric, to urge him to promote a bill to Congress that allows improving the coverage of rare diseases in the country, and medical assistance in rural areas, abandoned by the state in a country where the privatization of health care prevails.

Neira joined the walk because he was moved by Tomás’ suffering but also because he is worried that “in Chile we do not have the means, a clinic where we can have these medicines, that we have to go to this.”

Tomás was diagnosed in March 2023 with Duchenne’s syndrome, the most common but also most severe form of this type of muscular dystrophy that is triggered by a defective gene that affects dystrophin, a protein that helps keep the body’s cells intact.

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It causes problems when walking and running, fatigue, learning difficulties and heart and respiratory deficiencies, and those who suffer from it usually have a life expectancy of between 20 or 30 years in difficult conditions.

With more than 700 kilometers of love in her terrified legs, this mother hopes to arrive in the Chilean capital at the end of this month of May from Chiloe, where there is a movement so that the spending on a bridge that they believe is unnecessary, is dedicated to the construction of a perentory hospital

International

Mexican Navy Ships Deliver Third Shipment of Humanitarian Aid to Cuba

Two logistics support vessels from the Mexican Navy — the ARM Papaloapan and the ARM Huasteco — docked again on Friday in the bay of Havana carrying a third shipment of humanitarian aid for Cuba.

The vessels had previously arrived on the Caribbean island on February 28 with a second cargo that included 1,200 tons of food, sent to help alleviate the country’s ongoing crisis, which has worsened following the U.S. oil restrictions affecting fuel supplies to the island.

Cuba’s deputy foreign minister Josefina Vidal confirmed the new shipment in a social media post.

“Two ships carrying a third shipment of aid from the Government and the people of Mexico for the Cuban people are now arriving at the port of Havana. Thank you Mexico for your solidarity with Cuba,” she wrote.

Previous aid shipments

During the second shipment, the Papaloapan transported 1,078 tons of beans and powdered milk, while the Huastecocarried 92 tons of beans and 23 tons of assorted food products collected by social organizations with support from the government of Mexico City.

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In recent months, Mexico has become the largest provider of humanitarian aid to Cuba, sending around 2,000 tons of supplies, mostly staple foods and hygiene products, in the two shipments prior to Friday’s delivery.

The first shipment alone included 814 tons of food.

Cuba praises Mexico’s support

Hours before the ships arrived, Cuban President Miguel Díaz-Canel highlighted Mexico’s support during a televised appearance, describing the country as “a friendly and brotherly nation that has shown tremendous solidarity,”particularly praising Mexican President Claudia Sheinbaum.

Díaz-Canel also addressed reports suggesting that Mexican donations were being resold in state-run stores, dismissing them as a “disinformation campaign” promoted by right-wing groups.

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International

Ecuador Declares 60-Day National Emergency After Deadly Floods and Landslides

Ecuador has declared a 60-day national emergency to address the impact of a severe rainy season that has left 11 people dead and more than 50,000 affected since January, the government’s disaster management authority announced Friday.

Prolonged heavy rains accompanied by thunderstorms have caused river overflows and landslides, mainly in the coastal provinces of Guayas, El Oro, Esmeraldas, Los Ríos, Manabí and Santa Elena, as well as in the Andean provinces of Lojaand Chimborazo.

According to the Secretariat for Risk Management of Ecuador, the emergency declaration was issued “due to the level of impact caused nationwide on the population, the road network, infrastructure, and livelihoods.”

“The emergency declaration is aimed at responding to the effects and negative impacts and preventing their further spread,” the agency said in a statement.

International

Trump Pushes for Regime Change in Cuba as Havana Confirms Talks With Washington

U.S. President Donald Trump has made no secret of his desire for political change in Cuba, located just 150 kilometers from the United States. Washington considers the island an “exceptional threat,” citing its close ties with Russia, Chinaand Iran, longtime allies of Havana.

Trump has urged Cuba to “reach a deal” with Washington or face consequences, as the island struggles with a severe energy crisis that has nearly paralyzed its economy after the United States cut oil shipments from Venezuela, its main fuel supplier. The U.S. has also warned other countries against selling fuel to Havana.

Cuban President Miguel Díaz-Canel confirmed that Cuban officials have recently held talks with representatives of the U.S. government. The statement came during a meeting with senior members of the ruling Communist Party of Cuba and the executive committee of the Council of Ministers, according to footage broadcast on Cuban television.

“These conversations have been aimed at seeking solutions through dialogue to the bilateral differences that exist between our two nations,” Díaz-Canel said.

Reports of intermediaries and possible negotiations

According to television images, among those attending the meeting was Raúl Guillermo Rodríguez Castro, grandson of former Cuban leader Raúl Castro. Although he holds no official government position, U.S. media have identified him as a possible interlocutor with U.S. Secretary of State Marco Rubio in what have been described as secret discussions between Washington and Havana.

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For some Cubans, any potential agreement with Washington is viewed pragmatically. “As long as it benefits us, we can reach an agreement — but on our terms,” said Sergio Guerra, a 55-year-old agricultural vendor, speaking to AFP.

Díaz-Canel’s remarks confirm earlier statements by Trump, who indicated in January that his administration had already begun contacts with senior Cuban officials.

Mexico calls for diplomacy

Meanwhile, Mexico welcomed the possibility of dialogue after recently sending more than 2,000 tons of humanitarian aid to Cuba to help mitigate the crisis.

Mexican President Claudia Sheinbaum said her country would always promote peace and diplomatic dialogue, particularly in response to what she described as the long-standing injustice of the U.S. embargo on the Cuban people.