International
Chilean mother travels 1,300 kilometers on foot to try to save her son with dystrophy
In the city of Ancud, one of the most important of the Chiloe archipelago, in the south of Chile, there is no hospital, so if one of its about 165,000 inhabitants gets sick, he must take the ferry and travel about 50 kilometers to reach the neighboring city of Puerto Montt, the nearest place.
Camila Gómez, a young mother, decided to take a trip but this time to walk to the Palacio de la Moneda, in Santiago de Chile, more than 1,300 kilometers from her home, to raise funds and make visible the drama of her son Tomás, who suffers from Duchenne muscular dystrophy, one of the so-called “rare diseases”, which almost no one worries and no one finances.
Its main objective is to help collect the nearly four million dollars that costs a vital treatment that does not exist in Chile – it must be imported from the United States – and that would help stop the progression of the child’s ailment, barely five years old.
“Tomás has Duchenne muscular dystrophy in a neuromuscular degenerative disease that gradually weakens the muscles, the respiratory system and the heart, which leads to premature death,” he explains in one of the highs of his journey.
“In Chile there is no type of treatment for this disease, but in the United States there are several treatment options, there are three and here they told me that it was not possible to cover a medicine that is abroad. And it motivated me to do this walk, this physical effort,” he adds.
Gómez regrets that no one, neither the precarious public service nor the greedy private insurance, has offered him an exit in the country, although his son “does have options abroad.
“That’s why we decided to walk, to make the disease visible and take it very particularly to collect the 3.9 million dollars that the drug that is administered for the only time in a lifetime costs. So far (its administration) is approved until the age of four and five. Tomás is five and a half years old. So we are against time,” she urges in anguish.
Even so, hope has not been erased from his face and sometimes, especially when asked about solidarity, he outlines a smile of love and trust.
“We are all aware of the great health deficit, that Chile is a country very backward in health, unlike other more developed countries and we are all aware of that. So people have empathized, supported and contributed to the campaign,” he says.
Along with this mother, who left Ancud on April 28, her husband and father of Tomás, Alex Ross, a friend Álvaro Neira and Marco Reyes, president of the Duchenne Families corporation in Chile, who has two teenage children with the same disease and who proposed the Ross Gómez family to the odyssey.
“I am the logistical support for Camila and Marco who have been walking from Chiloé. I assist them on the way, usually with a change of clothes, food, food, I manage the lodging,” explains Alex.
“(Camila) Walk through Tomás, because we are against time, but he also does it so that no mom has to do it,” he says.
Camila’s third objective is to be able to speak in person with the President of the Republic, Gabriel Boric, to urge him to promote a bill to Congress that allows improving the coverage of rare diseases in the country, and medical assistance in rural areas, abandoned by the state in a country where the privatization of health care prevails.
Neira joined the walk because he was moved by Tomás’ suffering but also because he is worried that “in Chile we do not have the means, a clinic where we can have these medicines, that we have to go to this.”
Tomás was diagnosed in March 2023 with Duchenne’s syndrome, the most common but also most severe form of this type of muscular dystrophy that is triggered by a defective gene that affects dystrophin, a protein that helps keep the body’s cells intact.
It causes problems when walking and running, fatigue, learning difficulties and heart and respiratory deficiencies, and those who suffer from it usually have a life expectancy of between 20 or 30 years in difficult conditions.
With more than 700 kilometers of love in her terrified legs, this mother hopes to arrive in the Chilean capital at the end of this month of May from Chiloe, where there is a movement so that the spending on a bridge that they believe is unnecessary, is dedicated to the construction of a perentory hospital
International
German president warns Iran war could spread and disrupt Strait of Hormuz
The president of Germany, Frank-Walter Steinmeier, warned Monday that the war involving Iran could expand and further disrupt shipping through the strategic Strait of Hormuz. He urged a swift end to hostilities between Iran, United States and Israel.
Speaking in Panama City during a joint appearance with Panamanian President José Raúl Mulino, Steinmeier said available information suggests Iran has significant capacity to disrupt maritime traffic through the key oil route.
“Iran has considerable potential to interfere with shipping through the Strait of Hormuz,” Steinmeier said through an interpreter. “We should therefore reach an end to the hostilities as soon as possible and call on all parties involved to make that happen.”
The remarks came during Steinmeier’s visit to Panama, the first by a German president to the Central American nation.
The German leader described the possibility of the conflict spreading as “very dangerous,” saying recent developments indicate that such a scenario cannot be ruled out.
Over the weekend, U.S. President Donald Trump urged allied nations to help ensure safe passage for ships through the Strait of Hormuz after Iran moved to block the waterway in response to U.S. strikes. However, several allies—particularly in Europe—have shown little support for the proposal.
“Some are very enthusiastic, others are not, and some are countries we have helped for many years,” Trump told reporters at the White House. “We have protected them from terrible external threats, and they’re not that enthusiastic. And the level of enthusiasm is important to me.”
Meanwhile, Kaja Kallas, the European Union’s top diplomat, said the Strait of Hormuz falls “outside NATO’s scope” and stressed that “the war involving Iran is not Europe’s war.”
International
Mexico security chief meets DEA director in Washington to boost anti-drug cooperation
Mexico’s Secretary of Security and Citizen Protection, Omar García Harfuch, met in Washington with the head of the U.S. Drug Enforcement Administration, Terrance Cole, to discuss cooperation in the fight against drug trafficking and illegal arms flows.
The Mexican official said Monday on social media that he attended the meeting in representation of the Mexican government’s Security Cabinet.
“In Washington, D.C., I represented the Security Cabinet to hold talks with DEA Director Terrance Cole on the importance of strengthening bilateral cooperation to combat drug trafficking, curb the flow of weapons into our country, and reduce violence in Mexico through significant arrests,” García Harfuch wrote.
He added that, following instructions from Mexican President Claudia Sheinbaum, the government will continue strengthening international cooperation on security matters.
For his part, Cole said the meeting focused on cross-border collaboration to tackle drug trafficking and to build safer communities on both sides of the border.
The meeting comes as Mexico and the United States begin a new round of dialogue on economic and security issues.
Earlier Monday, President Claudia Sheinbaum said she will look for the “best moment” to meet with U.S. President Donald Trump, adding that maintaining a good relationship with Washington is a priority for her administration.
International
Venezuela’s foreign minister accuses UN rights chief of “immoral bias”
Venezuelan Foreign Minister Yván Gil criticized the United Nations High Commissioner for Human Rights, Volker Türk, accusing him of having an “immoral bias” and acting as an “echo chamber for falsehoods” regarding the situation in Venezuela.
Gil’s remarks came after Türk stated that his office had not received an official list from Venezuelan authorities detailing the release of political prisoners, nor authorization to carry out visits related to the issue.
“The UN High Commissioner for Human Rights insists on a narrative biased against our country, repeating unfounded accusations while deliberately omitting the impact of unilateral coercive measures on the rights of the Venezuelan people,” Gil said in a message posted on his Telegram channel.
Without directly addressing the question of prisoner releases, the Venezuelan foreign minister also accused Türk of aligning with what he described as the “agenda of extremism in Venezuela.”
Gil added that, despite serious human rights violations occurring in other parts of the world, the UN official has chosen to maintain what he described as an “immoral bias” against Venezuela.
The criticism is part of a broader dispute between the Venezuelan government and the UN human rights office over reports and investigations concerning the human rights situation in the country.
German president warns Iran war could spread and disrupt Strait of Hormuz
Mexico security chief meets DEA director in Washington to boost anti-drug cooperation
Venezuela’s foreign minister accuses UN rights chief of “immoral bias”
Tec de Monterrey honors one of its students for his contribution to nanotechnology in medicine
Defense Minister commends salvadoran soldier for Central American Cross Country victory
Extension of the state of emergency approved in southern Chile
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