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Chilean mother travels 1,300 kilometers on foot to try to save her son with dystrophy

In the city of Ancud, one of the most important of the Chiloe archipelago, in the south of Chile, there is no hospital, so if one of its about 165,000 inhabitants gets sick, he must take the ferry and travel about 50 kilometers to reach the neighboring city of Puerto Montt, the nearest place.

Camila Gómez, a young mother, decided to take a trip but this time to walk to the Palacio de la Moneda, in Santiago de Chile, more than 1,300 kilometers from her home, to raise funds and make visible the drama of her son Tomás, who suffers from Duchenne muscular dystrophy, one of the so-called “rare diseases”, which almost no one worries and no one finances.

Its main objective is to help collect the nearly four million dollars that costs a vital treatment that does not exist in Chile – it must be imported from the United States – and that would help stop the progression of the child’s ailment, barely five years old.

“Tomás has Duchenne muscular dystrophy in a neuromuscular degenerative disease that gradually weakens the muscles, the respiratory system and the heart, which leads to premature death,” he explains in one of the highs of his journey.

“In Chile there is no type of treatment for this disease, but in the United States there are several treatment options, there are three and here they told me that it was not possible to cover a medicine that is abroad. And it motivated me to do this walk, this physical effort,” he adds.

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Gómez regrets that no one, neither the precarious public service nor the greedy private insurance, has offered him an exit in the country, although his son “does have options abroad.

“That’s why we decided to walk, to make the disease visible and take it very particularly to collect the 3.9 million dollars that the drug that is administered for the only time in a lifetime costs. So far (its administration) is approved until the age of four and five. Tomás is five and a half years old. So we are against time,” she urges in anguish.

Even so, hope has not been erased from his face and sometimes, especially when asked about solidarity, he outlines a smile of love and trust.

“We are all aware of the great health deficit, that Chile is a country very backward in health, unlike other more developed countries and we are all aware of that. So people have empathized, supported and contributed to the campaign,” he says.

Along with this mother, who left Ancud on April 28, her husband and father of Tomás, Alex Ross, a friend Álvaro Neira and Marco Reyes, president of the Duchenne Families corporation in Chile, who has two teenage children with the same disease and who proposed the Ross Gómez family to the odyssey.

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“I am the logistical support for Camila and Marco who have been walking from Chiloé. I assist them on the way, usually with a change of clothes, food, food, I manage the lodging,” explains Alex.

“(Camila) Walk through Tomás, because we are against time, but he also does it so that no mom has to do it,” he says.

Camila’s third objective is to be able to speak in person with the President of the Republic, Gabriel Boric, to urge him to promote a bill to Congress that allows improving the coverage of rare diseases in the country, and medical assistance in rural areas, abandoned by the state in a country where the privatization of health care prevails.

Neira joined the walk because he was moved by Tomás’ suffering but also because he is worried that “in Chile we do not have the means, a clinic where we can have these medicines, that we have to go to this.”

Tomás was diagnosed in March 2023 with Duchenne’s syndrome, the most common but also most severe form of this type of muscular dystrophy that is triggered by a defective gene that affects dystrophin, a protein that helps keep the body’s cells intact.

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It causes problems when walking and running, fatigue, learning difficulties and heart and respiratory deficiencies, and those who suffer from it usually have a life expectancy of between 20 or 30 years in difficult conditions.

With more than 700 kilometers of love in her terrified legs, this mother hopes to arrive in the Chilean capital at the end of this month of May from Chiloe, where there is a movement so that the spending on a bridge that they believe is unnecessary, is dedicated to the construction of a perentory hospital

International

Trump floats Vance-Rubio potential Republican ticket for 2028 election

U.S. President Donald Trump suggested on Monday that Vice President JD Vance and Secretary of State Marco Rubiocould potentially form a Republican presidential ticket for the 2028 elections.

Speaking during a dinner with law enforcement officials as part of National Police Week, Trump publicly praised both officials and said they could make “an ideal team” for the next presidential race.

“Who likes JD Vance? Who likes Marco Rubio?” Trump asked attendees before adding that the pair “sound like a good combination.”

The president highlighted his vice president’s performance in office, stating that their current partnership has been highly effective. “JD is perfect, that has been a perfect formula,” Trump told reporters later.

He further suggested that a Vance-Rubio pairing could represent a strong presidential and vice-presidential ticket, although he stopped short of offering any formal endorsement.

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“I think it sounds like a presidential candidate and a vice-presidential candidate,” he said, while clarifying that his remarks should not be interpreted as an official backing of any future campaign.

So far, neither Vance nor Rubio has publicly confirmed any intention to run in the 2028 presidential election.

Rubio previously sought the Republican nomination in 2016 but withdrew after losing the primary race to Trump. Later, in a December 2025 interview with Vanity Fair, he said he would be among the first to support Vance if he decided to run for the White House.

Vance, meanwhile, has recently dismissed speculation of any political rivalry with Rubio amid growing discussion about potential future GOP leadership.

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International

Russia Accuses Ukraine of Violating Victory Day Truce

Russia accused Ukraine on Saturday of violating a Victory Day truce that was reportedly agreed with mediation from the United States, claiming that Ukrainian forces carried out attacks on Russian territory as well as on the annexed Crimean peninsula.

Despite the declared ceasefire, the Russian Ministry of Defense said in a statement that Ukrainian forces attacked Russian military positions using attack drones and artillery.

According to the ministry, Ukrainian forces made twelve attempts to advance toward Russian-held positions across several sectors of the front line.

It also alleged that Ukrainian strikes targeted civilian infrastructure in Crimea, several border regions, the Caucasus, and other areas including Moscow and Perm in the Ural region.

The Defense Ministry estimated around 8,900 violations of the ceasefire in total, including more than 7,000 drone attacks and over 1,000 strikes involving tanks, artillery, multiple rocket launch systems, and mortars since the truce came into effect at midnight.

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Russia said its forces responded “symmetrically” to what it described as violations by Ukrainian troops.

Earlier, the Kremlin denied claims that Ukraine attempted to sabotage a military parade in Red Square marking the 81st anniversary of the Soviet victory over Nazi Germany in World War II.

“No attempts were made. Everything went well,” Kremlin spokesperson Dmitry Peskov told local media.

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International

Trump Says U.S.-Iran Talks Progressing, Signals Possible Deal on Strait of Hormuz

U.S. President Donald Trump said Wednesday that Washington is holding “very good” talks with Iran and stated that there is a strong possibility of reaching an agreement to end the conflict and reopen the Strait of Hormuz.

“We’ve had very good conversations over the last 44 hours, and it’s very possible that we’ll reach an agreement,” Trump said during an event held in the Oval Office at the White House.

The president’s remarks came just hours after he announced a temporary suspension of the military operation aimed at escorting vessels stranded in the Persian Gulf due to Iran’s blockade of the strategic Strait of Hormuz.

Trump explained that the pause in operations is intended to facilitate diplomatic negotiations between both sides and prevent further military escalation in the region.

“We’re in good shape, and right now things are going well. Now we have to achieve what we need to achieve. If we don’t, we’ll have to go much further,” the Republican president warned.

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In a post published on his social media platform Truth Social, Trump reiterated that if Iran accepts Washington’s proposed conditions, military operations and the naval blockade affecting the Islamic republic would come to an end.

However, he also issued a new warning to the Iranian government, stating that the United States would respond with attacks “of greater intensity” if Tehran rejects the agreement promoted by the White House.

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